Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Advise On Range Of Symptoms

3 posts in this topic

Hi all, this is about my Dad, not me.  I am not biopsy diagnosed but have Celiac (ataxia, stomach problems, migraines, weight loss etc when eating gluten - worse after two years avoidance).  My Dad has been admitted to hospital with severe prostatitis, liver stones, kidney stones, renal failure and bleeding gut (alternating const/diarr).  Does anyone recognise these as celiac symptoms?  He also has MS, and has had digestive problems his entire life...particularly in adulthood.  Any advise on what to ask the doctors?  He is very stubborn and proud and wants to do everything himself but I'm sure he'll think the celiac connection is lala unless I can come up with some peer reviewed medical articles to show him.  He has been treated shockingly by his GP surgery and I think is honestly expecting to die some time soon. Any help will be welcome.


Share this post

Link to post
Share on other sites

Ads by Google:

Hi Caroline.  I'm so very sorry to hear about your Dad.  I will pray for him.


As far as your questions are concerned.   The prostatitis, if bacterial should be able to be cleared up, if not bacterial then I don't know.  The renal failure does have a connection to celiac.  Here is the information about that. Since the stones and the bleeding gut are also digestive issues they may have a connection but I'm not personally aware of it.  


I do think it is worth mentioning it to the doctor even if not to your Dad.  I do hope they can get him stable.   Don't hesitate to ask more questions if you would like.  We are not doctors here but we have a wealth of experience.


All the best to you and your Dad.




Share this post

Link to post
Share on other sites

Thanks so much Colleen.  I haven't had a chance to talk to the doctors as visiting is out of daylight hours.  He is now out of hospital so that his kidneys can recover enough for them to do the barium meal contrast scan... but he is still very poorly.  I'll see if I can mention to his wife this weekend about the celiac.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Acne are not itchy or only mildly itchy and they look like red bumps with or without white centers. The bumps are quite separated from each other. What did you start to eat after going gluten-free? More fruits and sugary foods? This can trigger acne. Dermatitis herpetiformis can be very itchy and the bumps are more close together and they tend to crust over.  
    • What about Xanthan gum?  It really bothers me, so I avoid most commercially processed gluten-free breads, etc.  Never bothers my hubby though.  
    • I use to get them before I went gluten-free.  I stopped eating oats because it also does give me canker sores and causes my toes to get cracked underneath.  
    • I had quite a few of the medical problems that you have before I figured out that gluten was the problem. I can’t do basic math or writing when I eat gluten also I get depressed, irritable, low energy, etc. The best route to go is to do an elimination diet and monitor how certain foods affect you. I eliminated MSG (Monosodium Glutamate), Nitrite, and oat based on the reactions that I get once I consume them. You must be disciplined on a gluten free diet, there is not such a thing as –It is just one cookie! If you can manage to go 100% gluten-free for three weeks and you see those problems going away, you will have a good idea if that is the cause of your problems. The blood test I did after being gluten-free for two years came back negative so the doctor just make me feel that I was crazy and making things up. I have a stool test done which came back with elevated igA also a gene test indicating I have two genes that code for gluten sensitivity. My lactose intolerance went away too, eating a lot of cheese now. Rash in arms? gone, Brown spots in teeth? Gone, Intestinal noises? Gone, Lack of bladder control? Gone, Constipation? Gone, and a lot others.   
    • Oh you're most welcome!  Another thing --- no steroids, oral or injected for 2 months prior to a dh biopsy. Lay off any topical steroid creams for 2 weeks prior. Really, stand your ground with them. It would also be great if you can get a friend or family member to go with you in case they take the biopsy from somewhere that you can't see such as the back of your neck. Your friend/family member can watch to make sure they don't take it directly ON a lesion. Do you have a primary care doc? You can also go to that doc & ask for a full celiac panel PLUS an eTG or TG3. 60% of people with dh test negative on the celiac blood panel but maybe you're one of the 40% who will test positive. It's worth a shot.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member