Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Attention Deficit Disorder (add)


bessiejay

Recommended Posts

bessiejay Newbie

I was diagnosed with ADD when i was 20. Now, two years later, I have gluten intolerance. Has anyone else noticed that their ADD has calmed down after going on a gluten-free diet? SHould i stop taking my medication and see what happens? Anyone know anything about this? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel-jd1 Community Regular

You should never stop taking prescribed medication without first consulting your physician. NOT a group of people on a message board. PLEASE call your dr and set up an appointment.

-Jessica :rolleyes:

seeking-wholeness Explorer

Bessie,

I just found Adderall tablets on the gluten-free medication list here at celiac.com, though you may want to call the manufacturer just to double check that they haven't changed the formulation.

You may indeed find that your ADD improves on the gluten-free diet, but I would give it at least a few months to work its magic before even considering stopping a prescribed medication. And I totally agree with Jessica that you should DEFINITELY be under a doctor's supervision when weaning yourself off of a drug.

I hope this helps!

  • 3 weeks later...
bessiejay Newbie

Thanks everyone.

Luckily Adderall is what my doctor calls "Vacation Time" medicine. I can go on and off it whenever without a problem. Summer vacations I dont take it as well as the weekends for the most part. I feel the same after a week on, and after a week off it. He said it should be safe and that if i start to feel over stimulated after being on the diet for awhile, to try without and see if I am ok. So, thats good news.

sometimes i wonder what else is wrong with me, i feel so bombarded. Gluten Intolerance, ADD and Eating Disorder. I just like to think the Gluten Free diet will help me in all areas. :)

-Bessie

  • 11 months later...
Weyoun9 Newbie

Bessie,

I was diagnosed as ADD two and a half years ago. I first started on Ritalin XR, which gave me horrible headaches, and I switched to Adderall, and took it for two years. I stopped taking it a few months ago because of complications it was causing for me, which I have now learned were due to my sprue. I've been gluten-free for a month now, and I've noticed a significant reduction in my ADD symptoms, however, not complete remission. It may take more time, or it may never go away - but, I've been trying a good alternative to Adderall that may work for you too.

I've been taking supplements of the amino acid Tyrosin (or you can try phenylalanine, which is the essential amino acid tyrosine is derived from), which your body uses to build the neurotransmitters dopamine and norepinephrine (Adderall stimulates production of dopamine, Ritalin does norepinephrine). Since starting this therapy a week ago, the results have been remarkable! It is exactly like taking Adderall, but it lasts all day and no downer from it wearing off! It is quite safe (and cheaper), and can be taken two or three times daily (but not too late, like Adderall, it can cause insomnia) They come in 100, 500, and 1000mg capsules. I have been taking roughly 1500mg a day, 500 three times daily. The only downside is that it has to be taken on an empty stomach, or a meal without protein, so it doesn't compete for absorption with any other amino acids. But I can personally attest to the difference it has made for me. I would highly suggest it. You may want to do your own research online and/or ask your doctor. I had to find it out on my own, my doctor, for whatever reason, didn't know about this alternative!

I hope I could help in some way!

Regards,

Paul

P.S. - Also, I just wanted to note that this therapy also helps depression, since these neurotrasmitters also contibute to mood, motivation, muscle control, and overall sense of well-being.

FaithInScienceToo Contributor

Great question -

I was diagnosed ADD about 10 years ago now - I was also called "Space cadet" by my friends in college - Obviously, I was in 'brain fog' mode way too often while growing up...

So far, my experience with being gluten-free and 'on' Ritalin is:

(I take 20mg Ritalin LA each AM)

The Ritalin seems to work better!

Maybe it's getting absorbed more completely?

I feel better now while taking it...like I know it'll really going to do what it's supposed to...

perhaps it wasn't able to do the 'slow-release' thing before, and now it does?

My knowledge, so far, of how gluten-intolerance can 'cause' ADD, or add to it, is that the opiods effect the developing brain in childhood/teen years (your brain continues to develop up until about age 25)...and I believe, unfortunately, that it may not be reversible.

So, I imagine that I will always 'have ADD,' but not as 'badly as before going gluten-free'...since I won't be adding on any more brain fog from gluten to my already altered brain development...so, I could probably use the Ritalin "PRN" - which means 'as needed' later on...

For now, though, I don't want to change anything except my diet...one big change at a time...

I do want to reduce my Paxil back down to only 12.5 mg per day, though, as I did fine on that dose previously, and feel that since my gut is absorbing everything better, it will be ok. But, I'll probably wait until I have been gluten-free for at least 6 months before I try it. I want to make sure the 12.5 dose gets absorbed.

Good luck,

Gina

  • 6 years later...
Austin Guy Contributor

I was quite ADD before going gluten free. I was forgetful, disorganized, would lose things, had bad social anxiety because of things like concentrating so hard to remember something I wanted to say that I had no idea what the other person was saying during a conversation.

When I get glutened I revert to that, but it is a bit worse and I absolutely hate it. I just want to crawl into a hole and hide for 48 hours.

