Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pain Right Under Diaphragm


Chad Sines

Recommended Posts

Chad Sines Rising Star

It seems that people have pain all over the place. I have the same issues but when it is worst, I feel a semi-pain right under my diaphragm, over liver area (had GB removed many years ago) right where one might say a GB pain was coming from. That area is always sensitive to touch. Apparently I am finding gluten in foods I think are safe, grr. Do others experience discomfort/pain in this area as well? Do digestive enzymes help at all? I have heard say that the fat metabolism could be goofed because of no GB so I was wondering about the enzymes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



quincy Contributor

That is where my pain first began last year before my scope. I thought it was my GB and want on a bread and pasta diet to quiet my GB down! little did I realize I went on an unintended gluten challenge! have you had a recent scope? Mine showed significant irritation at the base of esophagus where meets stomach, hiatal hernia causes the acids to come up into esophagus and can cause tenderness in that spot. this is all conjecture on my part.

I have also heard that some can have bile salts empty into intestines and cause considerable pain, especially if you have GB removed.

have you just been diagnosed w celiac? how long on gluten free diet? I found digestive enzymes very helpful. after i began to heal I stopped taking them but I have had recent problems and am thinking of restarting...

Chad Sines Rising Star

I had a GI suggest it years ago and then that was the end of it although she did some blood work (never heard back) that I am trying to get a hold of. At the time I did not know enough to pursue it more. I just assumed the issues were post-GB removal issues. I had all the symptoms for a year with the worse being nausea, vomiting, dizziness, anxiety, brain fog 24/7. After a year that comment of "you ever been tested for celiac" dawned on me, so I just gave gluten free a try since there are no meds for it. Within 2 days I was 90% better. I went from multiple daily barfing to maybe once a month and that seems to be from accidental goods. Before the change I was a gluten eating machine. Whenever my issues died down I just ate whatever was quick and easy not knowing it might be hurting me. It has been about 3 months now. I get glutened at times not realizing it and think I need to eliminate corn, milk, and soy as each seem to cause me issues.

I am really burnt out on the docs as after 10+ years none had any clue except that passing comment. I have read better "medical" advice on these forums. At some point I will talk to a new GI, but I am in no hurry and do not want to have to introduce gluten just to be scoped. I am considering the test people recommends. The change works for me and I am 100% gluten-free unless it is an honest accident. Whether gluten intolerant, wheat allergy or Celiac, I am treating as if Celiac and being extremely diligent as the reminders of the year past keep me on track.

MrMatchStick Newbie

These kind of pains are hard to pin point in my celiac experience. I had gone through a whole battery of probing and tests for years from doctors that never found an answer. For years I was having severe pain which I thought was coming from my heart and was eminating from that area. After I learned I had celiac disease I found out most of the pain was from gas buildup in my intenstins and stomach. The actual spot that was causing the pain was in my lower abdomen but I was feeling it in my heart/upper stomach area.

Now that I know when I have pain in my stomach area (which is rare because I follow the diet) I press on my intenstines and it somehow gives a little relief.

To sum it up....probably gas buildup due to the fact that your body is not properly digesting the food.

Igg postive Rookie

It seems that people have pain all over the place. I have the same issues but when it is worst, I feel a semi-pain right under my diaphragm, over liver area (had GB removed many years ago) right where one might say a GB pain was coming from. That area is always sensitive to touch. Apparently I am finding gluten in foods I think are safe, grr. Do others experience discomfort/pain in this area as well? Do digestive enzymes help at all? I have heard say that the fat metabolism could be goofed because of no GB so I was wondering about the enzymes.

I had my gallbladder removed a few years ago and that is were my pain was the worst before I went on GFD. It could be that area was more sensitive to the intestine bloating? I have been on the GFD over a month (just started the FODMAP diet for food intolerances) and the pain has eased off. How long have you been on the GFD?

  • 1 month later...
Chad Sines Rising Star

I just now saw your reply. I went gluten-free in about March with some challenges to it since I was not officially diagnosed. Each time about 1-2 days later and sometimes earlier I notice I am a dingbat. Sunday I had a small piece of cake and yesterday I ate at KFC (famous bowl). So blechy now.. Bad Chad. My discomfort is definitely over the liver area. I have a hiatal hernia a well.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.