. It's possible to have negative results and have post symptoms but still have antibodies?
There are posters on this board who have returned for a six-month checkup with their doctor and still have positive blood tests for antibodies. While the numbers have usually markedly declined, they are sometimes accused of not following the diet corrrectly because the antibodies are still active. Doctors often bully them, tossing the refractory sprue diagnosis at them, but we always tell them, as long as the numbers are continuing to go down not to worry. Even after a year, in some people whose numbers have been very high, the tests are still in the positive range. Very few people actually have refractory disease; they just heal slower and sometimes they are the super sensitives to gluten who have to be stricter than the rest of us with the diet. Some have to eliminate all processed foods altogether because the food tests for gluten free are not sensitive enough to pick up very low levels (under 5ppm) of gluten. A member who uses the screen name dillettantesteph is one of these. These people who still have high antibody levels do still have symptoms. But if you personally ever had autoimmune antibodies (i.e., celiac and not gluten intolerant) you have shed them already through your dietary elimination of gluten. Research is still ongoing as to how to test someone who is gluten intolerant but not celiac and therefore does not have these antigliadin antibodies; i.e., to find a marker which characterizes the condition. But because of your gluten free status you may not have this marker either by now if there were one. Just a very long-winded way of saying that healing does not take place immediately , whether celiac or not, and that even in the absence of antibodies there is still damage for your body's road crew to work on before you become completely whole again. I am five years gluten free and still living on the knife edge, hoping my rheumatoid symptoms stay at bay and that I can ditch my Humira totally (I have used it for only two separate months out of the last 18 or so months, last time in November last year.) While all my joints have recovered I occasionally get flares of that electrical-type exruciating pain in my fingers and toes, now down to every six months or so or perhaps, we can hope, now gone forever. My rheumatologist in U.S. does not believe in a dietary connection with RA but is at a loss to understand how I can go without treatment for such long periods. Certainly it could not be because of my diet
I would be totally supportive of you not further poisoning yourself to satisfy some doctor's craving for certainty, so long as you do not need that certainty for yourself, also. You must look inside yourself for that answer.