Posted 02 October 2004 - 04:47 PM
I am considering to start my own support group but I thought it best to get feedback from others before I finalized my decision.
I would appreciate your input on support groups for people with gluten and/or casein sensitivity.
Posted 02 October 2004 - 05:43 PM
If you want to start your own group, considering contacting www.gluten.net for the Gluten Intolerance Group local office in your area or www.csaceliacs.org for the local chapter of the Celiac Sprue Association. One or both of those organizations may give you support and information about starting your own local celiac group.
Although I don't lead my local celiac disease support group, I keep our membership roster and handle publicity for our meetings and correspond with gluten-free product companies to obtain free samples of their products for our group meetings. I have facilitated other 'eating habit' groups at my church, so I'm experienced in leading groups. Feel free to write me at firstname.lastname@example.org for ideas about starting and advertising your local celiac disease support group.
Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.
Posted 20 October 2004 - 11:18 AM
I'm thinking of starting a celiac support group here in Denmark. Just moved here, and there are essentially now resources for us, so I'm thinking about starting my own.
I've been gluten free for 2 years, and I've learned so much about celiac disease, but I still don't really feel qualified to start my own group.
Any further leads or advice would be much appreciated!
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