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How Gluten Free Has Affected Your Life

happy-2b-me

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happy-2b-me Newbie
happy-2b-me
Posted

Hey people,

so I wanted to ask everyone what their journey with gluten-free has been like. Personally, I have been gluten-free since the age of 6 (1999, when celiac hadn't gone mainstream yet), due to a wheat allergy, so I've pretty much lived my whole life with it, and it's not really that big of a deal. My friends understand what I can and can't eat (most of the time) and I've become good at creating my own meals (since pre-made gluten-free can be EXPENSIVE). I'm in college, but I live at home. That comes with its own set of problems, right?  ;)   So, basically I'm wondering, 

 

1. Are you G sensitive, or Celiac?

2. What's your gluten-free story, has it been frustrating, easy, expensive, scary, funny...?

3. Do you think that being gluten-free make you unique, does it define you as an individual?

4. What do you think needs to happen in the gluten-free and non-gluten-free communities/industries to help us all out?

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bartfull Rising Star
bartfull
Posted

1) I am a self-diagnosed celiac based on family history and response to the diet.

 

2) It was frustrating and downright heartbreaking at first. Now that I've adjusted, it's a piece of (gluten-free) cake! :)

 

3) Being gluten-free is no different to me than having blue eyes or being tall. It doesn't define me, it's just part of living that I only think of when contemplating eating out.

 

4) Being that I live in a tiny and rather isolated town, my wish is that there were more gluten-free options locally. My local health food store carries some decent breads and some gluten-free sausages, pizza (Against the Grain - YUM!!) and a few desserts. The trouble is, a lot of the gluten-free foods contain soy or corn, both of which I am also intolerant to. If Against the Grain can make such delicious foods in a gluten-free, corn-free and soy-free facility, why don't others? Also, it is really hard to find vitamins and supplements that are free of all three.

 

It would be nice if more restaurants had truly gluten-free menus and educated their staffs on CC. But I'm not holding my breath. <_<

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
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      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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