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#1 yitzw

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Posted 09 March 2005 - 08:55 AM

My wife was just diagnosed with celiac disease about a week ago. There's SO much info online, but it's too vast to assimilate. Is there anywhere someone knows of to get a "crash course" on celiac disease? My wife's doctor has not been really helpful - his whole explanation of the issue is that she'll have to stay away from wheat products and watch what she eats.

Are there different levels of celiac disease? Are the treatments the same anyway?

I see that many people with celiac disease get sick from gluten - so it's easy to see that in that case you'd need to be very careful. My wife (thankfully) gets no visible adverse reactions, but it causes her body to be unable to absorb vitamins properly. I wonder if that means she can have glutens occasionally?

HELP!

I'm a concerned and clueless husband!

Yitz Weiss
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#2 angel_jd1

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Posted 09 March 2005 - 09:13 AM

First of all I want to say WOW, you are a great husband for helping her with all this. That is great!! She needs your support now and you are doing a great job.

The best way to learn is just jump right in!! This is a good place to start, I have learned the most from message boards.

You are overwhelmed with information right now, but it does get easier. You will learn how to read labels, learn what brands to trust, and what foods are good and not so good. Hang in there.

If your wife has celiac disease then she needs to avoid gluten TOTALLY. There are not levels of celiac disease, but there are levels of villi damage. The villi are the little hair/finger like things in the intestines that help us absorb those nutrients. Once she begins on the diet and avoids gluten the villi can heal and she can begin to start feeling better and getting her vitamins and minerals.

Many people do not have symptoms, just like your wife. Or sometimes they do not have "typical" symptoms. There are over 200 symptoms associated with celiac disease.

Hang in there, things will become easier.
-Jessica :rolleyes:
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Jessica
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Kansas

#3 tarnalberry

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Posted 09 March 2005 - 09:22 AM

If she's celiac, she can't have gluten - period.

It can be a difficult change to make - it's certainly a big one - but there are plenty of ways of making it easier. The easiest way to start - in my opinion, and it's really just an opinion - is to keep out of the processed, pre-packaged foods. They have the additives and ingredients that are questionable. Stick to whole, natural foods that are gluten-free to begin with. That is, get your foods from the produce department (and meat counter, if you eat meat). There's plenty of fruit, vegetables (including starchy vegetables), and meats that will give plenty of fat, carbohydrates (and fiber), protein, and vitamins and minerals.

Then keep up with the reading, and learn about the other items that are gluten-free.
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
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#4 KaitiUSA

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Posted 09 March 2005 - 09:27 AM

It's great to see you so supportive.

What has been said I agree with...there are not different levels of celiac ...you have it or you don't . If you have it you must avoid all of gluten.

http://www.celiac.co...html?p_catid=12

This is the link to this sites safe list and forbidden list for celiacs which might help you as a guideline since she is first starting off. It can be overwhelming at first because there is so much that can contain gluten. It gets easier and you have sites like these that can help if you have any questions. Good luck :D
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Kaiti
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#5 plantime

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Posted 09 March 2005 - 11:04 AM

This site right here is where I have learned the most about celiac disease. After I fully explored this site, then I took time to look at other sites. celiac disease is an all-or-nothing disease. You either have it, or you don't. The only way to control it is to go completely glutenfree. Keep coming back, ask any questions you have, read, read, read! Your help is something that will be invaluable to her. My hubby and two teens help me read labels. Without them, I would have many more accidents than I do have.
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Dessa

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#6 lotusgem

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Posted 09 March 2005 - 06:51 PM

