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Latest Celiac Disease News & Research:
Everything posted by Kaycee
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Hi there. Along with having coeliac, I have only just been diagnosed with legionnaires disease. I've had it for probably two months, and only now have the diagnosis. Although not requiring hospital treatment, I feel rather lousy. Anybody got any good advise on how to manage this. ie, I need to build up my immunity. I'm not a smoker, gave up 20 years ago...
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ARCHIVED Throwing Up
Kaycee replied to sarahann324's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sarahann, I was eating gluten for 48 years before I went gluten free. Never once could I attribute throwing up with gluten. But now since being gluten-free, I have had the unpleasant feeling of wanting to throw up and throwing up. So it can happen. -
ARCHIVED Weakly Positive-waiting For Doc's Explanation
Kaycee replied to Seamuskitty's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Julie, welcome. My doctor described me as weakly positive after having my blood tested. He insisted I had coeliac, so my journey began. A bit like you, I was 48 when diagnosed, and I had already eliminated gluten out of my diet for about a month before the blood test. I was trying to figure it out on my own. If you are on a totally gluten free diet... -
ARCHIVED Question About You Going gluten-free & The Effects
Kaycee replied to 3groovygirls's topic in Parents, Friends and Loved Ones of Celiacs
Neroli, I would love to do what you say. But first of all I would need my mum and dad to believe there is a problem. I know it might sound a bit slack on my part, but I have discussed this exact thing with mum and dad. Mum goes as far to say, that my problems are similar to hers, but she is adamant that it could be the same disease. My father initially thought... -
ARCHIVED Question About You Going gluten-free & The Effects
Kaycee replied to 3groovygirls's topic in Parents, Friends and Loved Ones of Celiacs
Hi, what you describe has been the case for me. I went on a diet to loose weight a while back while still eating gluten. On the diet I wasn't eating much bread and or processed food, so not much gluten, and I felt quite good. My diarrhea eased off and I felt better, but the relief was only temporary. I am guessing my body was getting used to the lower... -
ARCHIVED Diarrhea , Will It Ever Go Away?
Kaycee replied to Gf Jane's topic in Coping with Celiac Disease
Jane, sorry you are having it so hard. It reminds me a lot of myself. between 10 and 20 years of diarrhea. Finally I got the coeliac diagnosis, and with it came back a semblance of a normal bowel motion. But I still was not happy with it, as the weeks went it got to the point where it was really being a pain and I felt I was possibly not being careful enough... -
ARCHIVED Does Anyone Here Count Calories?
Kaycee replied to msmini14's topic in Related Issues & Disorders
Yes Jennifer, when I come across any adverse re-actions, I write them down too, some re-actions happen pretty quick, others the next day, but I can look back and wonder if it was this or that that caused it. It has been a long drawn out process, and for me different things give me different symptoms, so it has been invaluable to working out things. Sometimes... -
ARCHIVED Does Anyone Here Count Calories?
Kaycee replied to msmini14's topic in Related Issues & Disorders
Msmini, when I first went gluten free, I was dieting and counting calories. Since gluten free, I have done the same as I still have got weight to loose. As well as counting, I make notes of what I eat, as it has been more than gluten that upsets me, and cataloguing what I eat has enabled me to find the other culprits. Your answer as to whether this helps... -
ARCHIVED Eating Disorder Brought On By Gluten Intolerance?
Kaycee replied to kdonov2's topic in Coping with Celiac Disease
I used to have problems with eating before. In the fact that I would eat too much. Like Chrissy says, I would cook, or buy something really nice before going gluten-free, or even just plain ordinary everyday food, and I would eat all or most of the product myself. I just couldn't help myself, I have always been overweight and hungry. Going gluten free... -
I get the brittle nails too that split and chip. Also, I have had cramps in the soles of my feet. Especially when stretching them out while sleeping, they would hurt. And cramps in my legs. Must say the cramping has all but gone since being gluten free, but the nails are still a problem. Cathy
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ARCHIVED Processed Foods
Kaycee replied to LandonL's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Landon, my take on processed food and what I allow myself to eat is a bit different to Rinne's. For me I eat as much fresh fruit and vegetable, eggs and meat as I can, but I include things in my diet like coffee, tea, milk, rice bread, yogurt, pasta/rice noodles (as they are just basically the raw materials without all the additives in them.) My main focus... -
ARCHIVED I'm Planning My Cheat Day
Kaycee replied to Blessings's topic in Coping with Celiac Disease
Ah Blessings, I'm forever planning my own cheat party. Whenever I'm feeling sorry for myself. Sometimes I just want to feel miserable, I don't know why. But that is as far as it goes. Just the planning, as really I don't want to be sick as a dog? Never. I take it that your comments are tongue in check, and I see you have just been accidentally glutened... -
ARCHIVED For Those Of You Who Never Lost Weight B4 Going gluten-free
Kaycee replied to ptkds's topic in Coping with Celiac Disease
I was another who never had loosing weight as a symptom. No matter how much D I had, I gained weight. I was so hungry all the time. Admittedly, I lost about 14 lbs before I was diagnosed, but that was through sheer hard work fighting the battle of always wanting to eat and not because of coeliac. As soon as I went gluten free I wasn't as hungry. I had all... -
ARCHIVED "Super Sensitive" Celiacs.....
