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What To Do Now That I'm Pregnant


parrfunkel

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parrfunkel Newbie

I posted recently about and got some advice but my situation has changed. I have been gluten free for a little over 2 months trying to resolve reflux/bloating/gas issues. I am not sure if gluten is an issue as I still have symptoms. Some have improved, but not gone away entirely. I also have hashimoto's and have read a great deal about the possible connection between gluten intolerance and hashi's.

I was scheduled for an endoscopy, but it has been canceled as I just discovered that I am 5 weeks pregnant. My internist was the one that originally suggested the diet, but didn't really recommend testing because false negative rate is so high. She felt it would be better to just try to diet. I'm now seeing a gastro and she wants to run a blood panel but she knows I haven't been eating gluten (why do some dr.'s just not get that this won't work?). Supposed to go back and see her this week to discuss what we will do now that I can't have the scope.

My original plan was to go 3 months gluten free and then reintroduce. Now I'm thinking I should wait until the end of the first Trimester. As I mentioned, I don't know for sure if gluten is an issue for me. I'm concerned that if it is and I have a reaction, it could cause problems with the pregnancy. Especially if a reaction to gluten could cause an increase in anti-thyroid antibody levels.

I plan to discuss this with my Gastro, Internist and OB over the next few weeks. Just wanted to see if you all had any advice.


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tarnalberry Community Regular

Celiac antibodies can attack the placenta, it can reduce the nutrients available to your baby, increase the chemical stress load on the fetus, and more.

In this situation, my opinion on what I would do is to stay STRICTLY gluten free for the duration of the pregnancy (whether or not to do this during the duration of breastfeeding is another question to consider). Why would I suggest that? Assuming you otherwise eat a healthy diet (not that hard to do while gluten free once you are past the learning curve) and are taking your prenatal vitamins (many women rely on fortified cereals and breads to get enough folic acid), the potential risk of eating gluten if you are celiac outweighs (in my mind) the potential benefit of avoiding gluten even if you are not celiac.

A few references, there are lots more available if you look:

1) Open Original Shared Link Coeliac disease and unfavourable outcome of pregnancy, CONCLUSIONS

parrfunkel Newbie

Thank you for the information. Gives me even more to think about

ravenwoodglass Mentor

I agree strongly with Tiffany. Wishing you the best.

Jungle Rookie

I think staying gluten free while pregnant is the safest way to go. If you are celiac then you are giving your body and baby the best of what it needs. If you are not celiac you are still giving the baby a healthy diet. On the other hand if you eat gluten and you are celiac then you and your baby are not getting what you need.

Your testing may still show positive. But if it is negative then you may still be positive.

Try and relax and enjoy your pregnancy. It is the most amazing time. Giving life to and feeling that sweet baby moving around is the best.

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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