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Gerd/reflux


j9n

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j9n Contributor

I am curious how many people with celiac disease have damage in other parts of their digestive track. When I had my endoscopy I was told I have a hiatal hernia, severe reflux and gastritis. I wonder if this is all related. I don't get heartburn but I do notice a correlation with reflux and lower gi upset (to say it nicely). It really feels like I am poisoned, which I guess I am.


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AmyandSabastian Explorer

My son and my husband have severe reflux and have been on Prevacid since the day it has come out. They were on Zantac first with no help. We also have bottles of Roliads around the house at every turn.

lovegrov Collaborator

When I had my endoscopy I was told I had slight hiatal hernia. Apparently this is not at all unsual, even for people without celiac disease.

Until a few months agao I was having severe GERD problems and was taking Prevacid. Because of other health problems, I decided it was time to start exercising and lose weight. Once I reduced the amounts I was eating and lost 10 pounds (I've lost a total of 33) my GERD suddenly disappeared. I didn't know this would be a possible result of dieting, but I haven't even touched a Rolaids in months now. I know this wouldn't work for everybody and I certainly don't know if the people on this thread are overweight or eat too much, but I thought I'd throw it out there.

richard

burdee Enthusiast

My GERD/reflux experience was similar to Richard's with a few exceptions. I was diagnosed with 'gastrititis' with acid reflux (before they started calling it GERD) almost 20 years ago. I went through many prescriptions for Zantac (wouldn't take Tagamet because of known side effects) and LIVED on Mylanta or Maalox tablets. Then I found a nondiet approach to weight loss/maintenance which taught me to ONLY eat when truly hungry (not for emotional reasons or social conformity) and stop eating when I was satisfied (NOT stuffed). That method reduced my reflux significantly, :) even while eating foods supposed to cause reflux and drinking peppermint tea which was supposed to relax the esophagus. (I drank peppermint tea to cope with abdominal pains which I didn't realize until recently were celiac symptoms.) HOWEVER, since I receive my Enterolab diagnosis (gluten AS WELL AS casein antibodies), I've abstained from all dairy as well as gluten sources. :o Soon thereafter my lifelong 'instant reflux' disappeared. :D Since early childhood I had to avoid bending over after eating or going to bed before 3-4 hours after a meal, because food/liquids just came up when I wasn't perfectly vertical for several hours after eating. (Also bouts with nausea/stomach flu often turned into dry heaves where nothing would stay down.) So my lifelong reflux problems seemed to be caused by dairy products. :blink: Ironically doctors used to recommend milk to people with gastritis/reflux symptoms. <_< No wonder they call it 'medical practice' ... they sure PRACTICED on me a lot!! :lol:

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    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
    • Ello
      I have always eaten gluten and never stopped until my recent episode. I started more wheat products as my Dr. requested for the Tissue Transglutaminase Iga Antibody. mye result Value <1.0 Value interpretation: <15.0 Antibody not detected > or =15.0 Antibody detected I do not understand any of it. After eating all that wheat product my body exploded with all sorts of symptoms. I stop gluten ASAP. I am still in the healing process. I started having issues after my surgery. 
    • trents
      Welcome to the celic.com community @Ello! You say you had a blood test for celiac disease after eating gluten for 2 weeks. Were you gluten free before that? Had you ever been officially diagnosed with celiac disease previously? You say the result of the blood test was 1.5. Can you provide the name of the test and the reference range for negative vs. positive for the test? I ask because different labs used different reference ranges so scores without a reference range aren't very helpful.
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