Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Having Problems At Work?


jhol

Recommended Posts

jhol Enthusiast

hi,

 

didnt know where to put this thread- so hope its in the right one!.

 

im having big problems at work. disciplinary,s because im not " performing"

 

the thing is out of all the testing ive had done everything has been negative. not celiac, no allergies, no lupus. im at the end of my tether , what can i say to that?. ive got no comeback as to why i cant think straight and my heads in a mess.

 

the only thing thats been found is vitamin b12 deficiency - level was 138. im stressed out enough without all this added stress.

 

has anyone else had this problem, if so how have you dealt with it?

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BelleVie Enthusiast

Yes. I have not been called out directly (yet) but I can tell that my employers are getting frustrated with my less than stellar performance some days. I just keep getting hit by something, so I'll have one GREAT day, and then one so/so, and then two or three where I'm walking through molasses tired, or I have a migraine, or I'm extremely down and emotional. 

 

I'm so sorry you have to deal with this. One of the greatest difficulties I've had as I've become a "grown up" (heh, I'm 25, so I only count partially thus far)  :D is having to force my body to do something (like going in to work) when I'm physically ill. It's terrible, and it's something that I really struggle with in our society. I think that if you are ill...you should be permitted to heal. :( 

 

How open is your employer to your explanations concerning your health? You don't have to be diagnosed for gluten to be making you really sick. You could be NCGI. Could you share some information about that with your employer? Are there little short cuts that you can take to make your workload easier on yourself? I think it was IrishHeart who wrote that when she gets glutened, she makes lists of things she needs to do, which help to create focus while in the grip of a foggy brain. 

 

I hope you find a solution soon, and that your employer is understanding. 

jhol Enthusiast

thanks for your reply

 

my employer is absolutely not understanding. i go in for the results of the disciplinary on friday. i do have the union to help and ive got an appointment with the doc,s. i was thinking of asking her if she could write a letter explaining whats going on. not sure if it would help though  :mellow:

Chrisz1000 Newbie

My employer is more understanding than yours, but yes I have experienced the same thing whilst at work; the fatigue, the inability to think straight, unable to make conversation and an overwhelming feeling of not wanting to do much. This is on top of good old STRESS.

 

I too have tested negative on all of the tests, left it too late to do a gluten challenge for biopsy so I will never know whether I am full blown celiac or a NGCI sufferer. So I couldn't say I have xyz disease so treat me accordingly.

 

What I did do though, was explain to my employer how I USED to be before I got ill. And I described to them the effect of what is happening to me NOW. I described the challenges that the medical community has in diagnosing this thing and that, if I really wanted to do a Gluten Challenge, it would mean at least 6 weeks off work extremely ill. They took it seriously thankfully, I was in my 6 month probation period so I would have been screwed if they didn't take it seriously.  

 

5 months later and I am much better, and my employer has seen the improvment. I too had B12 deficiency, I tackled that one with Lacto-Free milk (full of natural, liquid B12) and digestive enzymes.  in time, you will pull through. Hope you can win them round. Maybe get your Doc to write a letter.

ravenwoodglass Mentor

Do get some sublingual B12 as that will help bring those levels up and help with the fatigue as well as your nervous system. I found it helpful even before diagnosis.

My last job was hell on earth for me as far as Celiac goes. I wasn't allowed to use a rest room if there was anyone in the store despite the fact that there were two others registars and no reason why a manager couldn't hop on one to check someone out if I was the only cashier on duty. I was told the main office wouldn't allow it. I suspect it was more they were too lazy to count it in. One manager even walked up to customers one day and asked how long they would be shopping because I needed to use a rest room. Extremely embarrassing. My solution was quietly start looking to find another job. Wasn't easy but I now have a job where my health issues are easier to deal with.  Should I have reported them to OSHA, probably but I was just glad to be out of there.

eers03 Explorer

Yes but it's not gluten related.  In fact, I don't know which is better for my health, my manager or wheat bread. Ha!

shakay Newbie

I'm having this problem. I was diagnosed with Celiac disease 3 months ago and I'm not feeling any better. I work a very physical job and struggle to get through each day because of fatigue and joint and muscle pain I asked today if I could use 2 of my vacation days next week and they said no.I've been in tears all day and still am because I do so much around there and the one time I ask for something they tell me no.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,110
    • Most Online (within 30 mins)
      7,748

    JD Payton
    Newest Member
    JD Payton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.