Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Anyone With Celiac Also Have Oral Lichen Planus?
0

4 posts in this topic

Hi there all :)

I'm a newbie and I think it is wonderful that websites like this exist helping people understand and share experiences which otherwise might be a very lonely time not to mention, frightening and uncertain.

I was wondering if anybody here also suffers from oral lichen planus?

I was diagnosed in 2007 with oral lichen planus and then that November I had an overwhelmingly postive blood test for celiac disease. I had a biopsy taken early January 08 but the biopsy showed only minor atrophy of the villi. My specialist could not recommend me to go gluten free due to the biopsy but I know the blood test itself is substantial enough on its own.

I did go gluten free for three months at that stage but because I didn't really notice any of the more familiar symptons I thought perhaps, maybe, more like hoping that perhaps the blood test was simply a red herring and it could have possibly been mistaken for something else. I decided though to go gluten free mid March this year because I had diahorrea only in the mornings mainly since Xmas time.

However I got a bad chest infection just after going gluten free and with it, I experienced a very bad episode of reflux and heartburn which previously I never had. I am also continuing to lose unnecessary weight. (I wish I had more meat on my bones to say yeah but unfortunately I don't lol) On top of all this, I had a chest x-ray on Saturday just to check that I didn't have pneumonia and it was noted that I have over inflated lungs due to asthma possibly although I've never used an inhaler to date.

What I really wanted to know if anyone else out there suffers from this horrible condition oral lichen planus and how does this sit alongside their gluten sensitivity issue. I really find the lichen planus plays absolute havoc with my body, with all the inflammation and I would be interested to know if anyone else has similar experiences.

Thanks everyone for taking the time to read this and I hope to make some wonderful celiac friends.

kind regards

Whiterabbit

0

Share this post


Link to post
Share on other sites


Ads by Google:

Here is a copy of a post dated 4-15-2008 from another Lichen Planus thread (Actually a lichen Sclerosis post).

---------------------------------------------------------------------------------

This is so wierd. I had a strange skin condition about 20 years ago. It was only one small, smooth circle about the diameter of a cigarette. It didn't itch or cause me any physical problem. But, it was on a certain private part of my anatomy that immediately resulted in me totally freaking out. I was certain that God had inflicted me with a rebuke of my careless (albeit limited) behavoir.

My personal doctor had no idea what it was, and so referred me to a dermatologist who identified it in short order. Lichen Planus. It is not contagious (so I didn't "catch" it from anyone), and it's origin is not known. It is thought to be related to your disorder, but is a separate and less severe malady. It is said to be aggravated by eating toast, and crunchy foods such as cereals and chips, etc. DUH, I was the toast and all things crunchy fiend. Crusty bread chief amongst my many bread obsessions. They give you a topical cortasteroildal cream which makes it go away. But, here's the kicker, it's an autoimmune disorder. Granted, there are many autoimmune disorders. But still, given that I now have bonafide Celiac Disease, maybe there was an early connection.

This is the first I've ever heard either of these skin conditions mentioned here. Thanks for your post.

best regards, lm

---------------------------------------------------------------------------------

I didn't mention it in that post, but at the same time, I also had some oral symptoms. That's how the dermotologist diagnosed it. There were white lines on the inside of my cheeks. No pain or discomfort of any kind, and they went away after a while, never to return (as far as I know).

best regards, lm

0

Share this post


Link to post
Share on other sites

Hi im :-)

That's really interesting to hear that your white patches just disappeared never to return - great news :-). With my lichen planus I also have the white spidery marks on the cheeks which don't give me much trouble but it is the mouth ulcers (canker sores) along the tongue and the burning/inflammation of the tongue that really plays havoc with my health.

I feel like this dog lol I know when I'm feeling unwell because my tongue gets really hot and I usually put it between my teeth and I can feel the heat hence my unwellness factor climbs up several notches. I am thinking though that my hormones also have a big role to play in this as usually my best week in my month is the week just before my cycle kicks in - if only I could 'always' feel that way I'd feel like superwoman compared to how I feel right now.

Thanks for replying :-)

cheers

whiterabbit

0

Share this post


Link to post
Share on other sites

I just got diagnosed with lichen planus about five days ago and was looking for information about that together with celiacs and came across your post.

I've seen a lot recently about people with celiacs having oral ulcers, though the dentist I saw said she didn't believe the two were related (I'm not convinced). It doesn't seem like gluten is playing a role in my outbreaks though because I am super careful with my diet and mostly eat only food I've prepared myself.

The lichen planus is miserable though. I was to the point of not being able to eat at all. Prednisone is clearing it up, but now I'm dealing with the side effects from that...

quote name='whiterabbit' timestamp='1241168132' post='529801']

Hi there all :)

I'm a newbie and I think it is wonderful that websites like this exist helping people understand and share experiences which otherwise might be a very lonely time not to mention, frightening and uncertain.

