Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused And Need Help With Sons Symptoms


alicia534

Recommended Posts

alicia534 Rookie

My son is 21 months old. He has been unofficially diagnosed with Celiac Disease based on symptoms. He has been gluten free for 8 months. The one symptom that has not gone away is constipation. He goes 4-5 days between bm and when he goes it's painful for him. I cannot stand to see him like this anymore. He takes a tsp of miralax everyday. I have tried increasing the miralax, but then he gets diarrhea. I would like to figure out what is causing his problems instead of just treating the symptom.  He is allergic to dairy and peanuts. He also had an IgG blood test run when he was 8 months old. It came back positive for dairy, peanuts, eggs, strawberries, banana, and brewers yeast. After having the skin test done the allergist said we did not need to avoid anything but the dairy and nuts. His GI also said that the IgG testing does not mean anything and he can eat those foods. I am now wondering if we should avoid those foods. I have been keeping a food diary off and on for the last year, but I can't figure this out. I don't know what to do for him anymore. I need help figuring this out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Think of allergies as a "fire".  You need to calm down that fire and maybe, if your'e lucky, extinguish it.  I had I
gG testing done years ago.  Tested high for five foods, moderately for many others.  First thing is to eliminate completely all those items that were on the list.  Then divide up a list of foods that he can eat and divide them into four days (some docs suggest 7 days)

 

Here's a hurried example and you need to add more foods:

 

 

Day 1 Day 2 Day 3 Day 4 Turkey Beef Fish Pork Green Beans Broccoli Cali-flower Spinach Quinoa Potatoes Butternut Squash Rice Oranges Blueberries Melon Apples Lemons Plums Grapes Kiwi Tangerines lettuce    

 

When you get to the end of day 4, start over.  Hang the chart up in your kitchen, so that when you wake up, you and the rest of your family will know what day it is and what you can feed your baby.  I found that it was easier for me to start my rotation with the evening meal and that would allow me to eat items I cooked for dinner to be eat for leftovers for lunch!  This rotation will allow your baby's system to calm down.  As months go by you can introduce the foods that he was only mildly or moderately allergic to, but never consume them for several days.  Do not feed him the foods that he's most allergic to.  I am still allergic to milk, eggs, almonds, garlic and mushrooms.  I never outgrew them, but they have diminished in the capacity to make me ill.  Other foods like rice, pork, brewer's yeast.....the list is so long, I now eat, but I make sure I don't eat them daily.  

 

Within a year, I was much better (enough to do Triathalons).  Would even have a bit of ice cream, but only in the winter months when pollen and weed counts were low.  Your son may have allergic reactions to non-foods and those need to be addressed or minimized too.  Lucky for me, I got out of cleaning the bathroom for years for fear of mold!!!  Now I have to clean it but mold still bothers me when we have dry winds.  

 

Make sure your son has access to foods that are whole and full of fiber, but introduce those gradually.  If the four day rotation doesn't work, then stretch it out to seven days.   Cow's milk will constipate me while garlic will give me diarrhea -- totally different reactions!   My family pretty much followed the diet too and no one ever ate an ice cream or some other forbidden food in front of me.  Hubby and my daughter would go out for "treats".  Now, it doesn't other me, but it did in the beginning.  By the way, I felt great for 13 years until the Celiac Disease showed up probably due to stress and menopause!

 

Carry a little ice chest with food items when you leave home.  It's so handy!

 

Good luck!

 

 

 

 

cyclinglady Grand Master

Think of allergies as a "fire".  You need to calm down that fire and maybe, if your'e lucky, extinguish it.  I had I

gG testing done years ago.  Tested high for five foods, moderately for many others.  First thing is to eliminate completely all those items that were on the list.  Then divide up a list of foods that he can eat and divide them into four days (some docs suggest 7 days)

 

Here's a hurried example and you need to add more foods:

 

 

Day 1 Day 2 Day 3 Day 4 Turkey Beef Fish Pork Green Beans Broccoli Cali-flower Spinach Quinoa Potatoes Butternut Squash Rice Oranges Blueberries Melon Apples Lemons Plums Grapes Kiwi Tangerines lettuce    

 

When you get to the end of day 4, start over.  Hang the chart up in your kitchen, so that when you wake up, you and the rest of your family will know what day it is and what you can feed your baby.  I found that it was easier for me to start my rotation with the evening meal and that would allow me to eat items I cooked for dinner to be eat for leftovers for lunch!  This rotation will allow your baby's system to calm down.  As months go by you can introduce the foods that he was only mildly or moderately allergic to, but never consume them for several days.  Do not feed him the foods that he's most allergic to.  I am still allergic to milk, eggs, almonds, garlic and mushrooms.  I never outgrew them, but they have diminished in the capacity to make me ill.  Other foods like rice, pork, brewer's yeast.....the list is so long, I now eat, but I make sure I don't eat them daily.  

 

Within a year, I was much better (enough to do Triathalons).  Would even have a bit of ice cream, but only in the winter months when pollen and weed counts were low.  Your son may have allergic reactions to non-foods and those need to be addressed or minimized too.  Lucky for me, I got out of cleaning the bathroom for years for fear of mold!!!  Now I have to clean it but mold still bothers me when we have dry winds.  

 

Make sure your son has access to foods that are whole and full of fiber, but introduce those gradually.  If the four day rotation doesn't work, then stretch it out to seven days.   Cow's milk will constipate me while garlic will give me diarrhea -- totally different reactions!   My family pretty much followed the diet too and no one ever ate an ice cream or some other forbidden food in front of me.  Hubby and my daughter would go out for "treats".  Now, it doesn't other me, but it did in the beginning.  By the way, I felt great for 13 years until the Celiac Disease showed up probably due to stress and menopause!

 

Carry a little ice chest with food items when you leave home.  It's so handy!

 

Good luck!

Ugh!  My nice chart imported from Excel didn't take.  But I think you'll get the idea.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    Donna Shields
    Newest Member
    Donna Shields
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.