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rinne

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Everything posted by rinne

  1. rinne
    Sorry you are feeling so badly. It is interesting to me that while they tested you to see what is wrong they never tested you to see if you are deficient in any vitamins and minerals. Low B12 and D is a strong indicator for Celiac although it also indicative of other problems with digestion. My own theory is that long before damage shows up we...
  2. rinne
    If we let this thread drop now it will move to the back and she most likely will not see it but if you want me to edit my post to take anything out (messy sister) I am happy to do so. You could edit your post if you wanted to. I agree that connecting her with this site would be very positive.
  3. rinne
    There are silent Celiacs, people who apparently have no digestive symptoms but are still being damaged by gluten. It can affect our whole body, even our ability to think clearly. perhaps this has something to do with her messiness. My sister is messy too! The simplest thing for you to do would be to serve her unprocessed foods: fruit, vegies...
  4. rinne
    Good advice, I'm not a doctor or nutritionist either.
  5. rinne
    Excellent advice and how fortunate your niece is to have you. Deb, is this a younger sister? I ask because I have a younger sister who, no matter how diplomatic I am, will not listen to me. My nephews and niece have gluten issues, as does my sister, but she lives in denial. Recently my nephews, now young adults, have come to me to ask about nutrition...
  6. rinne
    What a brilliant idea, I sometimes wish I had a better history of my pain and progress. Wade away or not. Jumping in is fine from my perspective but then I did that after wading through some pages, not all. I use almond flour I order through the Grain Free Gourmet and it is much superior to Bob's, it has a lovely fine texture...
  7. rinne
    Post when you can.
  8. rinne
    Wonderful. Also, the probiotics must be SCD compliant. I am amazed at what I am learning about them. Good points, the die off comes later, mmmmm..... I'm at the two month point. I tend to think that once our digestive system has collapsed, everything is a challenge to digest and the trick is to maximally take care of ourselves by...
  9. rinne
    Just wondering how you are doing?
  10. rinne
    Hi. Sorry you are feeling so unwell. I am thinking if you are here then you may be willing to think diet has something to do with how you are feeling, yes? What is your diet like? You said you've had various tests done, did any of those tests include blood work to check your vitamin and mineral levels?
  11. rinne
    Hi. A year is a long time to see no improvement but it can take longer to heal than that. For many people dairy is also and issue and may prevent healing, have you continued to eat dairy? I see you tried lactose free but does that mean you continued to consume dairy at all, cheese? When your doctor did these tests did he also check your...
  12. rinne
    My symptoms included walking like I was drunk, when I hadn't had a drink in months, and other neuro symptoms from a B12 deficiency. It is very common for Celiacs to be deficient in this and other vitamins, Vitamin D too. It is well worth the effort to have your doctor do the blood work to check your vitamin and mineral levels. Of course, if you...
  13. rinne
    I suppose you could have a bug of some sort, or cross contamination (sometimes products change), or environmental issues at work, but it does sound like a die off, hopefully it will pass quickly. Have you had your doctor check your vitamin and mineral levels?
  14. rinne
    Crashers welcome. I'm sort of one myself. That is wonderful that you felt so great over the holidays, I am wondering if you might be experiencing some die off of bad bacteria but I really don't know. Anyone else?
  15. rinne
    This is not a product I would use. Thanks to everyone for their contributions to this thread, it has been one of the most enlightening threads I have encountered.
  16. rinne
    I am glad to know that they are checking your levels, since they are treating you for Pernicious Anemia it would be good to know if the treatment is having a positive effect. It would have been good of them to tell you they were doing that. I wish I was more scientific, I read a little about Pernicious Anemia and it looks like it could be completely...
  17. rinne
    Genltleheart phone and spoke with someone in Dr.Fine's office, she seems well satisfied with the conversation she had and it is well worth the read. I think it is wonderful news that Dr.Fine refers to the SCD on the Faqs page, SCD, SCD, SCD. I am happy for those who can simply drop gluten and feel better and I am glad that I committed myself to...
  18. rinne
    I'm sorry to hear that, it is hard to be ill and harder when there is little sympathy. There is a learning curve to understanding what our bodies need, you will get there.
  19. rinne
    Hi. I appreciate that question, unfortunately I have no answer for you. Healing is very individual, if you have time to read some of the posts you will see that it varies, for some simply cutting (whoops I am sure someone doesn't think it is simple!) out gluten will make the difference, for others more intolerances seem to arise. Dairy, soy, corn...
  20. rinne
    Yup.
  21. rinne
    Ali, I think sometimes we slip a little and sometimes we slip a lot but as long as we are aware that we are doing that and we continue to work at it, it will work. Don't be too hard on yourself. I know some of the times I pushed my limits were when I had started to feel a bit better and I had felt deprived for so long, other times it was when I had...
  22. rinne
    I've had B shots and taken the methylcobalmin, in a sublingual form. Lately I have been reading that the absorption rates for B vitamins, even the sublingual, is not that great and I have been looking into a patch and a nose spray. It is worth having blood work done to check your vitamin and mineral levels. Like you I have always held stress/anxiety...
  23. rinne
    Hi. I found that B12 really helped me with stress and anxiety. I am wondering what your diet is like other than gluten free, MSG can have some nasty effects as can Aspartame and other additives.
  24. rinne
    Last week after realizing I couldn't handle the cheese I was feeling so deprived that I went on a real apple pie binge, I had it for breakfast every morning! I make a crust with almond flour, coconut oil and just a little honey, roll it out in two pieces, the top a little larger and then put my sauteed apples with cinnamon on the bottom layer, top...
  25. rinne
    I am strict, other than I refuse to drink weak coffee and so am down to one coffee a day. Cheese just doesn't work for me yet, just a little goat yogurt, also I think cauliflower doesn't agree with me. I appreciate the chocolate conversation. I have a lot of a wonderful dark chocolate, no sugar in it, sweetened with acai berries, sitting in...
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