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rinne

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Latest Celiac Disease News & Research:

Everything posted by rinne

  1. rinne
    And mine too.
  2. rinne
    Sorry you are feeling so wretched. First of all, a biopsy after eating gluten for two weeks after being gluten free for a year is not going to be accurate, in my opinion. Further doctors miss celiac year after year after year, perhaps you have read the signatures of posters here who have been ill for a decade or more and diagnosed with half a dozen...
  3. rinne
    Hi. If you want reassurance that gluten is not a problem for you, you might be at the wrong site. Most of us here know gluten is a problem and the symptoms you are describing are completely consistent with gluten intolerance and celiac. I started out with headaches, I wish I had know there was such a thing as celiac back then, MSG sensitivity...
  4. rinne
    Good for you for figuring it out and helping your Mom. This site?
  5. rinne
    I get that it takes time and I understand why people are reluctant to look at giving up even more. I was there, I spent 2 1/2 years eating gluten and dairy free and didn't see the improvements I hoped for. I am very glad this thread is here, thanks Ali and to all, I think we should make an effort to have one thread on the SCD on the active topics...
  6. rinne
    I appreciate the "wishful thinking". Hi. Getting a celiac diagnosis is generally not to easy, read through some of the histories (at the bottom of each person's posts) and you will see years of illness before a diagnosis. Have you been healthy up to this point, other than the rash?
  7. rinne
    So much depends on how long you have been ill, what other conditions you have, whether you are exposed to cross contamination....... feeling better after two weeks is positive. Keep in mind though that some see an initial improvement and then seem to have setbacks which can throw doubt about the diagnosis. Many find that giving up dairy is necessary...
  8. rinne
    How were you diagnosed? If by blood work and they have told you have celiac, you have celiac. The biopsy is considered a "gold standard" by doctors as they can, once you have enough damage, see the damage. That's the catch, you have to continue to eat gluten in order for the damage to be seen. Diet is considered by some to be a perfectly legitimate...
  9. rinne
    Hi. I know it is overwhelming at first but it will get easier, this is a great place to come with questions. Many people with celiac have no problem with cross contamination, it is important to pay attention too but don't let it make you crazy. Eating simple is best, whole foods, unprocessed foods.. Do you cook? How are you feeling...
  10. rinne
    I used to have ringing in my ears, not constantly but often enough to find it distracting. It went away when I brought my B12 levels up. So my answer is maybe.
  11. rinne
    That would be him. Thanks much.
  12. rinne
    Thanks for the links, very interesting, particularly the third one as it is clear a tremendous amount of research has gone into it, and all to find out that eating simply leads to a healthier life. Well, the second one was very interesting too, living in Canada I am very aware of the high rate of diabetes within the First Nation's community. And the first...
  13. rinne
    I think the reality is that once we are ill there are no simple solutions, illness requires that we pay attention. I know it is difficult but the reality is it may not be the foods themselves that are the problem, it may be that your digestion is challenged to work at all and so anything that is difficult for you to digest will cause distress. This...
  14. rinne
    That is wonderful.
  15. rinne
    Good points. I know I craved fat, I ate spoonfuls of almond butter at one point but can't imagine eating that much of it now.
  16. rinne
    That would make it more challenging but still very doable if you can have other nuts. I don't eat soy and have found that, at this point, I can't eat dairy, it is something I will keep challenging periodically. Not eating eggs would make it difficult to do any baking, can you tolerate any egg at all? I know some can have a little in baked goods but...
  17. rinne
    That may be true for 82% of celiacs but for the other 18% not true at all, according to the study above. I've read that it was a Willem Dicke who observed that during the flour shortages of the second world war children with celiac improved, that was in 1950 and that by 1952 this theory was being promoted as the answer to celiac. That doesn't sound...
  18. rinne
    Thanks Pele, I think we cross posted, I went and found a link too. From the link you posted: So, if we diagnose celiac as applying only to those who are strictly gluten-intolerant then we can diagnose another sub-set of celiacs with atypical symptoms who don't heal. What is wrong with this picture? Especially if you consider that children...
  19. rinne
    I know it takes some time to adjust to life without a gallbladder. When did you have the surgery? My husband had his out and for about five - eight years when he needed a bathroom, he needed it right that minute, it has improved considerably in the past few years. I know what you mean about not getting help to figure it out, 16 years is unacceptable...
  20. rinne
    Since you were just diagnosed in September I wonder if your body just needs to do this. Were you thin before? Your diet sounds healthy although I am not a fan of soy, I don't think we really understand what we are doing with it. I think it is important to trust our bodies and if your body is telling you "feed me" then I would listen, really listen...
  21. rinne
    Found it. From "Everyday grain-free Gourmet" by Jodi Bager and Jenny Lass: So, even though a diet existed that addressed this and Dr. Haas had published a book about it the Mayo Clinic knew nothing of it. It reminds of a radio program I listened to today talking about cell phones and the dangers to children, many European countries...
  22. rinne
    I have wondered about this. I wish I could remember where I read that one third of celiacs do not improve with only a gluten free diet, has anyone else seen this? I think that if this is the case then there is an opportunity to take advantage of that by marketing SCD products. I suspect that as people turn to the SCD there will be a growing demand...
  23. rinne
    Check out this thread, there is an interesting discussion of B12. HERE
  24. rinne
    Sorry to hear you are still struggling after two years gluten free, that is a long time I know. I can't help you with how to take the betaine although I am sure someone here will know the answer to that. I have found that supplements don't agree with me, I too have problems with low stomach acid. Only a small burp after the five minutes! I have been...
  25. rinne
    Mr. Moore you are not annoying, we sympathize with you because we too have felt lost and alone and scared. Perhaps I have said this to you before, please excuse me if I have, there are so many things we cannot control but we can control what we put into our bodies and taking responsibility for that is a big step towards getting well. We have...
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