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Latest Celiac Disease News & Research:
Everything posted by rinne
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ARCHIVED Specific Carbohydrate Diet (SCD)
rinne replied to AliB's topic in Food Intolerance & Leaky Gut
I am glad to know you are feeling better today. Thanks for the tip on the grapefruit seed extract, I am going slow on it. It is wonderful to feel better and to know that I am healing after such a long time of doubt. -
ARCHIVED Specific Carbohydrate Diet (SCD)
rinne replied to AliB's topic in Food Intolerance & Leaky Gut
I thought about what I said in regards to being strict in the beginning and wanted to say more. For the first two months of the diet I ate cheese and yogurt made with cow's milk, it did not agree with me but I stubbornly kept eating it thinking, well the diet says I can have it.... Finally I realized that I would have to give it up and did, and then... -
Hi. I suggest a very simple diet in the beginning, I can't help you with the additive lists as I avoid all processed foods. Sorry. As for your upset stomach perhaps some peppermint tea to help settle it, many people find the first little while difficult in a variety of ways. It is overwhelming at first but it will get easier and you will feel...
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ARCHIVED Paroxetine Hydrochloride (paxil) & Gluten
rinne replied to susiequsie's topic in Gluten-Free Foods, Products, Shopping & Medications
Please, if you haven't looked into the risks of Paxil, please look into them. I have known two people who went through a terrible withdrawal trying to get off it. There are other medications that are not so dangerous. -
ARCHIVED Specific Carbohydrate Diet (SCD)
rinne replied to AliB's topic in Food Intolerance & Leaky Gut
Thank you so much for your posts, it so helpful to have the perspective of someone who has been on the diet longer. I appreciated knowing that my hunch that the C returning was a positive sign of the diet working. I found that I increased my protein intake when I was first ill, it just seemed that was what my body wanted but recently I am finding... -
ARCHIVED Cabbage Juice
rinne replied to JMacca's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have found cabbage juice helpful, when I was most ill I bought a case of cabbage and juiced it everymorning until I could no longer drink cabbage juice. I don't think it is a quick fix though, I think of it more as a support for wellness. -
ARCHIVED Freaking Out...
rinne replied to Lissa's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi. Perhaps you have healed enough that it won't be an issue for you, I had problems with gluten for many years but when I hadn't had any for a long time I could handle a bit, if I kept eating it though it did become a problem again. I hope this passess quickly for you. -
ARCHIVED Not Getting Better
rinne replied to wajo427's topic in Parents, Friends and Loved Ones of Celiacs
I was in severe pain for a long time after going gluten free and dairy free, I finally realized that the simplest diet worked best for me and I cut out all grains and processed foods, I also added probiotics to my diet. The reality may be that having been sick for ten years it may take quite a while for her to heal. Once our digestive systems collapses... -
ARCHIVED Asymptomatic Children With Celiac Disease May Be Able To Eat Gluten?
rinne replied to SalmonNationWoman's topic in Coping with Celiac Disease
I found the article on Medscape but didn't register, is there a link available other than registering for yet another site? As to one or two sentences, it was a little longer than that but truly do some research on research and you will find many studies that are clearly without any concern for the participants. -
ARCHIVED Trouble With All Grains
rinne replied to glutenfreegirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have problems with all grains but since I started the SCD (Specific Carbohydrate Diet) I no longer miss them. I do my baking with almond flour. I have seen studies that suggest some do not heal on only a gluten free diet but perhaps this is just a stage and you will be able to reintroduce them later on. -
Sorry you are suffering. It is difficult in the beginning, I suspect it was the meat but who knows it could have been something else. In the beginning it is often most helpful to stay with the simplest of foods. I always tell people that I will bring food and please not to make anything for me because I am such a pain. I hope you are feeling...
