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How Long After Being "glutened" Do You Get Symptoms?


kbabe1968

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kbabe1968 Enthusiast

I just RECENTLY went gluten free. I'm on day 5.

Overall, I feel better. I have a LITTLE bit more energy. BUT, I think that there might be gluten in maybe my vitamins. I've taken them the last two days and I get the big D almost right after taking them (maybe 20-30 mins) When I take my vits I take on an empty stomach and then eat right after taking so that they metabolize. It's the only time all day i've had the D so I know or am assuming the other foods are agreeing with me okay.

Also, i still drink Coke (I don't like coffee in the a.m., just a coke! NOT diet). Could it be something in that? I can have coke other times of the day and I don't get D.

Or is it still too early to tell if something is glutening me?


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Rusla Enthusiast

All coke and pepsi products are gluten-free. Yes, your vitamins could have wheat and gluten in them call the company and find out.

Now on symptoms it is not only different for different people but I find how much gluten and type make a difference. Some I know in 5-10 minutes and others like this last huge horrifying incident it took 12 hours and I have reacted up to two days later. However, as being gluten-free the longer you are gluten-free the more violent the reactions could be when you get glutened. When you were eating gluten it was a constant now you are not your system may react more violently, mine sure does.

Looking for answers Contributor

I've only been gluten free for four months now and have had two episodes. Both eating out. :ph34r: The first time (about one month into gluten-free living), I ate dinner about 7 p.m. and was awoken at 1 a.m. with D and dizzyness. The second time was last weekend (I ordered steak tacos and didn't notice that they were marinated in terriyaki sauce--duh!!!) and my stomach started acting up within a half hour. Unfortunately, I had just started watching that movie "Pusuit to Happyness" when my stomach started pursuing sheer misery :huh: Needless to say, my husband had to fill in a lot of blanks for me with that movie!

For me the time is getting less and less and the symptoms more intense the longer I follow the gluten-free diet!

Lisa Mentor

Just remember that it took your body some time to be damaged by gluten and it will take some time to heal. Some people here have felt feel better very soon after going gluten free. It took me about six month.

On occasion, when I get glutened the brain fog and the shakes begin first. I feel very flumbly. About 24 hours later, the acid D begins. It take about three day to fully recover from an accidental gluten.

But, every one reacts differently.

emcmaster Collaborator

I get bloated almost right away and the pain and nausea sets in anywhere from 2-36 hours later.

imagine22 Contributor

just thought i should tell you coke itself is a Diarrheic particularly if you drink a litre or more a day.

i felt a noticeable difference within days but a significant difference after 2-3weeks gluten free.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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