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How Long For Gluten Attack To Show

lovelylisadiving

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lovelylisadiving Newbie
lovelylisadiving
Posted

I have self diagnosed my 11 month old daughter as a celiac kid. Going to doc later this month. I thought I had her gluten free for about 1.5 weeks now, but last night she had a bad bowel movement, reminisent of her gluten days. Trying to figure out what she ate that unknowingly that had gluten in it. Was it something she ate yesterday or could it have been from a day or two earlier? How long does it take for gluten food to upset the instestine? Thanks in advance for your comments...

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Kim27 Contributor
Kim27
Posted

I'm going to say that the general consensus on here is that gluten symptoms vary from person to person. There is a no definite timeline.

HOWEVER a VERY important point for you to know... Since you noted that your daughter is going to the doctor later this month and you have already taken her off gluten. It is VERY important that someone being tested for Celiac has been eating foods containing gluten prior to being tested. If she has already been gluten free prior to being tested, her test results will be skewed, and they will show a false negative, when she really might have it. If you truly think your daughter has Celiac, it is important that she continues eating gluten up until her appointment and testing, or the testing will be worthless.

lovegrov Collaborator
lovegrov
Posted

Note that if you're hoping to get your 11-month-old tested, don't bother. Testing is NOT accurate at that young of an age. Most agree you must be at least 2, and many think even older

richard

SweetDsMom Newbie
SweetDsMom
Posted

On the "there has to be Gluten in her system" front - my DS was diagnosed w/ celiac by his regular pedi almost 2 weeks ago. But this was after they drew blood and ran a celiac panel on it. All of the results were very high for celiac.

We immediately took him off gluten and saw a change w/in a day or two. We had an appt the following week (last Friday) w/ a pedi GI. As we already had the blood drawn, he did NOT need for DS to still be on Gluten and he even said "You took him off Gluten last week, right?".

We will still eventually have to have an endoscopy done, but not until he is healthy and back up to speed.

As for the age thing - I've been told the same thing. 2 years. However, at 17 months, he was VERY SICK for over a month and once we took him off gluten, there was a marked change. He was still malnourished, though, and was in the hospital over the weekend. From that, he is now SO MUCH BETTER than he's been in a month.

If you truly think there is an issue, the pursue it and do what you need to do to make sure your child is safe and healthy (I can't imagine what would have happened if we did nothing for him because "oh, he's not 2. We can't really know if he has celiac or not").

BUT- in pursuing it, at least go to your regular pedi and get a celiac panel run. Which, again, they WILL need gluten to be in her system.

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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