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GlutenWrangler

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Everything posted by GlutenWrangler

  1. GlutenWrangler
    I agree, IBS is complete bull. IBS is a lazy doctor's diagnosis. Definitely get yourself tested. Those blisters on your hands could be dermatitis herpetiformis. If you get a biopsy on it, and it comes out positive, you don't have to do any further testing for celiac disease. DH is a confirmed celiac diagnosis. Good luck. -Brian
  2. GlutenWrangler
    Michelle, Some of us have classic celiac disease with major GI symptoms. Others have no GI symptoms whatsoever. But no matter what the symptoms, none of us can tolerate gluten. In fact, the majority of celiacs and gluten sensitive people do not exhibit classic celiac symptoms. What you're feeling certainly corresponds with gluten intolerance. You're GI symptoms...
  3. GlutenWrangler
    It really is a good idea to tell your date right away. Celiac disease is more than just a medical condition. It's a lifestyle. If there is any possibility of a relationship becoming serious, the non-celiac has to know what they are really getting into. Unfortunately, some people will be put off by it. But it's better to know who you're dealing with right...
  4. GlutenWrangler
    Hey, I'm 22, going back to college next fall. I've been unable to go for the last few years because celiac disease did quite a number on me. I definitely wouldn't eat anything on campus. You may want to think about talking to someone in health services on campus to see if they can accommodate your needs. I think I read somewhere that they have to try to...
  5. GlutenWrangler
    Amanda, Modified food starch is safe if the product is made in the USA. From what I've read, all DISTILLED vinegar is safe. Obviously, barley vinegar is not safe. Maltodextrin must be labeled as "wheat maltodextrin" in the USA if it is derived from wheat. Otherwise, if it just says maltodextrin, it is safe. Dextrin is usually derived from corn in the USA...
  6. GlutenWrangler
    You definitely have it.
  7. GlutenWrangler
    Many sources of information about celiac disease will say that symptoms will usually cease after about 2 weeks on the diet. For the vast majority of us, this couldn't be farther from the truth. I'm sure there are some people who fit into this category, but generally healing is a slow, arduous process. Younger people usually heal much faster than their older...
  8. GlutenWrangler
    If you just want to know your genetics, get the genetic testing for celiac disease/gluten sensitivity. I think it is $149. If you want to know the genetics and if you are currently creating an immune response to gluten, get the complete panel with the gene test. I think that one is $369. It is a good idea to get the complete test becuase even if you are not...
  9. GlutenWrangler
    You should definitely stay on the diet. It takes a long time to heal and restore normalcy. It is great that you are seeing a nutritionist. She may help speed your recovery. If you had positive blood tests, you have celiac disease. Fortunately, you were diagnosed before your villi flattened. It time, the villi would have flattened, and you would be in much...
  10. GlutenWrangler
    30 minutes to feel the effects
  11. GlutenWrangler
    I'm not sure exactly when babies can be tested, but make sure to do it ASAP. He may not exhibit any symptoms even if he does actually have celiac disease. Everyone is different, and babies are especially difficult because they can't tell you how they feel. The chances are very high that he has it. You may just want to avoid the problem all together and put...
  12. GlutenWrangler
    While the symptoms may be similar, it is true that if you had the flu you would most likely have a fever. Reactions to gluten change after going gluten-free. Before going gluten-free, your body is used to taking in a toxin every day. It knows that it will keep coming. When you go gluten-free, your body adapts to a toxin free diet, and vigorously reacts when...
  13. GlutenWrangler
    The effects of being glutened can last anywhere from 1 day to 2 weeks. I usually feel better within 3 days, but everyone is different. If you are concerned about the length of time or severity of the reaction, double check to make sure that you are not inadvertently ingesting any gluten. -Brian
  14. GlutenWrangler
    Yeah you're right. My doctor probably couldn't contibute anything to help me manage. Even if he did give me some advice I would come here to check with everyone.
  15. GlutenWrangler
    No I didn't think you were picking on me. I just noticed that you were right. For some reason I thought it said subtype 9 instead of subtype 8. You're right about it being confusing though!
  16. GlutenWrangler
    Tests for celiac disease are accurate if there is considerable damage. When there is enough damage, antibodies are detectable in the blood, and villous atrophy is visible on a biopsy. The problem lies in the fact that the blood tests and biopsies are designed to diagnose celiac disease. They are not designed to diagnose non-celiac gluten intolerance. In non...
  17. GlutenWrangler
    I wouldn't eat it either. If anything, you're the one who should have been mad at him for contaminating your food and being so insensitive. I hope for your sake he starts to be more careful. -Brian
  18. GlutenWrangler
    Nancy, It isn't always necessary to go into detail, but a lot of the time when I have told my doctors I have something, they want to know who the doctor is that diagnosed me. If I say "I have celiac disease", my doctor will say, "oh who is treating you for it". That's all I mean. Kassie, A lot of doctors dismiss Enterolab because they don't use blood...
  19. GlutenWrangler
    Yeah you're right I mixed that one up. DVK does have a main celiac gene.
  20. GlutenWrangler
    Don't get me wrong, I absolutely trust my results. Dr. Fine helps so many people who had essentially given up on finding a diagnosis. If I didn't happen upon Enterolab I would probably be hooked up to a feeding tube by now. As much as I believe in Enterolab, doctors generally don't, so it is hard to say "I was diagnosed with celiac disease through a lab in...
  21. GlutenWrangler
    Hey Everyone, I was just wondering if you think positive Enterolab results count as an official diagnosis. Those of us diagnosed through Enterolab can't really say that our doctor diagnosed us. Just wondering what you think. Thanks, -Brian
  22. GlutenWrangler
    I think it's a great idea to just eat fresh foods for a while. Fresh foods are the most nutritious for the body, and your body needs all it can get while healing. You may find that you cannot tolerate certain foods, especially dairy, but as your villi grow back, you should be able to re-introduce them. Keep in mind that celiacs also have other food sensitivities...
  23. GlutenWrangler
    I lost 65 pounds 7 months. The gluten-free diet is what stopped the weight loss for me. I haven't been able to gain weight, but it is scary when you can't stop losing weight. I'm a male at 130 pounds, which seems really low, but it is still in the normal BMI range. 162 pounds isn't bad, unless you are very tall or have a very large frame. Don't worry about...
  24. GlutenWrangler
    While DQ2 and DQ8 are the only "known" celiac genes, DQ1 and DQ3 are now known gluten intolerant genes. 1% of the population that is diagnosed with celiac disease does NOT have DQ2 or DQ8. From what I've read, most of those 1% have DQ1. Therefore, it would be legitimate at the very least to say DQ1 a celiac gene. Since the poster has malabsorption, it is...
  25. GlutenWrangler
    Tommy, I definitely make sure to get my electrolytes, especially since overhydration can be deadly. My total liquid for the day looks like this: 15 24oz bottles of water 4 Gatorades 2 Pepsi 12oz cans Tiffany, So what your saying is that I may have needed this much fluid before, but I don't need that much now, but my body thinks it needs it? That's...
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