Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No More Grains Either


ShannonA

Recommended Posts

ShannonA Contributor

So I have now been off of gluten for 10 months and 8 months ago I had to get off of corn,soy, dairy.  That said my diet has been pretty much chicken, vegetables, and 2 fruits (apple and banana).  I also became salicylate sensitive which made eating anything else impossible.  As of last week I am not tolerating grains.  My belly started getting distended in October with certain foods but now it's distended with anything I eat.  I still have daily headaches/migraines.  I am on pain meds around the clock, anti inflammatory injections and muscle injections at night due to the horrific pain in my head.  I now notice if I eat grains my muscles and bones hurt to the point I don't want to get out of bed and the fatigue is atrocious.  Also grains have started making my mind feel crazy.  It sounds so weird but it's the truth.  It's hard to explain but  there is a direct relation with my intestine, grains, and my mind.  My pain management doctor does not believe this is the cause of any of my problems.  Although out of the 25 or so symptoms I had before going gluten free have resolved, I still have a few, all neurological.  WHen I go to the ER, Tordol shot is what takes away the pain, it's an anti inflammatory medicine.  My doctor started me on Cymbalta this week and I felt like I was on serious drugs and could not function.  I literally could not drive on the 4th day.  Will this end?  Why does it seem I am not going up hill?  I have only drank water and coffee for 10 months also. My biopsy showed nothing and blood test negative for Celiac disease although he only took 2 samples.  But it wasn't until I got off of gluten that I started to get better, bed ridden for 1 year and near death, really.  So why the grains all of a sudden? I just don't understand.  Thank you for any input!

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Drop coffee if you haven't so far. It can irritate a healing gut.

ShannonA Contributor

Drop coffee if you haven't so far. It can irritate a healing gut.

Thanks did not know that.  With insomnia the last 6 months, I've been drinking about 3 pots to help me going through the day.

mushroom Proficient

When you start reacting to more and more foods it is often a sign of leaky gut syndrome.  This means that the membrane that lets digested food into the blood stream is not working properly and is letting partially digested food through.  Your autoimmune system reacts to this partially digested food as being "non-self" and creates antibodies toward it, and there is another food you are reacting to.  This is usually not a permanent loss, but healing the gut is key.  I don't know what supplements you are taking, but if you are not already doing so I wold recommend a regime of probiotics, digestive enzymes and L-glutamine (to restore the good flora in your gut, supplement the enzymes your pancreas is producing to improve your digestion, and heal the gut). 

ShannonA Contributor

Drop coffee if you haven't so far. It can irritate a healing gut.

Is tea OK?

ShannonA Contributor

When you start reacting to more and more foods it is often a sign of leaky gut syndrome.  This means that the membrane that lets digested food into the blood stream is not working properly and is letting partially digested food through.  Your autoimmune system reacts to this partially digested food as being "non-self"  and creates antibodies toward it, and there is another food you are reacting to.  This is usually not a permanent loss, but healing the gut is key.  I don't know what supplements you are taking, but if you are not already doing so I wold recommend a regime of probiotics, digestive enzymes and L-glutamine (to restore the good flora in your gut, supplement the enzymes your pancreas is producing to improve your digestion, and heal the gut). 

Yes the Naturopath that I saw did say I had leaky gut back in June.  I just started being able to tolerate probiotics 4 weeks ago.  I have been on Verdezyme for a couple of months and I used to take L-glutamine per Naturopath but I quit a while back because he said it was healed by now.  I'll start it again. Thank You!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.