Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

I need a Dr. for my Gluten Sensitive 7 year old in Norman, Oklahoma


Katharine

Recommended Posts

Katharine Newbie

I have a son that has exhibited gluten sentivity since he was very young.  I decided to put him on a gluten free diet on my own to see if his symptoms and behavior changed at all.   It was a wonderful improvement.  But, the Oklahoma Asthma and Allergy clinic tested him for Gluten Allergies and found nothing.  I went gluten free with my son 2 years ago and found that I felt much better too.  My problem is that my son's Dad (NOT MY HUSBAND)  does not understand or appreciate how important eating glutten free is for him.  He makes fun of me and asks me "are you a Doctor?".   Does anyone know of a Nutritionist or Doctor in Oklahoma that can help support my son and I in our quest to understand gluten sensitivity?  We are healthier and happier not eating gluten but we seem to be up against a difference of opinion from other family members that feed him gluten and tell him not to tell anyone.  

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome!  Unfortunately, there is no such thing as a gluten allergy.  You can be allergic to wheat, but not to gluten.  Celiac Disease is an autoiummuine disease that happens to trigger "flare-up" when exposed to gluten (attacks the small intestine).  To get tested you have to be consuming gluten daily for a period of 8 to 12 weeks (blood tests).  Non-celiac gluten sensitivity  is determined after ruling out celiac disease and then trying the gluten free diet.  

For a child, a diagnosis is important so that schools can accommodate their gluten-free  diet (not to mention relatives....) 

Please learn more at the University of Chicago's celiac website:

Open Original Shared Link

Take care!  

Link to comment
Share on other sites
Stephanie78 Newbie

Katherine I changed my sons diet to gluten free soy free dairy free because of his adhd and sensory disorder he was a completely changed child NO MEDICATIONS NEEDED it is the ASD diet!!! His school wasn't on board at first but they said they would try it and they admitted the wished they would have listened to me !!! 

Link to comment
Share on other sites
Stephanie78 Newbie

I told them it was against my religion to give my child gluten and the teacher actually told me that wasn't fair for me to say that.. I told her if my son couldn't have pork due to his religion would they give it to him ?! That is when she agreed... Literally 3 days into school after Christmas break she sent a note home saying we are now enjoying a calmer and happier Dylan... His goal was to be able to sit during circle time ... And he did it!!!!!

Link to comment
Share on other sites
stri8ed Rookie

As the others have alluded to, gluten sensitivity is not an allergy, which means it cannot be detected using the transitional means. That being said, there is growing research and many MD's who are beginning to acknowledge the many adverse effects gluten can have on susceptible individuals.

I suggest you encourage the dad to read up on the latest research on gluten sensitivity. If you are seeking out a doctor, your best bet may be a functional MD (I have seen one in Chicago who was well aware of gluten sensitivity).

A good recent article on this - Open Original Shared Link

Be sure to read the comments.

 

Link to comment
Share on other sites
Gemini Experienced
On 8/5/2016 at 10:11 PM, Stephanie78 said:

I told them it was against my religion to give my child gluten and the teacher actually told me that wasn't fair for me to say that.. I told her if my son couldn't have pork due to his religion would they give it to him ?! That is when she agreed... Literally 3 days into school after Christmas break she sent a note home saying we are now enjoying a calmer and happier Dylan... His goal was to be able to sit during circle time ... And he did it!!!!!

I have to admit, that was a brilliant thing you said to the teacher!  ;)  I like the comparison to pork and I'm going to have to remember that one. 

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,091
    • Most Online (within 30 mins)
      7,748

    Grammar B
    Newest Member
    Grammar B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...