Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Car Trip To G'ma G'pa's House...1200 Miles


flboysmom

Recommended Posts

flboysmom Rookie

We'll be leaving for Ohio in a few weeks to visit family and we're concerned about the food situation during the road trip. We are staying overnight to and from Ohio. I'm planning on making reservations at Amerisuites or something similar that isn't too expensive, but does have a fridge/microwave. Those of you who are seasoned at this, can you offer little tidbits and hints to save this mommy and daddy some hassle :rolleyes: ? It's challenge enough to make the trip with a breastfeeding four month old, busy two year old, and know it all seven year old...throw gluten-free into the mix and you've got one glorious experience :blink: .

:D Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Packed sandwhiches (like PB&J) or rice cakes w/ PB. Raw, cut, and baggied vegetables and whole fruit. Nuts and dried fruit are also good. gluten-free dry cereal is good too. I've even brought the small boxed soy milks and a baggie of quinoa flakes to make in a microwave with me on trips. With fridges, leftovers can be carried with you in a small cooler.

MySuicidalTurtle Enthusiast

I just bring food with me. . .pre-toasted gluten-free bagels, fruit, water, and things I like. Then go shopping at a health foodstore when I get to the end place. I usually make sure I find one and call ahead to see if they have what I need.

celiac3270 Collaborator

Bring your own food, as the others suggested. Also, make sure you're aware of what gluten-free restaurants you could eat at along the way if you run out of food or want a change.

judy05 Apprentice

If your traveling the Pa turnpike and stop at Breezewood,

try the Denny's restaurant. They have been very accomadating

to me in the past. They have a list (behind the counter) of

all the allergens and which foods you can eat. I always have

scrambled eggs, hash browns and bacon. Hubby eats most

of my bacon!

Just remind them to clean the grill, use a clean spatula, the

eggs are fried in a clean skillet in butter. If you can't have

the butter they will use oil. They have been so nice to

me, I can't recommend them enough. I haven't tried any

other Denny's. I did try a local restaurant in my town, my

first try other than Denny's and I gave them the same

instructions and I made out fine. My brother insisted on

my going and he told me to order a steak, baked potato,

and salad. It was nice to eat out with family again, I just

needed a little nudge.

Thomas Apprentice

I think packing food is the safest.

hapi2bgf Contributor

We have taken regular car rides to FL since my daughter was born (4 yrs now). It's an 8 hr ride. We have had EVERYTHING happen from projectile vommit, to explosive diapers, to constipation in a toddler, potty training false alarms and accidents, tire blow outs, and major traffic. Here are some of the things that work for us.

1. My personal favorite for traveling with kids is a movie! Baby Einstein will work wonders on a screaming 4 month old. Mine had colic and could scream for a solid eight hrs! So beg, borrow, rent, buy one of those DVDs for the car. It really is well worth it. The older kids will love the movies and it is a great way to get some quite.

2. Pack a cooler full of the gluten-free foods for the trip and some healthy snack for everyone else. Also, pack some of the "junk" food treats the kids never get to eat at home. It makes them a little happier when the kids are maxed out for the car ride.

3. Make dad plan on stopping at a fast food place with a play ground at least once a day for 30 min! The older kids can eat their meals in the car after they play. The logic of stoppiong for half an hour or more never made sense before, but it makes a world of difference in the kids attitudes.

4. If you can, pack a bag a "emergency" new toys for the kids. This is for when they are starting to get on each others nerves and you still have 4 hours to go. Raid the local Dollar store or toy store for inexpensive toys that do not require setup or batteries. (no crayons!) MIne is still young enough that the pretend and imagination toys work great for us.

5. The final tip is to leave as early as humanly possible (4 or 5 am is great!) The baby will sleep and the older kids will be tired and quiet. Then plan to end for the day by 4pm at the latest.

To date we have only had one ride that required us to stop early and find a hotel. That was the projectile vommit trip. Sick babies are no fun to travel with. Bring paper towels and wipes.

Have a great trip!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,956
    • Most Online (within 30 mins)
      7,748

    Srowton
    Newest Member
    Srowton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.