Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleep


joshy

Recommended Posts

joshy Newbie

Has anyone else started having trouble sleeping?  month free of gluten and still havnt had a decent sleep yet since it started   eyes always feel heavy, if i look at something for to long i just started to day dream and have trouble concentrating   does anyone else have these problems and found any way to make it better? 

  • 4 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NayRPM Newbie

I use to always be tired. My boyfirend called it "being horizontal" because as soon as I sat down I fell asleep, especially if I needed to be visually focused on something that had minimal mental engagement. Movies were a joke. This was particularly difficult when I needed to meet deadlines for papers, my MA degree was obtained by me standing to read articles and write. Once going gluten free I was amazed by how much better I felt, and that I did not have to fight to stay awake while driving. However, even the smallest amount of gluten and I am right back to exhaustion, to the point that my eyes cross when trying to focus on driving. I also realized that soy lecithin and fructose caused this same reaction without the nausea. From what I have gathered, until the gut heals, we may be sensitive to certain foods that can cause gluten-like symptoms. This depends on how they are digested, one in particular being lactose because it is digested by the end of the villi which are damaged from gluten. I figured out my other allergies or triggers by taking data on when I felt the symptoms and cross comparing ingredients. I have found that I am only sensitive to these when I have been glutened. After a week or so, depending on how bad the glutening was, I will no longer have symptoms to soy lecithin and fructose. You may just need to cut back to a very simple diet until you have healed and then hopefully you will not have the symptoms. 

NayRPM Newbie

In fact, here is an article that i found extremely helpful to explain why I was getting sick despite being what I thought was gluten free. Reading posts by people who had been gluten free for a while made me super depressed because I thought I was doomed to be super sensitive forever, but reading some of these articles helped me understand. 

 

Open Original Shared Link

Open Original Shared Link

 

I hope this helps. It may also be something else driving the sleep issues, particularly anxiety. My sleep issues were always worse when I was anxious and I could actually predict when I would sleep walk instead of just sleep talk. If a diet change does not help I would try to see what other factors it may be. I am a researcher so I love keeping data and it really helped me to find patterns that I otherwise may not have realized, but find what works for you. A food journal including symptoms and other important factors (stress, exercise, etc.) may work wonders. 

GottaSki Mentor

This member hasn't been back since they started their account in November.  While Joshy may not repond - others may be interested in the information you have added.

 

When I flare we say I'm horizontal and when I improve I am vertical again -- presents a very clear visual description to family and friends.

 

Certified Gluten Free foods are safe for most people with celiac -- I can't eat them, it is not because of the microscopic amount of gluten they may contain - I have multiple other food intolerances which makes it extremely difficult to eat any processed foods.  I strongly suggest anyone newly diagnosed keep the processed foods - labeled gluten-free or not to a minimum and if possible only eat those with a few ingredients as it can be very tough to know what is bothering you on a ingredient list filled with artificial and chemical ingredients.

 

Welcome to the forum Nay :)

CaliSparrow Collaborator

I could actually predict when I would sleep walk instead of just sleep talk.

Thank you for the post. I just realized my lifelong issue with sleep talking/walking disappeared. *woot*! It makes me wonder if my college roomie has gluten issues. She's 4'10". Our dorm room neighbors told us we'd regularly talk all night long! Sleep gossip ;)

In Biology, I remember my head bobbing and on one occasion, holding my eyelids open. That was not pleasant.

Anyway, I definitely go "horizontal" when my body is reacting and my anxiety increases. My adrenals were put through the ringer so sleep is impacted doubly when my body is in fight mode.

I keep processed foods to just once in a while. In the beginning, I ate a lot of gluten-free food. After going gluten-free, I was completely unprepared for what came next. Being underweight, exhausted, confused, out of my mind and hungry, I ate processed gluten-free food as a transition to get calories in. My aunt told me not to eat that stuff but I was hungry! After figuring out to eat whole foods, it became clear I was on a better track. I am also intolerant of a lot of other foods and don't have the gut for chemicals probably because it all just went on too long.

