Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need A Reason Not To "cheat" On Diet


thleensd

Recommended Posts

thleensd Enthusiast

I know that some of us here (like myself) went through horrendous experiences and will therefore never knowingly touch gluten again. However, I know some people were diagnosed and didn't have many symptoms to speak of and don't get a physical reminder if some gluten slips in.

I'd like to be able to offer something concrete to someone I know that cheats once in a while since they don't get a reaction. Are there stories here or elsewhere I can point her to? She's smart, but young, away from home, and invincible. I can't just say, "you might get cancer" (like trying to tell a smoker to quit...). I don't think she'll come on here and browse on her own.

Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

If she knew there were a violent man who hated women, and loved to torture them, loose in the neighborhood, who had just escaped from jail, would she walk the streets alone at night? That is the equivalent of what she is doing, the kind of risk she is taking, if she continues to eat gluten. He may not find her, but if everyone else is indoors safe, he very well might. That is the kind of risk she is taking. If she is not afraid of harm, is not afraid of dying a tortured death, well I guess that is her business. There is nothing you can do to protect her. She may say she is a karate master and can defend herself - well, good luck. You can only fight back against gluten by avoiding it.

Not much help I am afraid for someone who won't listen.

adab8ca Enthusiast

and unfortunately you cannot make anyone do things they don't want to...i was clearly sick for a LONG time without symptoms since the damage was so horrendous but if I had known sooner, I maybe could have avoided the HELL i am in right now. When it hit, it hit me hard and I was 42. Thought I would end up in a wheelchair from neurological symptoms. This diagnosis is a GIFT. She can avoid SO much trouble...Too bad she can;t come live in my broken body for a bit to see what her future likely holds.

sb2178 Enthusiast

Well, I lost almost 6% of my bone density 14 months, and of that time I was only clearly symptommatic for 2. Do the math, and she'll have stress fractures and non-traumtic breaks within 10 years. Yay, hip fractures in your thirties and forties! (Those results were very weird. Scared me silly, and it was just incidental that I worked in a research center and happened to demo/teach the scanner twice.)

Anemia is also insidious-- you adjust to the new "normal" but it is not normal to be out of breath after going up two flights of stairs at a normal pace.

Or maybe she'll develop a higher sensitivity and that problem will solve itself? Not that I actually wish that on anyone.

color-me-confused Explorer

Well, I lost almost 6% of my bone density 14 months, and of that time I was only clearly symptommatic for 2. Do the math, and she'll have stress fractures and non-traumtic breaks within 10 years.

Wow. That's a frightening rate - I had no idea that such bone loss was possible so quickly. I meet w/ my GI doc in 3 weeks and the gene test and a bone scan for a baseline on my list.

annegirl Explorer

Well, cancer isn't as far out as she might think. I just lost a friend to cancer at 35. He had Crohn's not Celiac, but it's similar enough to be scary (I have another friend with Crohn's that manages her disease by being gluten free).

He was sick at 32 with cancer, got it to go into remission and then it came back right after he met his girlfriend. He passed away a month ago.

It's just not worth it to mess around with your life. It might seem ok when you're young....but it will bite you in the butt later.

This from a girl who NSAID her way to leaky gut at 15 {braces hurt!} and suffered through 13 years of chronic pain, illness and allergies before discovering what the underlying issue was.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,439
    • Most Online (within 30 mins)
      7,748

    Lillian Steele
    Newest Member
    Lillian Steele
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.