Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Had Diagnosed Dh That Resembles Acne On The Face/chest/back?


BelleVie

Recommended Posts

BelleVie Enthusiast

I'm wondering because the primary symptom that first started me on my explorations of health, nutrition, the body, and holistic wellness was a sudden outbreak of acne at age 19 that increasingly got worse and worse and worse as time went on.

 

I distinctly remember the whole thing beginning with my face becoming extremely oily, far more than what would be considered normal for anyone at any age. Then I got one VERY, very painful "pimple" at the edge of my eyebrow toward my nose. From that, came another...then another...and so on...and then, at age 19, I suddenly had full-blown acne, though I'd had perfectly clear skin for my entire life before. Over the years, it became more and more cystic, and my face took on a constant red flush. My face was also constantly itchy. 

 

I'm wondering if this could be at all related to DH, particularly because most of the time these breakouts were along my hairline, and if bothered, never came to a head. Only HURT or seeped a clear liquid. And the spots that were not along my hairline were on my cheeks, and were symmetrical on both sides of my face. (When I would have two spots on the left cheek, there would generally be two spots on my right cheek, exactly mirrored.) 

 

No acne creams worked, cutting dairy didn't work...nothing worked, for years, until I stopped eating gluten at age 24. My skin, quite remarkably, stopped breaking out immediately, and now is completely healed. 

 

Has anyone else had a similar experience, and could it be DH related? I seem to remember reading somewhere that auto-immune related acne tends to take on symmetrical patterning. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

There are many skin conditions related to celiac disease that resolve once gluten free. I can't answer your question as I never had an acne problem thankfully.

sisterlynr Explorer

Sorry, never had acne either.  My rash initially presented on my scalp and feet.  

  • 1 month later...
Atmn44 Newbie

I have actually, but I am extremely gluten sensitive now that I've been diagnosed and finally cut gluten out of my life. If I get cross-contamination at all now, we are talking huge patches of painful blisters and my face and entire scalp full of bleeding blisters. Up until the diagnosis I was getting what I thought was "strange acne" starting around my nose and mouth and sometimes my hairline. If I was stressed maybe my neck by my lymph glands. They hurt, they would ooze, they would NEVER heal. Within the first week of my gluten free diet they diminished with my scaly patches and the big blistery rashes I had. Now, they reappear every time I am exposed. After taking a closer look one day I realized they are actually more like isolated blisters than acne. I occasionally use a prescription antibiotic on my face. It has been helpful. (Accidental miracle :) )

I hope that helps a bit.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,714
    • Most Online (within 30 mins)
      7,748

    Ivys
    Newest Member
    Ivys
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.