Kaycee replied to jerseyangel's topic in Super Sensitive People
Back to spices. Here in NZ a lot of the spices I look at in the supermarket say, processed on a line that processes gluten etc, or may contain traces of gluten. I have even cooked a cake once, felt sick and thought I better check the ingredients, and the packet of cinnamon I had used said it contained gluten. So I agree spices can be an issue. But having... -
Congratulations Molly. I know how you feel. Tomorrow it will be 3 years for me. It is a day not to forget. I might just bring out the chocolate and wine, as tomorrow here is the 14th. Cathy
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Hi Ashley. A few years back I suffered from a cyst on my ovary. The pain was very regular, as were my periods, and the cyst did not seem to interfere with the regularity of them at all. The pain would occur midway through my cycle like clockwork, it would start from the back and by the next day the pain would've moved to my right front, and would be very...
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ARCHIVED "Super Sensitive" Celiacs.....
Kaycee replied to jerseyangel's topic in Super Sensitive People
Hi Angie. Well I gave up corn for a couple of weeks and thought, this hasn't made a difference. But I was going to stick with it for a bit longer. Then I went away overnight with my parents and I had taken a few convenient things to eat, and there was corn/maize in the crackers and I didn't think it would be too bad, as I was a bit sceptical about... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
Kaycee replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Sorry to change subject, but you got to watch this. Cathy -
ARCHIVED It's Official... My Mom Has Celiac!
Kaycee replied to Mother of Jibril's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your mums sound so much like my mum. She has been ill for years, mainly just with stomach issues, and I guess high blood pressure and high cholesterol. She went to the doctor just before Christmas thinking she had what I had, coeliac. But the doctor didn't run the tests, instead he blamed it on her gall bladder and the thing that got me was that the Doctor... -
ARCHIVED "Super Sensitive" Celiacs.....
Kaycee replied to jerseyangel's topic in Super Sensitive People
McD's fries. I admit to eating them in the past. I haven't had any problems with them. I now have two sons working for them over the summer months, and they confirm that they only use the fryer for chips. On the NZ McD's website it says they may contain traces of gluten But I haven't had any for ages, and if I want chips I can make my own. Actually the... -
ARCHIVED "Super Sensitive" Celiacs.....
Kaycee replied to jerseyangel's topic in Super Sensitive People
Lizard, thanks for your reply. In the beginning, about 4 months into the gluten-free diet, I did eliminated three further things in my diet, it didn't seem to make much change. So I added dairy back, then a while later peanuts, and then finally soy. I found soy is the one that I have had most problems with, symptoms very similar to gluten, so I avoid... -
ARCHIVED "Super Sensitive" Celiacs.....
Kaycee replied to jerseyangel's topic in Super Sensitive People
Bad days, and I try not to dwell on them, but I did feel like the odd one out to start with. It seemed to take me forever to get to where I am now, three years later. But I still feel I haven't quite got to where I want to be. I have had glimpses of what I want to be, bright and bubbly, but invariably I'm still stuck in my cocoon, and not as outgoing... -
ARCHIVED "Super Sensitive" Celiacs.....
Kaycee replied to jerseyangel's topic in Super Sensitive People
Patti, the coke had Aspartame (951) and something called acesulfame K (950), plus the usual caramel colouring (150d). Take my pick. It was a hot day, and the beach was calling and I was thirsty, and they didn't have diet lemonade, so I grabbed the next best thing I knew they would have! Cathy -
ARCHIVED "Super Sensitive" Celiacs.....
Kaycee replied to jerseyangel's topic in Super Sensitive People
I'm nearly three years down the line, I'm still not 100% right. There is still something that gets me. I have wondered about peanuts, now and then I will ditch them, but they seem to creep back into my life. I cannot tolerate roasted nuts, so my only peanut indulgence is organic peanut butter, which is just peanuts, oil and salt. I think I can handle this...