Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Best Friend Has Suffered For Years
0

5 posts in this topic

My best friend has suffered from celiac disease for over 20 years, she claims she cannot even tolerate rice, but everything I have read that rice is okay, could she also have something else besides celiac disease? :D

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes--rice is fine on a gluten-free diet. She might have a separate allergy--many people here have some other condition or allergy that accompanies celiac. Allergies are unrelated to celiac, but that would be why she has trouble with rice--not celiac disease.

0

Share this post


Link to post
Share on other sites

Hello;

I had the same problem after going gluten free for many years. What happens, according to one of my doctors, is that when you take a reaction to gluten, the body knows that something in that meal is making you sick. Example ... You eat quite a few rice dishes, the spice, or sauce on those dishes were contaminated with gluten. The body reacts to the gluten, but doesn't separate the sauce, or spice from the rice. So even when you put an un-contaminated source of rice in you, the body starts to react. In this case you are not getting a gluten reaction, but stomach reflex at the fear of being contaminated.

I went to Calgary and had NAET treatments by a doctor there. It's simple allergy treatments done with a combination of acupressure, acupuncture (done with laser) and heat. The treatments were very comfortable and very effective! I can now eat almost anything that is gluten free.

If you have Celiac disease ... do not trust a doctor doing this treatment that tells you that you will be able to eat gluten after these treatments! The fact is, with Celiac disease we are missing an enzyme, and will never be able to safely eat gluten! My doctor in Calgary had a family member with Celiac disease and was right up to date with the problems associated with it.

If you wish, you can get in touch with me and I'll pass along his website.

Hope this helps :)

0

Share this post


Link to post
Share on other sites

Maybe your friend's stomach is really damaged and will take time to heal.

0

Share this post


Link to post
Share on other sites

If she has actually been gluten free for 20 years, I would say that maybe she has an allergy to rice?

But if she just recently found out that she has had celiac for 20 years and has just started the gluten-free diet, I would say she may just need more time to heal and recover.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,907
    • Total Posts
      919,591
  • Topics

  • Posts

    • Did Jennifer Esposito Leave Town Amid $43 Million Gluten-Free Bakery Lawsuit?
      Wasn't this some gossip rag nonsense from a few weeks back?  I think it's been proven false.  But, even so, why is celebrity gossip from unreliable sources here?  And I can't leave a comment on the actual article, because he approves and often edits the comment.
    • Recovery?
      Hi PLB, If he hasn't been gluten-free very long, he might still be able to get blood testing done for the gliaden (gluten) antibodies.  More than a couple weeks may be too long tho. As far as recovery, it varies from person to person.  The condition associated with celiac that you are thinking of is probably gluten ataxia.  Gluten ataxia is an antibody attack on the brain cells that can cause problems walking and controlling muscles.  Generally it seems people consider nervous system healing / recovery to be a fairly slow process.  Although it sounds like your husband is experiencing some recovery already, which is great! I've read about coconut having benefits for people with alzhiemers disease, but don't know if it would help him.  I doubt it would hurt though.  The B-vitamins including B-12 are supposed to be very important for nervous system health.  Vitamin d is also important but make sure you take a supplement that is tested and reliable.  Check out https://labdoor.com/  for their review/test results.  Dr. Hadjivassiliou has done some research on gluten ataxia and you might find reading his information helpful. Nuerological symptoms without gastro symptoms
      http://www.ncbi.nlm.nih.gov/pubmed/20170845 Dietary treatment of gluten ataxia
      http://jnnp.bmj.com/content/74/9/1221.full Ubo's, Epilepsy And Celiac Testing for celiac disease usually starts with a blood antibody test and then a endoscopy to check for gut damage.  If a person has been off gluten for a while though, the tests are not much use.  The antibodies in the bloodstream start to drop off and may not be detectable anymore.  They usually say to eat gluten for around 12 weeks in that case before trying testing again.  I can understand why he wouldn't want to do that though considering his symptoms.  I am not sure it would be a good idea. Welcome to the forum and congrats on finding  away to improve his condition! If you turn on the notify me of replies slide button near the bottom left of the reply screen you can get an email when you receive responses to your thread. There is some helpful info in this thread about celiac disease.             
    • Genetic Results
      I have been looking for an explanation to what exactly I have, as my doctor just said that I have the genes that cause Celiac. They never went any further than that.... The wikipedia link makes some sense, but at the same time it does not. It almost seems like I have 1 full DQ2, and half of a DQ2?   Test: DQ Alpha 1 - 02:01,03 Test : DQ Beta 1 - 02:02,03:02 DQ Serologic Equivalent: 2,8 Method: Molecular typing of HLA antigens performed using reverse SSOP and/or SSP methods, reported as serological equivalents and low to medium resolution molecular values
    • Looking For A Family In The Houston Metro Area
      Maybe check if they have any local gluten free/ Celiac Facebook groups?  Someone just posted on ours for this same thing and got some responses.
    • Quinoa Well Tolerated In Patients With Celiac Disease - Science Daily (Press Release)
      Maybe not true for you....but that doesn't mean all Celiacs can't eat it.  Does it? 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,954
    • Most Online
      1,763

    Newest Member
    Olivia
    Joined