I was wondering if anybody here also suffers from oral lichen planus?

I was diagnosed in 2007 with oral lichen planus and then that November I had an overwhelmingly postive blood test for celiac disease. I had a biopsy taken early January 08 but the biopsy showed only minor atrophy of the villi. My specialist could not recommend me to go gluten free due to the biopsy but I know the blood test itself is substantial enough on its own.

I did go gluten free for three months at that stage but because I didn't really notice any of the more familiar symptons I thought perhaps, maybe, more like hoping that perhaps the blood test was simply a red herring and it could have possibly been mistaken for something else. I decided though to go gluten free mid March this year because I had diahorrea only in the mornings mainly since Xmas time.

However I got a bad chest infection just after going gluten free and with it, I experienced a very bad episode of reflux and heartburn which previously I never had. I am also continuing to lose unnecessary weight. (I wish I had more meat on my bones to say yeah but unfortunately I don't lol) On top of all this, I had a chest x-ray on Saturday just to check that I didn't have pneumonia and it was noted that I have over inflated lungs due to asthma possibly although I've never used an inhaler to date.

What I really wanted to know if anyone else out there suffers from this horrible condition oral lichen planus and how does this sit alongside their gluten sensitivity issue. I really find the lichen planus plays absolute havoc with my body, with all the inflammation and I would be interested to know if anyone else has similar experiences.

Thanks everyone for taking the time to read this and I hope to make some wonderful celiac friends.

kind regards

Whiterabbit

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,341
    • Total Posts
      920,478
  • Topics

  • Posts

    • As a GI specialty nurse who also has celiac I can tell you that it can not be diagnosed by CT and rarely unless you have severe disease can it be diagnosed by colonoscopy.  Those that have had it diagnosed by colonoscopy have such because their MDs were above to get into the small bowel from the bottom and take biopsys.  Celiac damage is not seen in the large intestine.  Also many people do not have diarrhea, many have constipation or a 50/50 mix between the two.  Celiac has 300 connected symptoms and sometimes no symptoms at all.  It's called the " great pretender" because of this.
    • Okay, thanks! I am 24 but my husband and I don't plan on having kids. However, the more I thought about it, the more I think I should get one for my brother's sake. Especially after my doctor's office called this evening to say my bloodwork tested positive for Celiac. Guess I will be on this forum longer than I thought!
    • You just got diagnosed Celiac and are wondering how serious this really is. What if there is just a little gluten in your food? What if you use the same toaster for your gluten-free bread as your wife's/husband's regular bread? What if those french fries are gluten-free but they fry them in the same fryer as those nice gluten coated onion rings? View the full article
    • Hi, I've never been on a forum before but thought I might find some answers here.  I have never been tested for celiac but a nurse practitioner I saw a few years ago told me she thought I would benefit from a gluten free diet.  At first, I thought I could never do this but after some encouragement I did try.  I did feel much better after going gluten free.  She never tested me for celiac. I turned 50 years old last year and I had a colonoscopy for the first time and had three polyps removed.  The surgeon said that my colon looked like I was a chronic laxative user.  I haven't used a laxative for a very long time.  I was at the time drinking a natural tea to help me to have bowel movements.  Before starting the tea I had always had difficulty with bowel movements and never had them once a day but with the tea I was able to go once a day. At the end of last month I developed severe pain after I would eat (I had my gallbladder removed at the age of 19).  One night the pain got so bad my husband had to drive me to the ER.  My liver functions were high as well as a few other things.  They did a CT scan of my abdomen and pelvis that showed wall thickening of my transverse colon and minimal irregularity involving the transverse colon.  My descending and sigmoid colon were collapsed.  There were a few tiny mesenteric lymph nodes present on the right.  They diagnosed me officially with colitis but said that most likely I had a gallstone (even though I don't have a gallbladder) that had come from the liver and had gotten stuck in the common bile duct (it did not show up on the CT scan).  I usually have a high ferritin level too.  I've been home from the hospital stay for about a month now and still have tenderness in the epigastric area. Some of this may not have anything to do with celiac but was wondering if anyone has been diagnosed with celiac by CT scan or colonoscopy or if anyone has had the same problems that I have had and found out what has caused it.  I cannot see the gastroenterologist who saw me in the hospital for a couple of months.  Can you have celiac and not have diarrhea as I am just the opposite? Any help would be appreciated!  Thanks!  
    • I had an acne flair up after going gluten free but it ended up improving and some long-term back acne I had been dealing with actually went away.  I think going gluten free was a shock to my system and at first I actually felt worse but after about a month things got better. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,411
    • Most Online
      1,763

    Newest Member
    Aly46
    Joined