In '06, we took a trip to a health resort to recover me from an unexplained 2-month stomach illness (hmmm). The place grew their food organically on their land and bought fish from the local fishermen. The before and after pictures are unbelievable. I went from looking ill to the prime of my life (in a week!). I'm guessing I was temporarily gluten-free as the only tortillas they had were corn. I ended up falling ill again after returning home and the saga continued for six more years. I think the sooner this is caught, the better.

Anxiety can give me symptoms and gluten gives me anxiety. It goes both ways for me. The longer I can sleep at night, the stronger I feel the next day.

Welcome Nay :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Clear2me replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Gluten free nuts

    2. - RMJ replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Going for upper endoscopy today

    3. - Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
      13

      Top Brands of Gluten-Free Canned Chili

    4. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Going for upper endoscopy today

    5. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,272
    • Most Online (within 30 mins)
      7,748

    SLowe
    Newest Member
    SLowe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Clear2me
      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
    • RMJ
      I’m glad you have a clear answer.  Some endoscopes have enough magnification for the doctor to see the damage during the procedure.
    • Scott Adams
      Welcome to the club!😉 This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      I could not find the thread, but I recall at least one user who was drinking regular gluten beer daily but getting celiac blood tests done often (I think it was monthly) and doing a biopsy each year and all celiac disease tests were always negative. Everyone is different, but in general regular beer would be considered low gluten (not gluten-free!). I have no issues with Daura Damm, but those who are super sensitive might.
    • Aretaeus Cappadocia
      Azure Standard (https://www.azurestandard.com/) is one of my gluten-free vendors. I've purchased nuts, "grains", flours, and many other products there. If you are not familiar with Azure, you have to set up an account (no cost) and get your purchases either via shipping (expensive) or "drop" (free if you buy a reasonable minimum). Search their website for a drop location in your area. Each drop location has a local volunteer(?) coordinator who coordinates with the local customers. I go to a drop 4-5 miles from my home that delivers every 2 weeks. We seem to range from 8-18 customers at a given delivery. The downside of the drop is that you have to be there when they say. They give you a few days notice of the precise time, though, and they are punctual. Their pricing relative to other vendors for various products ranges from best price to overpriced, so you have to shop and compare. Quality is mostly good but once in a while you get a dud - however they've been very responsive to giving me a credit on the few occasions when I've complained. In my opinion, they are not as transparent about gluten as they could be. Some products are labeled "gluten free" and so far I trust that. Many products are labeled "Azure Market products are re-packaged by Azure for your convenience in a facility that meets Food Safety Modernization Act (FSMA) standards, including an approved allergen control program." I've corresponded with them over this and they all but say this means gluten free. I've come to trust this, with a little nervousness, but I wish they would be more explicit. They also sell a lot of gluten-containing products. Frankly, I think they are overlooking a business opportunity to become a trusted source for the gluten-free community by not being more clear about gluten. Among Azure products I've purchased are "Walnuts, Baker's Pieces, Raw", "Cashews, Raw, Large White Pieces, Organic" and "Missouri Northern Pecan Grower Pecans Fancy Native, Raw, Halves". The walnuts and cashews were very good and the pecans were fabulous. For almonds, I've been buying Blue Diamond unsalted when they go on sale (mostly from Safeway). The salted ones are probably fine too but the flavored ones I avoid now that I am gluten-free. I also buy products including nuts from CostCo (cashews, shelled pistachios). Their nuts usually contain a "made in a facility that processes wheat" statement, which is scary. I've contacted customer service about various Kirkland products and they will usually give you a response <<for a specific lot>> whether it really was made in a wheat facility (sometimes yes sometimes no). For the "Kirkland Signature Fancy Whole Cashews, Unsalted, 40 oz" and "Kirkland Signature Shelled Pistachios, Roasted & Salted, 1.5 lbs", I got a "safe" answer and I ate them. I got an "unsafe" answer once for "Kirkland Signature Fancy Whole Cashews with Sea Salt, 2.5 lbs" and "Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs" and I don't look at these anymore. Again, these answers were given for specific lots only. They will accept an unopened return for cash if you find out you don't want it. Costco also sells "Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs" that are labeled gluten free. My celiac kid eats them all the time. I pretty much only eat food that I prepare myself from scratch. My celiac symptoms are not that overt, so I can't say for certain I could identify a glutening. However, my antibody levels dropped 25 fold (into normal range) since my dx earlier this year. Hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.