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Gerd/reflux


j9n

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j9n Contributor

I am curious how many people with celiac disease have damage in other parts of their digestive track. When I had my endoscopy I was told I have a hiatal hernia, severe reflux and gastritis. I wonder if this is all related. I don't get heartburn but I do notice a correlation with reflux and lower gi upset (to say it nicely). It really feels like I am poisoned, which I guess I am.


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AmyandSabastian Explorer

My son and my husband have severe reflux and have been on Prevacid since the day it has come out. They were on Zantac first with no help. We also have bottles of Roliads around the house at every turn.

lovegrov Collaborator

When I had my endoscopy I was told I had slight hiatal hernia. Apparently this is not at all unsual, even for people without celiac disease.

Until a few months agao I was having severe GERD problems and was taking Prevacid. Because of other health problems, I decided it was time to start exercising and lose weight. Once I reduced the amounts I was eating and lost 10 pounds (I've lost a total of 33) my GERD suddenly disappeared. I didn't know this would be a possible result of dieting, but I haven't even touched a Rolaids in months now. I know this wouldn't work for everybody and I certainly don't know if the people on this thread are overweight or eat too much, but I thought I'd throw it out there.

richard

burdee Enthusiast

My GERD/reflux experience was similar to Richard's with a few exceptions. I was diagnosed with 'gastrititis' with acid reflux (before they started calling it GERD) almost 20 years ago. I went through many prescriptions for Zantac (wouldn't take Tagamet because of known side effects) and LIVED on Mylanta or Maalox tablets. Then I found a nondiet approach to weight loss/maintenance which taught me to ONLY eat when truly hungry (not for emotional reasons or social conformity) and stop eating when I was satisfied (NOT stuffed). That method reduced my reflux significantly, :) even while eating foods supposed to cause reflux and drinking peppermint tea which was supposed to relax the esophagus. (I drank peppermint tea to cope with abdominal pains which I didn't realize until recently were celiac symptoms.) HOWEVER, since I receive my Enterolab diagnosis (gluten AS WELL AS casein antibodies), I've abstained from all dairy as well as gluten sources. :o Soon thereafter my lifelong 'instant reflux' disappeared. :D Since early childhood I had to avoid bending over after eating or going to bed before 3-4 hours after a meal, because food/liquids just came up when I wasn't perfectly vertical for several hours after eating. (Also bouts with nausea/stomach flu often turned into dry heaves where nothing would stay down.) So my lifelong reflux problems seemed to be caused by dairy products. :blink: Ironically doctors used to recommend milk to people with gastritis/reflux symptoms. <_< No wonder they call it 'medical practice' ... they sure PRACTICED on me a lot!! :lol:

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      Welcome to the celiac.com community, @melthebell! I certainly would have a biopsy repeated as it has been 5 years since the first one. You mentioned he was scheduled for an endoscopy but make sure a biopsy is also done. It's possible he, like you are, is a "silent" celiac where the damage to the intestinal mucosa happens very slowly and can take years to manifest to the point of being detectable and where symptoms are minimal or absent. At 10 years old, his immune system may not be mature enough het to trigger the usual IGA responses that the IGA celiac tests are designed to detect.  I would also have genetic testing done to confirm that he has or doesn't have the potential to develop celiac disease. The genetic profile can also offer insight into the type of celiac disease a person will develop if they ever convert from latent to active. Take a look at table 2 under the section "Types of Celiac Disease" in the article found in this link: https://pmc.ncbi.nlm.nih.gov/articles/PMC9980758/  Genetic testing is available from 3rd party labs. I think you just have to send in a cheek swab sample.
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