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How Long After Being "glutened" Do You Get Symptoms?

kbabe1968

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kbabe1968 Enthusiast
kbabe1968
Posted

I just RECENTLY went gluten free. I'm on day 5.

Overall, I feel better. I have a LITTLE bit more energy. BUT, I think that there might be gluten in maybe my vitamins. I've taken them the last two days and I get the big D almost right after taking them (maybe 20-30 mins) When I take my vits I take on an empty stomach and then eat right after taking so that they metabolize. It's the only time all day i've had the D so I know or am assuming the other foods are agreeing with me okay.

Also, i still drink Coke (I don't like coffee in the a.m., just a coke! NOT diet). Could it be something in that? I can have coke other times of the day and I don't get D.

Or is it still too early to tell if something is glutening me?

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Rusla Enthusiast
Rusla
Posted

All coke and pepsi products are gluten-free. Yes, your vitamins could have wheat and gluten in them call the company and find out.

Now on symptoms it is not only different for different people but I find how much gluten and type make a difference. Some I know in 5-10 minutes and others like this last huge horrifying incident it took 12 hours and I have reacted up to two days later. However, as being gluten-free the longer you are gluten-free the more violent the reactions could be when you get glutened. When you were eating gluten it was a constant now you are not your system may react more violently, mine sure does.

Looking for answers Contributor
Looking for answers
Posted

I've only been gluten free for four months now and have had two episodes. Both eating out. :ph34r: The first time (about one month into gluten-free living), I ate dinner about 7 p.m. and was awoken at 1 a.m. with D and dizzyness. The second time was last weekend (I ordered steak tacos and didn't notice that they were marinated in terriyaki sauce--duh!!!) and my stomach started acting up within a half hour. Unfortunately, I had just started watching that movie "Pusuit to Happyness" when my stomach started pursuing sheer misery :huh: Needless to say, my husband had to fill in a lot of blanks for me with that movie!

For me the time is getting less and less and the symptoms more intense the longer I follow the gluten-free diet!

Lisa Mentor
Lisa
Posted

Just remember that it took your body some time to be damaged by gluten and it will take some time to heal. Some people here have felt feel better very soon after going gluten free. It took me about six month.

On occasion, when I get glutened the brain fog and the shakes begin first. I feel very flumbly. About 24 hours later, the acid D begins. It take about three day to fully recover from an accidental gluten.

But, every one reacts differently.

emcmaster Collaborator
emcmaster
Posted

I get bloated almost right away and the pain and nausea sets in anywhere from 2-36 hours later.

imagine22 Contributor
imagine22
Posted

just thought i should tell you coke itself is a Diarrheic particularly if you drink a litre or more a day.

i felt a noticeable difference within days but a significant difference after 2-3weeks gluten free.

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      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
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      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
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      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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    • lizzie42
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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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