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Gerd/reflux


j9n

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j9n Contributor

I am curious how many people with celiac disease have damage in other parts of their digestive track. When I had my endoscopy I was told I have a hiatal hernia, severe reflux and gastritis. I wonder if this is all related. I don't get heartburn but I do notice a correlation with reflux and lower gi upset (to say it nicely). It really feels like I am poisoned, which I guess I am.


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AmyandSabastian Explorer

My son and my husband have severe reflux and have been on Prevacid since the day it has come out. They were on Zantac first with no help. We also have bottles of Roliads around the house at every turn.

lovegrov Collaborator

When I had my endoscopy I was told I had slight hiatal hernia. Apparently this is not at all unsual, even for people without celiac disease.

Until a few months agao I was having severe GERD problems and was taking Prevacid. Because of other health problems, I decided it was time to start exercising and lose weight. Once I reduced the amounts I was eating and lost 10 pounds (I've lost a total of 33) my GERD suddenly disappeared. I didn't know this would be a possible result of dieting, but I haven't even touched a Rolaids in months now. I know this wouldn't work for everybody and I certainly don't know if the people on this thread are overweight or eat too much, but I thought I'd throw it out there.

richard

burdee Enthusiast

My GERD/reflux experience was similar to Richard's with a few exceptions. I was diagnosed with 'gastrititis' with acid reflux (before they started calling it GERD) almost 20 years ago. I went through many prescriptions for Zantac (wouldn't take Tagamet because of known side effects) and LIVED on Mylanta or Maalox tablets. Then I found a nondiet approach to weight loss/maintenance which taught me to ONLY eat when truly hungry (not for emotional reasons or social conformity) and stop eating when I was satisfied (NOT stuffed). That method reduced my reflux significantly, :) even while eating foods supposed to cause reflux and drinking peppermint tea which was supposed to relax the esophagus. (I drank peppermint tea to cope with abdominal pains which I didn't realize until recently were celiac symptoms.) HOWEVER, since I receive my Enterolab diagnosis (gluten AS WELL AS casein antibodies), I've abstained from all dairy as well as gluten sources. :o Soon thereafter my lifelong 'instant reflux' disappeared. :D Since early childhood I had to avoid bending over after eating or going to bed before 3-4 hours after a meal, because food/liquids just came up when I wasn't perfectly vertical for several hours after eating. (Also bouts with nausea/stomach flu often turned into dry heaves where nothing would stay down.) So my lifelong reflux problems seemed to be caused by dairy products. :blink: Ironically doctors used to recommend milk to people with gastritis/reflux symptoms. <_< No wonder they call it 'medical practice' ... they sure PRACTICED on me a lot!! :lol:

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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
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    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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