Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Like A Hypochondriac


jvdb

Recommended Posts

jvdb Rookie

Does anyone else feel like they are driving themselves crazy trying to figure out what causes their stomach issues?  At first I thought my issue was just chocolate milk and ice cream since I ate dairy on a regular basis and those two were the only ones that caused immediate symptoms.  I still often got chronic and urgent diarrhea but didn't connect it to dairy since I probably had milk products at least three times a day and grew up in a house where we had a glass of milk with every meal.

 

Fast forward to this year and I decided I was sick of being sick so I decided to try cutting ALL dairy, my issues improved immediatly.  No more unexplainable running to the washroom, no more sitting in the washroom with my stomach spasming uncontrollably...  I've found the problem I thought.  But realized although my symptoms were 80% better I still was experiencing loose stools 3-4 times a week, and major bloating.  My sister suggested getting tested for celiac and at first I thought she was crazy until I looked it up and read the connections with lactose intolerance and celiac.  We do have two cousins who have been diagnosed so it wasn't a long shot.  After looking at celiac symptoms I also realized that perhaps this was the solution to my adult acne, fatigue, and daily mild headaches.  It HAD to be celiac, well the test ended up being normal.

 

Now a friend who HAS celiac (blood test diagnosed) has told me to try going gluten free anyways and perhaps I still do have issues with it.  I'm tempted to try this however I am starting to feel like a major hypochondriac.  Although milk definitely doesn't agree with me, maybe the rest is all in my head?  My husband thinks I am overreacting and yet gets annoyed with me that I am tired all the time even though I sleep a solid 8 hours every night.  And WHY do I have acne at 25 years old when I eat NO processed foods, why does my stomach look great in the morning and then pregnant by evening?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WinterSong Community Regular

It's worth a try. I know a lot of people who feel better when they go gluten free (even without having Celiac). Non-Celiac gluten intolerance is not a rare thing these days. 

 

I went dairy free for the first few months of my Celiac diagnosis. It turns out that I can eat dairy just fine these days. But it didn't hurt to try.

 

Just make sure that if you try it, you do it 100%, otherwise what's the point?

 

Also, people who haven't dealt with constant stomach aches, cramping and bloating for years have no idea what that feels like. My (now ex) boyfriend didn't understand why I was so eager to figure out what was wrong with me. He was in complete denial that I was sick. (Meanwhile, I was thinking, "Well, it's not like I invite you into the bathroom to share that experience..."  :wacko: )

  • 2 months later...
ktylizbth Newbie

I would do a food log and note your bowel movements as well as other symptoms. Have several days without gluten. Then have a day with gluten and then note your stools. Take gluten out, take it back, take it out....Then maybe you might be able to see more of a connection. It'd be curious to do some type of elimination reintroduction diet to see what could be causing your bloating and loose stools. I would also consider getting allergy IgG and IgE testing if you can. 

1desperateladysaved Proficient

I remember being asked when the baby was due.  It isn't normal for a belly to stick out like that.  My issue was celiac and for years I thought I was lazy or hypochondriac, or it was all in my head.  IT WASN'T.  I would do all I could to find out if I could do it again.  In the end I  just decided that people could think "ill" of me if need be, because I couldn't keep living and dragging through life.  I want the same for you, answers to your questions, and the ability to make a difference.

 

Were you eating gluten when you had a celiac panel done.  Did you have a full panel done.  Have you ever checked your nutrient levels?

 

D

Rhonlynn Newbie

I found this forum looking up gluten intolerance. I'm 51 and was born with allergies. Here's my allergy list:

Milk (I can tolerate it in baked items, and most cheeses. But too much ice cream, or milk will give me an asthma attack. I was born this way.)

Eggs,

chocolate (I am able to eat cacao.),

some nuts (cashews must be soaked hours before I use them with cashew cheese recipes then there's no problem.)

Casein in milk gives me an awful migraine. It's been this way for years, getting a migraine after certain dairy products. I finally got tired of it, and thought, "milk protein." yep....

 

Then seasonal allergies.

 

I have eczema, which bugs me and I've had it all my life, on my outter arms near my elbows.

 

So I began working out doing P90X. I followed the diet in the book, and gained weight. I felt sluggish, depressed. I ended up hurting my shoulder so I stopped. I felt like a slug by then. I noticed something I've always done. I would get a rash, about the size of a small egg. I would itch it until the middle blistered in the center, it remained mild but embarrassing.. While reading up on milk allergies, gluten intolerance came up. I thought, why not? So I took myself off of wheat in general. That's not an issue, I have thousands of no cook food recipes, or grain free.

 

In the past 2 weeks, I feel lighter. It's winter, so I can't say about my skin yet. But I get up early, and stay up later. and my face is changing. I feel happier, and not like a slug...my scales died on me, so I have no idea how much I weigh.

 

I'm not one to go to a doctor very much, I'm a nurse. But sometimes, I felt like a hypochondriac, until I found this forum. 

 

Juliebove Rising Star

You might possibly have what my daughter has been going through.  Have they ever taken an X Ray of your stomach and the surrounding area?  She and I do both have multiple food intolerances, but...  She also suffers from severe constipation.  So much so that the last X Ray showed over 4 feet of impacted crud inside of her.  She was very bloated, in pain and had clusters of pimples on top of clusters of pimples.  I surmised that the constipation made her somehow toxic.

 

The Dr. told her she will need to take Miralax daily for the rest of her life.  Said she just has slow digestion although not quite what I have which is gastroparesis.  Said it is genetic and there really isn't anything she can do about it except to drink extra water and take the Miralax.  It took her a full week to clear it all out. After the second dose of Miralax, her face totally cleared up.  And she was pooping some that wasn't big D but not much.  Until a week later where she had to sit on the toilet for a full hour and a half.

 

The Dr. said that what happened was that she was so stuffed full and impacted that the only thing that could pass through was liquid.  Hence what appeared to be big D.  Not quite the same though.

 

Of course I can't say for sure if that is the case with you but from what I have read about the Miralax it seems perfectly safe to take so you might try it for a week and see if it makes a difference.

 

But I understand feeling like a hypochondriac.  My reactions to foods are often quite delayed and I can't always tell what is causing my symptoms.  But testing showed odd things like mint, cloves, thyme, lovage and other things.  Only after I stopped them did I see the problems they were causing me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

    3. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Healthy Gluten Free Foods low sugar that you found?

    4. - Scott Adams replied to lizzie42's topic in Traveling with Celiac Disease
      1

      Trip to Anaheim/Disney

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,242
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
    • Scott Adams
      This article is a few of years old, but my still be helpful.  
    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.