Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Go To Sleep, And Sleep Through The Night But Wake Up Tired Still...question:

steveindenver

Recommended Posts

steveindenver Contributor
steveindenver
Posted

Is this something normal for Celiacs? I'm still somewhat of a newbie. I go to bed exhausted. Get tired late in the day usually and I sleep throughout the night, but wake up exhausted. I haven't had a good night's sleep in two weeks at least. Anyone have thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Matilda Enthusiast
Matilda
Posted

..

nursestherapies Rookie
nursestherapies
Posted
I've read that tiredness is the most common symptom of celiac disease.

The feeling of exhaustion was one of the main things that made me originally think there was something wrong with me, along with diarrhoea and weight loss. There were other things that I didn't even think of as symptoms until they disappeared when I changed my diet and came back when I glutened myself.

The tiredness though! It took a while to get really better, maybe a few months even, but when I had my first major glutening I really recognised it again. I explained it to my DH as waking up feeling as though I'd spent the night working down a coal-mine, with physical exhaustion and mental must-get-some-sleep immediately, even after going to bed early and actually getting a good night's sleep. I just couldn't remember how I managed to function before going gluten-free.

Now, most days I get dragged out of bed by the cat wanting feeding at the crack of dawn, (not saying I leap out of bed joyfully or anything) but once I'm up I start thinking, 'Ooh goody, I'm doing such-and-such today... It's beautiful outside... The birds are tweeting again..." I walk to work with an absolutely beautiful view of a mountain with the sun behind it and I often get that feeling of my heart swelling with happiness at how great it is to be up and about and making the most of the day when I look at it. I don't think I used to notice it at all hardly. The exhaustion took away all the joyous feelings. I don't even think I was depressed - not anything, just tired.

Thanks so much for that description. I had been on a cleansing diet of fruit, vegetables and rice for a week and felt much better. Then I ordered a hamburger without a bun and fries two days ago, and for the past two days feel just awful: fatigue, muscle pain, indigestion. Your post explains it well. I am still learning and will be really careful about restaurant grills and frying oil from now on. Karen

When I'm feeling well I might feel a little achy and tired after a hard day a work. If I start feeling that way after a few hours I start thinking about what I ate the day before. If I feel that way as soon as I get up I know I've gone wrong somewhere.

So be hopeful, I think it will get better, although it may take awhile.

Best wishes,

Matilda

flagbabyds Collaborator
flagbabyds
Posted

sleep apnea!

get tested for it, go to a sleep clinic and get a sleep study, that is how i felt so much through my childhood, and in 8th gradi i was finally diagnosed w/ sleep apnea. my CPAP helped a lot, but having jaw surgery really helped a lot!

now i sleep through the night, and can stay awake in chem class, where in middle school, i could baraly stay awake in algebra.

it can also be a symptom of celiac, but i would say go to a sleep clinic before it gets any more worse.

  • 2 weeks later...
taz sharratt Enthusiast
taz sharratt
Posted
Is this something normal for Celiacs? I'm still somewhat of a newbie. I go to bed exhausted. Get tired late in the day usually and I sleep throughout the night, but wake up exhausted. I haven't had a good night's sleep in two weeks at least. Anyone have thoughts?

im sooooo tired as well, before i knew what was wring with me i trained really hard bur now i find it hard just to get out of bed and the boys to sxool, ive been cheating i have to admit ive taken the odd pro plus in the morning just to wake me up, im struggling, im sure that once i get my intake of carbs sorted out ill adjust.

BRUMI1968 Collaborator
BRUMI1968
Posted

This was certainly my biggest symptom when I got tested two weeks ago; phenomenal daytime sleepiness. I had studied it and saw all the sleep problems that it could be; and I do seem to have a stuffy nose for the past two years. Anyway, I put mine down to anemia. I am on the mend there, and seem to be doing better staying awake the whole day and not wanting to stay in bed all day. I do still sleep late - always have.

If your insurance covers sleep clinic stuff, go for it...how fun to know. But I'm just worried about the cost of such things for me, so I'm going to hold out and see how the vitamin/mineral thing will work out.

good luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.