Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help With Blood Results


.byrdie

Recommended Posts

.byrdie Newbie

I know that based on my results from my Celiac Blood Panel that I am negative for Celiac Disease, but I was curious if my results could mean that I am "gluten sensitive"...

 

Any help is appreciated

 

Results:

 

Tissue Transglutaminase AB, IGA - 1     <4 No anitobody detected

                                                                > or = 4 antibody detected

 

Immunoglobulin A - 306                            81 - 463 mg/dL

 

 

Gliadin (Deamidated) AB (IGA) - 7          <20 antibody not detected

                                                                 > or = 20 antibody detected

 

 

I have a lot of the symptoms for gluten sensitivity, such as: bloating, gas, fatigue, joint pain, getting full quickly, irritable, anxiety, loose stools, migraines, ear infections, etc...

 

Thanks in advanced to whomever answers :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Your symptoms would certainly point to non-celiac gluten intolerance (NCGI) - those gluten migraines are killers! Celiac blood tests do not indicate NCGI if they are low. Celiac blood tests are largely in response to the damage being done to the intestines, and NCGI patients do not have dmagae to the intestines (although they appear to have every other horrible symptom). Your tests are negative, so I would guess you don't have celiac; you could always request the EMA IgA, DGP iGG, AGA IgG and AGA IgA, and tTG iGG for further blood testing, or even the biopsy if you really think it's celiac (based on family history or other info).

 

If you can't do further testing, I would advise you to go gluten-free for at least 4-6 months. You have some pretty classic symptoms that will probably disappear over time on the gluten-free diet.

 

Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.