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Latest Celiac Disease News & Research:
Everything posted by rinne
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We are all canaries. I won't repeat what so many of you have eloquently expressed, I will only add that from my point of view those who are less sensitive might benefit from those of us who are more sensitive, they might trust that if we say there is a problem there is a problem. Proof? There is no proof one way or the other, just as for many...
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ARCHIVED Feria Hair Color
rinne replied to raisin's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for the topic and the discussion. -
ARCHIVED What Next?
rinne replied to mjhurd31's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That diet is the best way to go in the beginning but that is just my opinion and I am not a doctor. Lots of good advice above depending on how you want to go, I chose to go gluten free the day I understood what celiac was and my family connections to it. I have not gotten well on a gluten and dairy free diet and am now trying the Specific Carbohydrate... -
ARCHIVED Long Rant..just Having To Vent About My Appointment
rinne replied to chasbari's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It seems we are of like minds. " I mentioned to her that it was on the high side relative to my normal reading and she just ignored me. In noting my weight loss I mentioned to her that now that I was adhering to a strict gluten-free diet I had lost some weight and my RA was getting better by the day. She looked at me sideways and said "all because... -
ARCHIVED What Next?
rinne replied to mjhurd31's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi. Sorry to hear that you are feeling so badly. I think you may find it difficult to get a diagnosis which doesn't mean you shouldn't try but the ususal celiac tests are not reliable. Hopefully someone will come along soon who can give you a better analysis of what tests are good. I think there is a genetic test which some have used. With... -
ARCHIVED Long Rant..just Having To Vent About My Appointment
rinne replied to chasbari's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
No. This is a little embarrassing to say but I made the assumption based on his abusiveness, that kind of behavior is typical of the kind of treatment women often receive. I suppose that means I was assuming men aren't treated that way. Thanks for your post, I appreciated what you had to say about the experience particularly about knowing the... -
ARCHIVED Long Rant..just Having To Vent About My Appointment
rinne replied to chasbari's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
What a patient man you are. I appreciate your desire to have a dialogue but it seems he wasn't the one to have it with. -
ARCHIVED Diagnosis Negative But What Do You Guys Think?
rinne replied to CBaker88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It does sound like it could be celiac, the tests are not reliable. In my opinion IBS is a ridiculous diagnosis, what does it mean, Irritable Bowel Syndrome? So one day the bowel just gets irritated for no reason, I don't think so. Many people are given that diagnosis and find out years later that it was celiac, and they only find out after significant... -
ARCHIVED Long Rant..just Having To Vent About My Appointment
rinne replied to chasbari's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
What a patient woman you are. Rant away. Personally I would have left after a few minutes of that, abuse is abuse and he was abusive. -
ARCHIVED Heavy Duty Mixer Ratings
rinne replied to Spartans1960's topic in Gluten-Free Foods, Products, Shopping & Medications
I love my Kitchenaid - Artisan but it is a one piece unit. -
ARCHIVED Biopsies Labelled Abnormal
rinne replied to Magician's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think that when someone's digestion is working properly it is all digested. One thing I make an effort to do, and it is an effort because I grew up with six and brothers and sisters and if you wanted to eat more you ate fast , is to chew my food very thoroughly. It is said that digestion begins in the mouth. You might want to peel your... -
ARCHIVED Would Like Your Opinions Please
rinne replied to GoSurf1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You may be an undiagnosed celiac with diabetes as a consequence of that. I would say that if you have been under doctor's care for fifteen years with the diabetes and migraines then you need to look at just how much your doctors are helping you, sorry if that sounds rude but in my opinion the medical system is structured to profit from your illness... -
ARCHIVED Specific Carbohydrate Diet (SCD)
rinne replied to AliB's topic in Food Intolerance & Leaky Gut
If this is what you were referring to then I think we agree, I think the problem is that the damage has to become visible to their tests, the damage is being done from the beginning. What I mean by we are sick before is damage is being done to us. -
ARCHIVED Biopsies Labelled Abnormal
rinne replied to Magician's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I can't remember if we talked about dairy before, are you eating dairy? Gas is one indication of problems with it. Floating poop, not good, you probably have malabsorption, do you see undigested food? I think it is good to get over our squeamishness about poop. -
ARCHIVED Specific Carbohydrate Diet (SCD)
rinne replied to AliB's topic in Food Intolerance & Leaky Gut
I came across a site recently about HCL and they said that even though it was made from beets you can't get the same benefit from eating beets, I disagree. They were selling HCL, naturally they would have me believe that I need their supplements. I eat freshly grated beets with lemon juice at least twice a day and it helps. I have begun to wonder... -
ARCHIVED Celiac Disease And Gluten Intolerant?
rinne replied to glutenfreegirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Denial. Seriously, I know a lot of people who don't feel well who will never change their diets. One friend has arthritis that is so severe her hands are beginning to twist and becoming deformed, she knows white sugar is bad for her but she says she has to have a teaspoon five or six times a day in her coffee. She is on medication for her arthritis... -
ARCHIVED Md Reccomended Testing For Celiac
rinne replied to haleym's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi. Do your own research, investigate every medication and test offered, learn to read the test results and what they mean. You can always bring questions here, many are very knowledgeable and willing to help. Study your body's reactions to different foods, make feeling good a priority, and most important trust yourself. A celiac diagnosis... -
ARCHIVED Couldn't Tolerate The Gluten Challenge
rinne replied to Swansong's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi and welcome. Add me to the list, the day the gastro suggested celiac as a possibility was the day I quit all gluten. I had known for years I had problems with bread and avoided it but I hadn't understood about gluten. The endoscopy was scheduled for five months after that and there was no way I was ever going to eat gluten again so I passed on... -
ARCHIVED Biopsies Labelled Abnormal
rinne replied to Magician's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh,oh, so embarrassed I got you mixed up with Whistle, must be that Manitoba connection. I hope your doctor can provide you with some clarity soon. -
ARCHIVED Biopsies Labelled Abnormal
rinne replied to Magician's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sorry I can't be of any help with the tests, perhaps someone else can. -
ARCHIVED Biopsies Labelled Abnormal
rinne replied to Magician's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, Sorry to hear that you are worried, worry is not good, trust me I have spent a lot of time doing it. Here's a question for you, "do you want to eat?" Chances are if you want to eat then you will live, not very scientific but I think an important factor. You have already seen your symptoms change when you restricted gluten, our... -
ARCHIVED If Life Was Fair We Wouldn't Need Grace And Mercy
rinne replied to mayfaire's topic in Publications & Publicity
Thanks for posting that. There is no doubt that money and power are seductive; it is good to know that the students are raising this issue. I am glad that people wanting to become doctors recognize that "the brand" has been damaged by this. -
It is heartbreaking isn't it? I had mono at 17 and that is about when I identified bread as a problem.
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I had pre-eclampsia, this was many years ago, and no one ever talked to me about anything related to it. I was very ill and hospitalized for it.
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Wow, you are one strong woman, I am happy for you that you finally have a good doctor.