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How Long For Gluten Attack To Show

lovelylisadiving

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lovelylisadiving Newbie
lovelylisadiving
Posted

I have self diagnosed my 11 month old daughter as a celiac kid. Going to doc later this month. I thought I had her gluten free for about 1.5 weeks now, but last night she had a bad bowel movement, reminisent of her gluten days. Trying to figure out what she ate that unknowingly that had gluten in it. Was it something she ate yesterday or could it have been from a day or two earlier? How long does it take for gluten food to upset the instestine? Thanks in advance for your comments...

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Kim27 Contributor
Kim27
Posted

I'm going to say that the general consensus on here is that gluten symptoms vary from person to person. There is a no definite timeline.

HOWEVER a VERY important point for you to know... Since you noted that your daughter is going to the doctor later this month and you have already taken her off gluten. It is VERY important that someone being tested for Celiac has been eating foods containing gluten prior to being tested. If she has already been gluten free prior to being tested, her test results will be skewed, and they will show a false negative, when she really might have it. If you truly think your daughter has Celiac, it is important that she continues eating gluten up until her appointment and testing, or the testing will be worthless.

lovegrov Collaborator
lovegrov
Posted

Note that if you're hoping to get your 11-month-old tested, don't bother. Testing is NOT accurate at that young of an age. Most agree you must be at least 2, and many think even older

richard

SweetDsMom Newbie
SweetDsMom
Posted

On the "there has to be Gluten in her system" front - my DS was diagnosed w/ celiac by his regular pedi almost 2 weeks ago. But this was after they drew blood and ran a celiac panel on it. All of the results were very high for celiac.

We immediately took him off gluten and saw a change w/in a day or two. We had an appt the following week (last Friday) w/ a pedi GI. As we already had the blood drawn, he did NOT need for DS to still be on Gluten and he even said "You took him off Gluten last week, right?".

We will still eventually have to have an endoscopy done, but not until he is healthy and back up to speed.

As for the age thing - I've been told the same thing. 2 years. However, at 17 months, he was VERY SICK for over a month and once we took him off gluten, there was a marked change. He was still malnourished, though, and was in the hospital over the weekend. From that, he is now SO MUCH BETTER than he's been in a month.

If you truly think there is an issue, the pursue it and do what you need to do to make sure your child is safe and healthy (I can't imagine what would have happened if we did nothing for him because "oh, he's not 2. We can't really know if he has celiac or not").

BUT- in pursuing it, at least go to your regular pedi and get a celiac panel run. Which, again, they WILL need gluten to be in her system.

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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