I had been on ADD meds, but quit them when I lost my insurance. They helped some, but not enough. Getting off gluten has been almost miraculous for the ADD and other things. Psychiatrists need to be informed about gluten intolerance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,051
    • Most Online (within 30 mins)
      7,748

    Lizdio3578
    Newest Member
    Lizdio3578
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Natalia Revelo
      TLDR: Despite following a very strict gluten-free diet for 15 years, I have dealt with multiple physical and mental health issues for years, which improved with supplements. My gastro doesn't provide any solution on how to improve nutrient absorption because my MARSH is normal. Dear all, Sorry for the long post but I really need help. I was diagnosed 15 years ago with very severe symptoms (weight loss, tiredness, diarrhea, fainting, hair loss, numbness in hands and feet, anxiety). Since then I have followed a very strict gluten free diet. With time I became extremely sensitive and just a few normal bread crumbs laying on the table while I eat can make me sick if I visit someone. At home my husband and child eat gluten free because I can definitely not have gluten at home. Despite physical improvements after going gluten free, my life as training as a scientist was marked by panic attacks, severe anxiety and depression while trying to obtain my PhD and working as a postdoc. 7 years ago I started to have mini burnouts, fibromyalgia-like symptoms (e.g. unbearable pain in joints and muscles) and not being able to perform at my job. 5 years ago while being pregnant my ferritin levels were practically zero and after delivering my child, my body completely collapsed. I could not walk for the first 2 years postpartum due to severe pelvic floor issues, diastasis, bladder pain and fatigue, which led to me not able to work and getting a massive burnout. Unfortunately my GP was very dismissive of all my symptoms. Eventually I was diagnosed with osteoporosis and this led me to conclude that I have been going through nutrient deficiencies for years, if not decades. With the help of an orthomolecular dietitian I started taking supplements and my pelvic floor and diastasis improved a lot (I think my body was unable to produce collagen for tissue strength) and my burnout started to improve (it seems my brain could not work due to lack of nutrients). My gastroenterologist is too busy to take me seriously, and he doesn't believe my deficiencies are real because he doesn't see it on paper (despite me having low erythrocyte counts and low ferritin). I ended up visiting a functional doctors and she could see deficiencies in magnesium, copper, omega-3, iodine, sodium and markers of inflammation and my microbiota is very imbalanced. She also found that I am allergic to milk protein and eggs and those were giving me IBS symptoms, plus there is a FODMAP group making me sick but haven't found out which. The costs of the supplements I get from the functional doctor and the tests she does are very expensive and I have to pay out of my own pocket. It's very expensive but I'm finally getting stronger and I feel like I have a completely different brain, no anxiety or depression, which is amazing after decades of feeling miserable. I convinced the gastro to check my MARSH score and while in the gastroscopy they did see scar tissue in my duodenum, the histological exam shows no damage in the MARSH score. Therefore, my gastro says I'm fine, but I'm obviously not fine. My question is if anyone has been in this situation, and how can I move forward. I suspect that the inflammation caused by milk and egg could have contributed to poor absortion. The functional doctor gave me iron infusions and my ferritine levels went up and I felt amazing, but after a few months the levels go down again. Somehow I cannot keep the iron in my body. I want to know if there is any possibility of healing my gut. The functional doctor is giving me herb supplements that heal the gut, and I tried taking glutamine but it burns my bladder (I have intersticial cystitis). I really need to go back to work, but first I need my body to have steady health and anergy.  Thanks for any help! 
    • Wheatwacked
      Has your doctor tested your vitamin D?  Urine Iodine deficiency? Vitamin B12 deficiency can be a contributing factor for oral thrush, especial if you are vegan. Celiac Disease causes  malabsorbtion leading to vitamin and mineral deficiencies. Zinc supplementation reduces Candida infections  I know that zinc is an antiviral and have been using zinc glycomate (Cold Eeze lozanges) since 2004 and have not gotten cold or flu since.  The lozenge coats the mucous membrane with zinc, protecting the cell wall from the virus.  This research paper and some others indicate that zinc also acts as an antifungal.  Worth a try, Try to reduce how much food with high omega 6 that you eat to lower your omeaga 6 to 3 ratio.  It helps with inflammation.  Try eating foods with lots of benificial bacteria.  The goal is to repopulate your gut with good guys. Assuming you do not have dermatitis herpetiformis or another reason to limit iodine, Liquid Iodine to raise your iodine to the 600 mcg a day (middle of the RDA range (150-1000mcg)  to boost your immune system.  Iodine has anti-fungal properties that can help kill Candida species.  Your whole body will heal quicker when you have sufficient iodine and vitamin D.
    • Scott Adams
      I'm not sure if you found what other here have posted on oral thrush, but this might be helpful: https://www.celiac.com/search/?q="Oral thrush"&quick=1&updated_after=any&sortby=relevancy
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • trents
      Welcome to the forum, @JulieRe! You would do well to get checked for a candida infection of the gut. Yeast thrives on carbs so you might also look into a low carb diet. These kinds of things seem to be more common in the celiac community than in the general population. There is a growing body of evidence that the development of celiac disease is rooted in unhealthy gut biome conditions. It's good that you are getting that red spot on your tongue checked out soon. It's likely related to the thrush but I would also not rule out a neoplasm which you would certainly want to catch early.
×
×
  • Create New...