Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advise On Range Of Symptoms


CR5442

Recommended Posts

CR5442 Contributor

Hi all, this is about my Dad, not me.  I am not biopsy diagnosed but have Celiac (ataxia, stomach problems, migraines, weight loss etc when eating gluten - worse after two years avoidance).  My Dad has been admitted to hospital with severe prostatitis, liver stones, kidney stones, renal failure and bleeding gut (alternating const/diarr).  Does anyone recognise these as celiac symptoms?  He also has MS, and has had digestive problems his entire life...particularly in adulthood.  Any advise on what to ask the doctors?  He is very stubborn and proud and wants to do everything himself but I'm sure he'll think the celiac connection is lala unless I can come up with some peer reviewed medical articles to show him.  He has been treated shockingly by his GP surgery and I think is honestly expecting to die some time soon. Any help will be welcome.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Hi Caroline.  I'm so very sorry to hear about your Dad.  I will pray for him.

 

As far as your questions are concerned.   The prostatitis, if bacterial should be able to be cleared up, if not bacterial then I don't know.  The renal failure does have a connection to celiac.  Here is the information about that. Open Original Shared Link. Since the stones and the bleeding gut are also digestive issues they may have a connection but I'm not personally aware of it.  

 

I do think it is worth mentioning it to the doctor even if not to your Dad.  I do hope they can get him stable.   Don't hesitate to ask more questions if you would like.  We are not doctors here but we have a wealth of experience.

 

All the best to you and your Dad.

 

Colleen 

CR5442 Contributor

Thanks so much Colleen.  I haven't had a chance to talk to the doctors as visiting is out of daylight hours.  He is now out of hospital so that his kidneys can recover enough for them to do the barium meal contrast scan... but he is still very poorly.  I'll see if I can mention to his wife this weekend about the celiac.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,315
    • Most Online (within 30 mins)
      7,748

    Steffieg
    Newest Member
    Steffieg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Canker sores can definitely be frustrating, especially when you're already managing a strict gluten-free lifestyle and have been diagnosed with celiac disease for so long. While these painful mouth ulcers aren’t exclusive to celiac disease, they can be linked to nutritional deficiencies—particularly of iron, folate, or vitamin B12 (as @trents mentioned )—which are common in people with celiac, even those who are very careful with their diet. Ongoing fatigue and aches might also suggest that your body isn’t fully absorbing nutrients or that there’s some underlying inflammation. It could be helpful to get bloodwork done to check for these deficiencies, and possibly even a full nutritional panel. Sometimes, new sensitivities or hidden sources of gluten or additives like sodium lauryl sulfate (common in toothpaste) can trigger symptoms like canker sores too. Since your reactions are so severe and you're highly vigilant, it might also be worth considering whether any other autoimmune conditions could be involved, as they can develop over time and overlap with celiac. Consulting with your doctor or a celiac-informed dietitian may help pinpoint the cause and bring relief.
    • knitty kitty
      @Dora77, You shouldn't worry about getting glutened through your skin.  You would have to touch a gluten infested doorknob and then put your hand in your mouth.   I'd be more concerned with your mom's heating up gluten bread in the oven and boiling gluten noodles.  These methods cause particles of gluten to become airborne which would then enter your nose and be swallowed, going into your digestive tract.  I have to avoid the bakery aisle at the grocery store for this reason.  An M95 mask helps. If you get nutritional deficiencies corrected, your immune system will calm down and be less reactive to gluten expose.  Vitamin D helps regulate the immune system.  Thiamine and Niacin help make digestive enzymes which would help digest any accidental gluten exposure.  Thiamine helps Mast cells not to release histamine, an inflammatory agent released as part of the reaction to gluten, and also a neurotransmitter that causes alertness and anxiety, and the flight or fight response.  Pyridoxine will help improve the OCD.  Remember your brain is part of the body.  Vitamin deficiencies affect your brain and mental health as well as the rest of your body.  
    • Jacki Espo
      I do not have evidence other than anecdotal but I am certain when I have gotten these it's the result of eating gluten (back when I did).  I don't get them now that I don't eat gluten. 
    • Dora77
      What really bothers me is if worrying about getting cc‘d from touching the same door knob as others touched is valid. Seems like an extremely unlikely way to get glutened but i read people saying that.    If thats true then theres realistically zero chance i dont get cc‘d in a non gluten-free household unless i Cook Everything myself and wash my hands multiple times in between and store all of my stuff separately
    • trents
      Welcome to the forum, @Mrs. Cedrone! Among the various causes for canker sores, are "Nutritional problems like too little vitamin B12, zinc, folic acid, or iron" https://www.webmd.com/oral-health/canker-sores Could you be deficient on something?
×
×
  • Create New...