Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It In My Head?


sarahelizabeth

Recommended Posts

sarahelizabeth Contributor

Before I go complaining to a Dr about this I am just wondering if this could be celiac related or if its just in my head ;)

Everytime I eat a heavy gluten meal (like ravioli tonight) I itch... my hands, elbows, bottoms of my feet, knees, and back of my neck, and sometimes my head too... they all itch like crazy for a few hours. :blink: am I nuts?? There's nothing there... no rash or anything... it just itches.

I have a bunch of other symptoms (and one child who has been tested for bowel issues and anotehr who will be tested for stunted growth) and am trying to get up the courage to go ask my Dr for the test. I've had IBS for years but it got tons worse after having my first child. My poop floats... honestly I don't remember a time that it didn't :blink: and it often sticks to the sides of the toilet (sorry tmi). I have HORRIBLE gas and bloating (sorry tmi) to the point of being woken up in the middle of the night in pain. I get head aches/migrains all the time. I am chronically fatigued to the point of needing a daily nap. I've had infertility problems (needed drugs for both pregnancies). I get mouth sores regularly and I've had 20 cavities in the past 4 years after having NONE before that. The list could go on :( The only thing is that I am overweight and not under by any means :(

Honestly I am almost afraid to know... I know I should go in and ask for the test but it scares me... stupid I know (please don't bash me for that). I just need to kick my butt in gear and go and ask for the tests.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SarahCC Rookie

dont be scared. it is a crappy thing to go through but what makes me feel better is that I think of it as a mandatory (slightly altered) atkins diet! :o) I know thats reaching, but what else can we do?! Good luck and please get checked, as you can tell its better to be safe than sorry! Good Luck!!

Lisa Mentor

SarahE:

Celiac comes with over 200 symptoms and many that you have listed could be attributed to Celiac Disease or the least, a gluten intolerance.

Since your have seen a failure to thrive in one of your children and one with bowl issue, for the sake of you children I would pursue testing for yourself. This could impact your children's medical future. Your symptoms sound very classic.

I would suggest that you stay on a gluten diet and request that you doctor do a full panel Celiac Blood work. Others can recommend the exact test that you should have.

It is nothing to be fearful about. Finding a medical solution and a follow through with result without drugs is a very good thing. Being diagnosed with Celiac Disease sounds a little lofty in the beginning, but to cure your ills just by a diet change should be a welcome avenue. If this is your case, we have many, many people who can walk you though it to ease your transition.

You have to think about your children also. This is a genetic tendency.

You have found yourself a wonderful site. I have never known more informative and sharing people. Please feel that you can ask away.

mamabear Explorer
Before I go complaining to a Dr about this I am just wondering if this could be celiac related or if its just in my head ;)

Everytime I eat a heavy gluten meal (like ravioli tonight) I itch... my hands, elbows, bottoms of my feet, knees, and back of my neck, and sometimes my head too... they all itch like crazy for a few hours. :blink: am I nuts?? There's nothing there... no rash or anything... it just itches.

I have a bunch of other symptoms (and one child who has been tested for bowel issues and anotehr who will be tested for stunted growth) and am trying to get up the courage to go ask my Dr for the test. I've had IBS for years but it got tons worse after having my first child. I have HORRIBLE gas and bloating (sorry tmi) to the point of being woken up in the middle of the night in pain. I get head aches/migrains all the time. I am chronically fatigued to the point of needing a daily nap. I've had infertility problems (needed drugs for both pregnancies). I get mouth sores regularly and I've had 20 cavities in the past 4 years after having NONE before that. The list could go on :( The only thing is that I am overweight and not under by any means :(

Honestly I am almost afraid to know... I know I should go in and ask for the test but it scares me... stupid I know (please don't bash me for that). I just need to kick my butt in gear and go and ask for the tests.

sarahelizabeth,

Please don't bash yourself for thinking of this! Most doctors do not understand that being overweight can also be a symptom of celiac disease. When your body starves, it saves fat for energy sources. When you are malabsorbing....celiac or other malabsorptive conditions, your body can hold on to the fatty stores and make it very difficult to lose weight! Quite a paradox, but it's real.

I commend you for writing, and hope you ask your (hopefully enlightened) physician for a celiac blood panel and tissue transglutaminase antibody. Please keep us posted!

Ursa Major Collaborator

Sarahelizabeth, all your symptoms sound like celiac disease to me. I am overweight,too, and that's why my doctor wouldn't test me, even though I had all the other symptoms two years ago.

I used to also get terribly itchy all over, including my palms and soles of my feet. It was so bad that I'd scratch myself bloody in my sleep, if I could sleep, that is. I very rarely have that problem now (and when I do it probably means I've been glutened somehow).

IBS is a junk diagnosis. All it means is that your doctor is clueless as to what is causing your symptoms, and he wants to give it a label to look educated. Think about it: If your bowels are irritated, there must be a cause! So, let's find out what is irritating them, so the cause can be removed. And in your case, it looks a lot like it is gluten.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.