I am new to this forum. I been having issues with my health for the past few years and my doctor has done almost every test under the sun. The past couple of months I finally got fed up with how crappy I felt and went to my doctor asking him if I could have a test for celiac disease again. He told me that since I had a test two years prior that he didn't want to do another one because that test came back negative. He told me that if I wished I could eat a gluten free diet if I thought it would make me feel better! Nice!
Since I feel like I won't be getting anywhere with this doctor I decided to go strictly gluten free for a few months to see how I feel. I mentioned to my doctor again that I am trying the gluten free diet and he said that likely I am not celiac because my recent blood work all came back normal. My iron is up as well as my vitamin B12. Can you still have celiac or gluten intolerance and have normal bloodwork?
Here are the symptoms that I have been having which sounds a lot like gluten intolerance to me (or possibly celiac??). I know that if I eat something with gluten in it I don't feel well shortly after eating it so there must be something going on there.
-extreme fatigue (most weekends spent sleeping during the day)
-waking up feeling exhausted after sleep 8 hours a night
-weight gain (can't lose weight in stomach and legs despite trying)
-a lot of water retention/bloating in stomach
-headaches, diarrhea or sometimes constipation, upset stomach shortly after eating anything with gluten)
-tingling and pins and needles from my mid-face to my toes on both sides (tests done to rule out other causes)
-my entire body hurts (joint and muscle pain)
-lower back pain
-panic attacks and anxiety at bedtime
For the past week I have been strictly gluten free and I am starting to feel better already. I have lost 3.5 pounds and my energy and brain fog has already improved. I am still having body pain, back aches and tingling.
Should I maybe go to another doctor for a second opinion which of course would mean I would have to go back to eating gluten again?
Thanks for your help.