Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newies Story So Far!


Serenity1366

Recommended Posts

Serenity1366 Newbie

Hello All,

I have been suffering over the last cough 6 years with bloating...I know I should have gone to the doctors then, but hey.   So 2 years ago, I cut out bread, and that stopped the migraines and diarrhea. But I replaced the bread with Weet-a-bix and milk for lunch at work. 

 

Ok, I know this was silly, knowing that cough cough years ago my doctor then, told me to cut out wheat and milk...but hey back in the 80's there was not much to eat (that is my excuse and I'm sticking to it). So I ate Rye bread; funny it didn't get better!  If only the internet was around.

So constipation and I have been great friends over the years. We've stuck together like glue, you could say.

 

Anyway, finally I could take no more!  So I started keeping a food diary for a week.  Cutting out gluten...or what I knew was gluten.  I would love to say it has been easy sailing with no hiccups.  But the Tesco Cottage Pie defeated me for 2 days, by exposing my ignorance at reading the back of the packet and the lack of  gluten-free food in the small Tesco’s Express, I grubbed at it. Then, there was the MayonnaiseL.  I am now wiser with a happier tummy, only because I have been accosting people at the gluten-free shelves in Sainsburys and Tescos. And bombarding them with questions.

 

Last Tuesday, I arrive at the doctors with my food diary, sick record from work and list of symptoms to show the doctor.  Ready to do battle to get him to read my food diary or fall at his feet and beg him not to ask me to eat gluten so he can run blood tests. 

 

He just looked at me and asked why I had left it so long. And started writing a list of foods I could eat.  I was a bit shocked with the milk and oats (yeah I know I should not have been, but I was), didn’t really understand about potatoes and white rice being taken out of my diet. But by the power of Google it’s something to do with the body seeing it as gluten sometimes.

 

The real reason I have joined you fair folk is to stop feeling so isolated and confused.  I have had a really bad time since I have given up gluten.  Tummy is great, but I have a bad head, feel totally weak, hands are swelling up in the night, a bit dizzy and yawning my head off. Same foggy head, so no change there. I am so tired I am not been going to work. Is these symptoms normal?

 

I revisited my doctor this week who sent me for blood tests (Thyroid, Ferritin, Liver and Kidney and few other things), I am now waiting for the results.  He has suggested we speak about me returning to gluten for 5 weeks, so I can be tested for Coeliac. I am still unsure what to do.

 

 

 

Thank you for reading my story.

Serenity1366


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Hello All,

I have been suffering over the last cough 6 years with bloating...I know I should have gone to the doctors then, but hey.   So 2 years ago, I cut out bread, and that stopped the migraines and diarrhea. But I replaced the bread with Weet-a-bix and milk for lunch at work. 

 

Ok, I know this was silly, knowing that cough cough years ago my doctor then, told me to cut out wheat and milk...but hey back in the 80's there was not much to eat (that is my excuse and I'm sticking to it). So I ate Rye bread; funny it didn't get better!  If only the internet was around.

 

 

You might want to have the doctor check that cough!   :D

 

Potatoes and rice and milk and gluten-free oats are safe for Celiacs.  However, some people can't digest milk until they heal.  Some people, with or without Celiac, can't digest milk (lactose intolerance).  Oats must be labeled gluten-free and even then a few Celiacs have issues with them.  It is usually recommended that you wait 6 moths to a year before trying them.

nvsmom Community Regular

Welcome to the board.  :)

 

I hope you continue to feel better on the gluten-free diet. Let us know how your tests go.

GottaSki Mentor

Welcome Serenity :)

Serenity1366 Newbie

cough cough :lol:  will do.

 

Just another question...I woke up this morning with joint pain in all my joints and swollen fingers, they normally swell up a bit at night when I sleep and I have to take off my wedding ring as I wake up in pain. But with the weight I have lost over the last few weeks it is very loose during the day time.  Question - is this normal after coming off gluten?  

 

I must said there is some weird stuff going on with my body at the moment. :blink:  

I will miss the hair falling out :(  (I have very thick hair),  but I will not miss the self inflatable tummy :wacko:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    Donna Shields
    Newest Member
    Donna Shields
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.