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Question About Tummy Aches


Jennifer M.

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Jennifer M. Newbie

When someone has Celiac Disease and consumes gluten, do they typically get a reaction immediately or could it occur several hours later? For example, last night my daughter (not diagnosed) woke up in the middle of the night because she had a bad tummy ache. She is not gluten-free; she had had a hamburger roll with dinner around 6:00.

Still trying to piece together the puzzle,

Jennifer M.


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Guest jhmom

Yes you can have a reaction to gluten 30min to 12 hours later. Sometimes I have an immediate reaction especially now that I am gluten-free but before I was dx I could eat bread and not have a reaction until the next morning but other things like croutons, spices from french fries at Outback, I would have a reaction VERY quickly!

I hope your daughter is feeling better and gets a dx soon!

flagbabyds Collaborator

Some people get their reactions a wek later. I get mine 24 hours afterwards

gf4life Enthusiast

The delayed reaction is what takes people (and their doctors) so long to figure out that it is gluten that is causing their reaction. For me it is usually the next day, or late at night if it was something I ate in the morning.

God bless,

Mariann

celiac3270 Collaborator

When I was younger I used to have farina a lot...and I would eat the meal, then run to the bathroom 30 min. to 2 hours after finishing, throw up, and then feel fine.

In the past few years, I didn't have anymore of that, and therefore, I had no immediate symptoms. Rather, I'd eat gluten all week and then get sick towards the end of the week....cramping and vomiting. Other symptoms such as bloating and gas were constant, and diarrhea wasn't a major issue...it came every now and then, but not enough to really disrupt everything. My delayed reactions were a contributing factor in not finding celiac disease in me for a time....after all, I couldn't connect it with any particular food since my symptoms didn't come immediately after eating a bagel, doughnut, sandwich....etc.

-celiac3270

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    • trents
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      Will definitely keep you posted. We live in Japan and will fly to Australia for the endoscopy end of April so until then, for the next ten weeks, we will just start adding gluten daily. 2 slices of white bread a day is what the guidelines seem to say.    But I welcome advice from members here who have done successful gluten challenges. I know they are not always successful.    I have also read I should monitor his growth. Is that really a concern for 10 weeks of gluten consumption? He is growing and has always followed his curve but he’s no basketball player at 20-25th centile. 
    • trents
    • trents
      @melthebell, keep us posted. We are learning more and more about gluten disorders as time goes on. One of the things that has become apparent to me is that gluten disorders don't always like to fit into the neat little pigeon hole symptomatic and diagnostic paradigms we have created for them. There seems to be a lot more atypical stuff going on than we once realized.
    • melthebell
      Thanks very much for taking the time to write. I have been reading a lot about this and it definitely is not straight forward. My first port of call is the gene test - probably should have had it done before we left Australia because they don’t run the test in Japan. So I’ve ordered a third party test kit and just swabbed his cheek. Then we start the gluten challenge and see how it goes. 
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