Dear Yitz,
as the others have said, it DOES get easier in time. There is so much that you can learn just using the internet. Know that now your wife will need to be mindful of other things such as shampoo, lotions, soap...topical preparations. Buy only the gluten-free brands. Also, licking stamps or envelopes should be avoided. Gluten can show up in many kinds of products. In my opinion, it is best to have a gluten free kitchen, otherwise, there will always be the danger of contamination. Things that you don't even think of, like buttering wheat bread, then dipping into a jar of jelly can make a Celiac sick (if she eats the jelly. ) We threw out our toaster and waffle iron, items that couldn't be immersed to be cleaned, and replaced them. An excellent cookbook that is immensely helpful is, "Living Well Without Wheat--The Gluten-Free Gourmet" by Bette Hagman. She is a Celiac, and is perhaps the most respected authority on the gluten-free diet. She has come up with some excellent recipes for baked goods as well as other dishes. She also explains how to avoid "hidden glutens" and describes the characteristics of the various gluten-free flours that are used in our baking. That is a fine start to becoming proficient as a gluten-free cook. My family has always enjoyed my cooking and that has not changed since they took up the gluten-free diet along with me. I am most grateful for their support, as I am sure your wife is for yours! You'll be fine.
Paula
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#7 Terri-Anne

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Posted 14 March 2005 - 07:06 AM

Welcome Yitz!
When we first deduced that my young son could no longer eat foods with wheat in them, I was totally overwhelmed! When you start reading labels, as your wife will be doing for the rest of her life, it seems wheat is slipped in almost everywhere!
I think the best 3 things I did to get a handle on what foods are safe to feed my son are:
1. Made an appointment with a Nutritionist/Dietician. We were very fortunate that she has a keen interest and knowledge about Celiac disease, and was able to give me so much information to look over and learn from, as well as answering my questions face to face. I think our first meeting was over an hour long, while my husband and I fired question after question at her, that she was able to answer fully and sympathetically. At our second meeting, she even brought a box of cereal as a little gift for our son! She was also able to give me a list of specific stores in our city that carry various gluten free products, as well as sample gluten free menu plans to get us started. She has made herself available via email any time for what ever questions pop up, and this is almost 3 years later!(We love you Ellie!)
2. Get in touch with a Celiac Support Group in your area if one exists. Ellie invited us to a Celiac Support Group meeting in our city, and offered us membership etc. Part of their membership package listed stores and which products you can buy where, ie store A may be best for buying soups at, where as store B is better for GlutenFree Flours. They discussed alerts over products that were once gluten-free but have changed ingredients, discussed travel experiences being gluten-free etc. Very informative and understanding of what your wife and yourself are going through.........they've ALL been there! They also have "meetings" where they get together and learn to cook/bake several gluten free recipes. When you try these things in a group, you pick up ideas you may not come up with on your own, and trying new ways/ingredients in your cooking is not as un-nerving! SO you might want to investigate to see if there is a Celiac Support Group in your area.
3. Visit Celiac.Com regularly!These folks are FULL of information and knowledge surrounding living a gluten free life. They are also a sympathetic ear when you need one, and celebrate your "little" triumphs, when they occur, with you! Come here often and ask as many questions as pop into your mind! Vent about how frustrating it is. Anything you say will be met with kindness and caring!I know this from experience!
So Welcome Yitz :D and may GOD BLESS YOU for being a caring and supportive husband. Remember this new way of eating is absolutely essential for your wife to maintain good health. Without it she is taunting cancer, thyroid disease, diabetes, and an almost endless list of ailments! Be her anchor when she feels like throwing in the towel! She'll need you! ;)
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#8 Rikki Tikki

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Posted 02 April 2005 - 07:36 PM

Welcome Yitz:

I agree with all of the above. Just don't be fooled into believing she can eat gluten once in a while, it does a lot of damage that she may not be able to see or feel now, but years from now it will take a toll on her body. It can cause infertility and many other problems.
Just take it slow and you will learn a lot of information from everyone on this site.
Sally
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#9 jmj0803

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Posted 03 April 2005 - 12:13 PM

Yitz-

This website might help you start out Wheaton gluten-free foodlist. I used it alot when my daughter was first diagnosed. It gives you listings of mainstream and specialty gluten free products. Hope this helps!
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Jessica

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9/05 Diagnosed Hypothyroidism
2/16/05 Biopsy diagnosed Celiac
8/14/06 Diagnosed Addison's Disease also known as Adrenal Insufficiency


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