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Question About Tummy Aches


Jennifer M.

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Jennifer M. Newbie

When someone has Celiac Disease and consumes gluten, do they typically get a reaction immediately or could it occur several hours later? For example, last night my daughter (not diagnosed) woke up in the middle of the night because she had a bad tummy ache. She is not gluten-free; she had had a hamburger roll with dinner around 6:00.

Still trying to piece together the puzzle,

Jennifer M.


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Guest jhmom

Yes you can have a reaction to gluten 30min to 12 hours later. Sometimes I have an immediate reaction especially now that I am gluten-free but before I was dx I could eat bread and not have a reaction until the next morning but other things like croutons, spices from french fries at Outback, I would have a reaction VERY quickly!

I hope your daughter is feeling better and gets a dx soon!

flagbabyds Collaborator

Some people get their reactions a wek later. I get mine 24 hours afterwards

gf4life Enthusiast

The delayed reaction is what takes people (and their doctors) so long to figure out that it is gluten that is causing their reaction. For me it is usually the next day, or late at night if it was something I ate in the morning.

God bless,

Mariann

celiac3270 Collaborator

When I was younger I used to have farina a lot...and I would eat the meal, then run to the bathroom 30 min. to 2 hours after finishing, throw up, and then feel fine.

In the past few years, I didn't have anymore of that, and therefore, I had no immediate symptoms. Rather, I'd eat gluten all week and then get sick towards the end of the week....cramping and vomiting. Other symptoms such as bloating and gas were constant, and diarrhea wasn't a major issue...it came every now and then, but not enough to really disrupt everything. My delayed reactions were a contributing factor in not finding celiac disease in me for a time....after all, I couldn't connect it with any particular food since my symptoms didn't come immediately after eating a bagel, doughnut, sandwich....etc.

-celiac3270

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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