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ARCHIVED Asymptomatic Children With Celiac Disease May Be Able To Eat Gluten?
rinne replied to SalmonNationWoman's topic in Coping with Celiac Disease
My point would be that the damage observed in the biopsy is a symptom. Do you think parents wouldn't be concerned about the fact that there was already damage present? I do agree with you though it is possible that parents would agree, after all, we are well trained to trust doctors. -
ARCHIVED Specific Carbohydrate Diet (SCD)
rinne replied to AliB's topic in Food Intolerance & Leaky Gut
Jan I think Elaine Gottschall said it was necessary to be fanatical with the SCD but I think we all just have to do the best we can. I fudge on the coffee, I just refuse to drink weak coffee and last week I took a Tylenol because I burned myself really badly and that pain on top on the digestive pain was too much. The Tylenol helped and I didn't seem to... -
ARCHIVED Processed Foods
rinne replied to LandonL's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi. Gluten free pasta is definitely a processed product, as far as unprocessed you could add fish, nuts and whole grains like rice, buckwheat, amaranth, etc. to your list. My understanding is that processed is anything that has been taken from its' raw/basic state and changed I eat unprocessed foods except for goat milk yogurt which I make... -
ARCHIVED Asymptomatic Children With Celiac Disease May Be Able To Eat Gluten?
rinne replied to SalmonNationWoman's topic in Coping with Celiac Disease
Biopsy proven would indicate damage to me, is damage not a symptom? I would be interested in knowing the parameters of this study, did the parents of all the children know? I am just imagining the researcher talking to the parents of the children without "symptoms". As in..... We would like your child to participate in a study, we have found... -
Good point although I think the stats would be somewhat different, that there are many undiagnosed doctors out there is, I am sure, true. I know I would be interested in a thread talking about what kind of clinic I would like to be able to go to, just in case you are interested in starting one. I read a study recently about medical...
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ARCHIVED Getting Tested
rinne replied to gfpagan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Nope, no gluten required for these tests. And congratulations on having the confidence to make a choice for yourself. I think the gluten challenge is a horrific thing to do to our bodies, somehow being sick enough to feel like you are dying and eating the foods that are making you feel this way in order to do enough damage that they can see it... -
ARCHIVED Getting Tested
rinne replied to gfpagan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi. I agree, blood work to look at your vitamin and mineral levels is a very good idea, many celiacs are deficient in B and D vitamins and supplementing with them can be very helpful. I never went the route of testing because I too understood that gluten was a problem for me, in my case though a brother and sister both diagnosed through endoscopy... -
ARCHIVED Celiac Treatment Research
rinne replied to Mollifier's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Parallel. I am sure the pharmaceutical companies are salivating at the idea of yet another product we will purchase to suppress symtoms, symptoms that could be prevented by changing our diets. Look at the profits being made from those diagnosed with arthritis and diabetes. -
ARCHIVED Specific Carbohydrate Diet (SCD)
rinne replied to AliB's topic in Food Intolerance & Leaky Gut
Hi Jan. I am finding it slow going also, I have been on the diet for four and a half months and although I am seeing improvement I still have symptoms. The C which had gone away has returned recently and strangely I think it is a good sign as it may mean one of the flares common to the diet every few months for the first year or two. I tried a... -
Hi. I don't think it is a stupid question, I think it is a good question. I avoid all the highly processed gluten free foods as I react to them so perhaps that 200 ppm really only works for those who aren't so sensitive. Does this means that these foods could be causing damage with celiacs unaware of it? I don't know but these days I find I have...
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ARCHIVED Want Tested - Can't Get It
rinne replied to BigDogz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi. In my opinion your doctor is worse than the average bad doctor, he is abusive and insulting in addition to being ignorant. I don't think that any proof you come up with will make him admit he is wrong, I would write him off right now. I am glad to know that regardless of testing you intend on going gluten free as obviously it is a positive... -
ARCHIVED Specific Carbohydrate Diet (SCD)
rinne replied to AliB's topic in Food Intolerance & Leaky Gut
Thanks so much for your quick response, it is the only product available to me which doesn't come in a gelatin capsule and have other herbs in it that I am not sure I want to take. It is helpfu to know that you take them in combination. -
ARCHIVED Does Anyone Know What Could Be Wrong?
rinne replied to Kurstin's topic in Parents, Friends and Loved Ones of Celiacs
Hi. How very scary for you all. What is her diet like now? I am sorry not to be so helpful, I really have never heard of such a thing. I wonder though if she could be exposed to any toxins? Toys aren't even safe these days. -
ARCHIVED Specific Carbohydrate Diet (SCD)
rinne replied to AliB's topic in Food Intolerance & Leaky Gut
Has anyone tried the caprylic acid with olive leaf extract in a liquid form?