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Anyone Having Problems At Work?


jhol

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jhol Enthusiast

hi,

 

didnt know where to put this thread- so hope its in the right one!.

 

im having big problems at work. disciplinary,s because im not " performing"

 

the thing is out of all the testing ive had done everything has been negative. not celiac, no allergies, no lupus. im at the end of my tether , what can i say to that?. ive got no comeback as to why i cant think straight and my heads in a mess.

 

the only thing thats been found is vitamin b12 deficiency - level was 138. im stressed out enough without all this added stress.

 

has anyone else had this problem, if so how have you dealt with it?

 

 

 


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BelleVie Enthusiast

Yes. I have not been called out directly (yet) but I can tell that my employers are getting frustrated with my less than stellar performance some days. I just keep getting hit by something, so I'll have one GREAT day, and then one so/so, and then two or three where I'm walking through molasses tired, or I have a migraine, or I'm extremely down and emotional. 

 

I'm so sorry you have to deal with this. One of the greatest difficulties I've had as I've become a "grown up" (heh, I'm 25, so I only count partially thus far)  :D is having to force my body to do something (like going in to work) when I'm physically ill. It's terrible, and it's something that I really struggle with in our society. I think that if you are ill...you should be permitted to heal. :( 

 

How open is your employer to your explanations concerning your health? You don't have to be diagnosed for gluten to be making you really sick. You could be NCGI. Could you share some information about that with your employer? Are there little short cuts that you can take to make your workload easier on yourself? I think it was IrishHeart who wrote that when she gets glutened, she makes lists of things she needs to do, which help to create focus while in the grip of a foggy brain. 

 

I hope you find a solution soon, and that your employer is understanding. 

jhol Enthusiast

thanks for your reply

 

my employer is absolutely not understanding. i go in for the results of the disciplinary on friday. i do have the union to help and ive got an appointment with the doc,s. i was thinking of asking her if she could write a letter explaining whats going on. not sure if it would help though  :mellow:

Chrisz1000 Newbie

My employer is more understanding than yours, but yes I have experienced the same thing whilst at work; the fatigue, the inability to think straight, unable to make conversation and an overwhelming feeling of not wanting to do much. This is on top of good old STRESS.

 

I too have tested negative on all of the tests, left it too late to do a gluten challenge for biopsy so I will never know whether I am full blown celiac or a NGCI sufferer. So I couldn't say I have xyz disease so treat me accordingly.

 

What I did do though, was explain to my employer how I USED to be before I got ill. And I described to them the effect of what is happening to me NOW. I described the challenges that the medical community has in diagnosing this thing and that, if I really wanted to do a Gluten Challenge, it would mean at least 6 weeks off work extremely ill. They took it seriously thankfully, I was in my 6 month probation period so I would have been screwed if they didn't take it seriously.  

 

5 months later and I am much better, and my employer has seen the improvment. I too had B12 deficiency, I tackled that one with Lacto-Free milk (full of natural, liquid B12) and digestive enzymes.  in time, you will pull through. Hope you can win them round. Maybe get your Doc to write a letter.

ravenwoodglass Mentor

Do get some sublingual B12 as that will help bring those levels up and help with the fatigue as well as your nervous system. I found it helpful even before diagnosis.

My last job was hell on earth for me as far as Celiac goes. I wasn't allowed to use a rest room if there was anyone in the store despite the fact that there were two others registars and no reason why a manager couldn't hop on one to check someone out if I was the only cashier on duty. I was told the main office wouldn't allow it. I suspect it was more they were too lazy to count it in. One manager even walked up to customers one day and asked how long they would be shopping because I needed to use a rest room. Extremely embarrassing. My solution was quietly start looking to find another job. Wasn't easy but I now have a job where my health issues are easier to deal with.  Should I have reported them to OSHA, probably but I was just glad to be out of there.

eers03 Explorer

Yes but it's not gluten related.  In fact, I don't know which is better for my health, my manager or wheat bread. Ha!

shakay Newbie

I'm having this problem. I was diagnosed with Celiac disease 3 months ago and I'm not feeling any better. I work a very physical job and struggle to get through each day because of fatigue and joint and muscle pain I asked today if I could use 2 of my vacation days next week and they said no.I've been in tears all day and still am because I do so much around there and the one time I ask for something they tell me no.


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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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