Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerance And Candida


Aetheana

Recommended Posts

Aetheana Newbie

I just wanted to share with everyone my experiences.

I was never officially diagnosed with gluten intolerance, but after a mini gluten challenge, i now know myself to be gluten intolerant. What i was officially diagnosed with via an antibody test was systemic candida. Its a yeast overgrowth in the gut and eventaully into the blood stream.

This is my theory, see if it makes sense. i think ive been gluten intolerant for a long while, though un-knowing (maybe triggered by knee surgery like my immune system went into overdrive because i have bolts in my knee). then i think i got the leaky gut issue which allowed candida to overgrow and get into my blood stream.

The point is that i am gluten free and now on an anti-candida diet.

:rolleyes: Im doing really great! :rolleyes:

gluten free isnt that big of an issue, but the anti-candida diet is a giant pain in the arse! no cheese, no sugar, no vinegar, etc and so forth. its not exactly SCD, but probably close. im still trying to find what works with my body.

i wonder if a lot of people that are celiacs actually have a candida problem as well, maybe undiagnosed, though. seems that leaky gut is talked about a lot, but not candida.

Now im going on a cruise for my honeymoon next week and lets see how good on my diet i can be. im planning on being 100% because of how much better i feel, but hidden gluten might be a problem!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Who diagnosed you with systemic candida? An alternative doctor? I dont believe in the "systemic" theory (although I did at one time). There is no scientific evidence to back this up. I believe only those with severely compromised immune systems develop systemic candida and at this point they would be hospitilized. Candida antibodies in the bloodstream do NOT mean that candida is actually in your bloodstream.

I have gluten intolerance, candida overgrowth, leaky gut and C. Difficile bacteria overgrowth and even though I was extremely ill from all this I do not believe that candida was in my bloodstream. Probably just about everyone with gluten intolerance has leaky gut and a candida overgrowth at some point...they kind of go hand in hand. Before I had any idea about gluten intolerance or that I had a serious bacteria overgrowth I thought I was dying from systemic candida...the only thing that helped me was diet. I saw an alternative doctor and told her I thought I had systemic candida and she agreed based on symptoms. Well...it wasnt true but the real diagnosis didnt come until later. The antibody bloodtest isnt really proof of anything...candida is natural in all of us and even though it can overgrow it isnt likely to be invading your bloodstream.

I'm glad you're feeling better..I'm just starting out on SCD and it seems to be helping already.

Aetheana Newbie

So the antibodies don't mean its in your blood stream.... Yea, I did get diagnosed by a half traditiona/half homeopathic doctor.

I didn't realize that.

Hmm.. What's the point of all the antifungal junk I'm taking then?

You seem to think its just gluten intolerance. Maybe after I do my anti-candida diet for awhile, I'll be able to go back to eating certain things like sugar. That would be the best.

How did you find out about C. Diff? I've seen you post about it before (on a couple boards, actually! :D ) and I don't know much about it.

Figuring out what's going on in the body is really hard. The biggest reason I thought the candida was in my blood stream was because I also have fibromyalgia. I've been reading some things that suggest some think that fibromyalgia is like having candida in muscle tissue. Though, for what its worth, a LOT of candida websites seem to be hardcore propaganda for their own products.

I do hope that someday, though, I'll be able to eat sweet things again!

chrissy Collaborator

i'm a little up in the air about the whole candida issue. i also have fibromyalgia as do two of my sisters and my mother. one of my sisters has tried MANY "alternative" things to treat her headaches, backaches, etc.(eventually diagnosed with fibro) all 3 of us (sisters) have been to a doctor (a regular MD) who specializes in candida. it didn't help me or my other sister, but it did help the "alternative" sister a fair amount. (ok, i did notice that my gastro system felt more "at peace"---for lack of a better description, and i lost the last 5 baby pounds i was carrying in a week. but, i was not eating the foods i was told i was sensitive to, (including wheat) and i was not eating anything with yeast). more recently, my alternative sister went to someone (not an MD) who specialized in a program for treating fibro. she put my sister on a cleansing program and also a diet and herbs directed at eliminating fibro and candidia. she was able to get off her prescription pain meds and has really improved---but not pain free. so......she really seems to believe in the candidia thing. two of my children have had fungal infections in their esophagus-------which alot of docs think is uncommon----it's not, if you have a chronic condition, such as reflux. i also had a raging case of breast yeast while i was nursing my baby (one of the kids with it in her esophagus) so i know yeast ends up in strange places. i guess i am rambling on and on.........if going gluten free and eliminating yeast makes you feel better, than that is all that areally matters.

i also have heard that candida can cause gluten intolerance, (not the celiac kind). there is an article somewhere here on celiac.com that talks about candida possible triggering celiac disease. so there you have it----many different scenarios!

christine

key Contributor

BEfore going gluten free I had had vaginal candida almost every month or more for like six years. Haven't had a yeast infections since. I don't follow any other candida diets. SO for me, I definitely think it had something to do with a lowered immune system maybe from celiac.

Monica

P.S. It has been almost a year since going gluten free and haven't had a yeast infection once.

Monica

Aetheana Newbie

Just a note about the fibromyalgia...

I feel really really better when I am on magnesium and malic acid. That might be something for you and yours to try to feel better. My back is a LOT better when i take it.

This is what Im taking 2 2x a day: Open Original Shared Link

Sometimes I get frustrated that everything seems related, but its not clear where the beginning and the end are. i know you have to treat everything at the same time and cant knock them down one by one, but i just feel like im chasing my tail! its all about chicken and the egg!

Yes, the point is that i do feel tons and tons better and i will keep eating this way as long as i am feeling good. its just really restrictive way of eating.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,411
    • Most Online (within 30 mins)
      7,748

    Rebekah1922
    Newest Member
    Rebekah1922
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.