Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying To Figure Out What's Wrong With Me

herman81

Recommended Posts

herman81 Newbie
herman81
Posted

Starting about three months ago, I've had diarrhea almost daily. Sometimes every day. I get horrible lower cramps before each episode. Sometimes I even get the cramping before doing a normal bowel movement. I went gluten free, and paleo, for a few months and I felt great. But this was before all of my symptoms started. As soon as I stopped the diet, which was almost immediately, I went back to eating whatever I wanted. This is when I started getting the horrible diarrhea.

 

Is there a gold standard test that I could ask for from my GI doctor? I also have bleeding sometimes . I believe that's due to some hemorrhoids that I was diagnosed with a few years ago. Not sure if I should get another colonsoscopy because of the bleeding, or not. Just wish I knew what was going on. I'm scared for my health. It's so uncomfortable. Any suggestions? Does this sound like a wheat allergy?

 

Thanks,

C.A.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


herman81 Newbie
herman81
Posted
  • Author

OH, I also have Hashimoto's Thyroiditis and GERD.

GF Lover Rising Star
GF Lover
Posted

Hi Herman.

 

If you wish to get tested for Celiac, this link will provide the information of the tests that are needed for diagnosis.

 

Open Original Shared Link

 

This is usually followed up with an endoscope procedure to look for damage.  Your doctor can also test you for a wheat allergy.

 

It is impossible to know if your symptoms are related to gluten ingestion or a wheat allergy without further testing.

 

Colleen

w8in4dave Community Regular
w8in4dave
Posted

Yes it sounds like Celiac to me. But going on Gluten for weeks and being tested would be the best thing. Good luck to you!! 

IrishHeart Veteran
IrishHeart
Posted

First of all, any number of health problems (and medications and viruses and food intolerances) will cause diarrhea and GERD, so I would not leap to celiac right away, Herman.

 

Celiac is NOT a wheat allergy.

Celiac is an autoimmune disease of the small intestine that can cause a myriad of

 symptoms and it is diagnosed by blood tests and/or endoscopy with a biopsy.

 

A colonoscopy examines the large intestine. 

It  is not used to diagnose celiac.

or a wheat allergy (those tests are done by an allergist and have nothing to do with celiac disease)

 

You could have diarrhea and hemorrhoids because of any number of reasons.

While thyroid disease and GERD are associated with gluten intolerance and celiac, they are not necessarily an indicator of celiac.

(I know many people --some in my family--with thyroid disease and/or GERD

 and they are not celiacs)

 

Start from the beginning and do as Colleen suggests, have a celiac panel done.

herman81 Newbie
herman81
Posted
  • Author

Thank you everyone for taking the time to respond. I'll get the proper testing done and go from there. Although I know that I've some type of celiac panels done a few yrs ago. They were negetive. Whatever is going on is really putting a damper on my life right now. Very hard. Thanks again.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    2. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    3. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    4. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
    5. cristiana
      - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott. Have manufacturers ever said why that should be the case?
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,436
    • Most Online (within 30 mins)
      7,748
    Vivien Armstrong
    Newest Member
    Vivien Armstrong
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.