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I Thought I Was Allergic To Sulphates In Shampoo...but
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I only found out I had Celiac 6 days ago!!! I have been HORRIBLY sick for YEARS now, but my doctor and I never put all the clues together till now.

Anywho, about 5 years ago I started getting a HORRIBLE rash on scalp. Almost like psorriassis (SP?). It hurts, itches...BADLY!!! I have since then seen changed to organic shampoo and the problem isn't 'as bad' but still there. I get flaky almost like dandruff. My head is a mess. I am constantly in pain, with teeny blisters. They travel down my neck sometimes.

Because I only found out 6 days ago about the celiac, could it be Dermatitis Herpetiformis this whole time? I of course don't know much about it. Is there medication to take for this?

I see my doctor tomorrow, so I will discuss it with him. Just wanted to post about it to see what everyone thought.

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It very well could be. The teeny blister part and the pain are consistent with DH. The location is consistent as well. I too thought I was allergic to many ingredients in soaps and shampoos, but it was gluten. If it really is the case, the sores should stop hurting soon after going gluten free. A bit longer to heal. Iodine is an activator of DH.

Welcome to your recovery. I'm glad you found out what was wrong. I too was sick for years. Recovering now 4 months. Would not be well without this site. Keep reading. :)

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Yes, I agree that your symptoms are consistent with DH. However, you might also be suffering from a zinc deficiency, so you might ask your doctor to test you for that (zinc deficiency can cause flaking of the scalp). If you are indeed deficient in zinc, be sure to buy the amino acid chelated form.

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Thank you for your replies. I have my first official follow up with my doctor tomorrow, as my results were read over the phone to me. I will be going in depth with everything so I will bring this portion up with him as well. He prescribed some medication to me a couple years ago for this issue (thinking it was a sulphate allergy reaction), so he is already familiar with it. If it is DH, then I guess there is another approach to take.

I will update when I get back tomorrow afternoon. Thank you :D

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Thank you for your replies. I have my first official follow up with my doctor tomorrow, as my results were read over the phone to me. I will be going in depth with everything so I will bring this portion up with him as well. He prescribed some medication to me a couple years ago for this issue (thinking it was a sulphate allergy reaction), so he is already familiar with it. If it is DH, then I guess there is another approach to take.

I will update when I get back tomorrow afternoon. Thank you :D

The best approach with DH is avoiding gluten strictly and also iodine. If the doctor suggests dapsone do read on it throughly. It can have some nasty side effects. The diet and avoiding iodine will clear up DH nicely without meds but it does take some time for the antibodies to leave the skin so for awhile you may get flares when you get even small amounts of gluten. Do switch to topicals without gluten.

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    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
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