Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Went Shopping


BobbyKat LittleCub

Recommended Posts

BobbyKat LittleCub Rookie
:angry:I went shopping, and came home angry. I was already forbidden too much with my food allergies and the diabetic, cardiac low sodium diets. This celiac diet is so much worse. It's also frustrating to go shopping with a list of foods that are gluten free only to find they're out said items. I'm finding it hard to keep a balance of everything without being left hungry. I'm sure many of you are in the same boat, and have learned to deal with it. I suppose I will eventually learn too. -End rant.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

I'm sorry that you are having a difficult time with shopping. It does get so much easier. There are SO many gluten free things to eat. All meat, veg and fruit!

What are somethings that you like to eat? Maybe we can steer you in the right direction.

Gluten Free Traveller Newbie

I know it's hard to see it now but it really does get so much easier. When I'm eating at home I forget I'm celiac as there are so many things that I can still have. There are also lots of new things I'd never even heard of before that I now eat. What were you looking for that the store didn't have? What would you eat before? Almost anything can be made gluten free if we know what kind of things you like.. :)

Marilyn R Community Regular

BobbyKat,

You came to the right place to rant. I hear you. And I'm really impressed that you were just P.O., not crying your eyes out like I used to when I first started grocery shopping. I'll echo previous posts, it really does get so much easier. In fact, you'll spend much less time grocery shopping.

Wish you well.

Monklady123 Collaborator

It will get better. Really. :)

The thing I've learned after being gluten free for a bit over a year now, is that I just have to "suck it up" (as my kids say) and cook. If you think about cooking from scratch then just about everything is gluten free. In fact, the only things that are not gluten free are wheat, barley, rye. (and probably oats.)

So you can eat all meat, all vegetables, fruit, legumes, dairy. Everything. (unless you have some other sensitivities of course). I hate to cook, but I'm amazed at how good I feel if I do. I often "cheat" and use things like canned vegetables -- if I can't get fresh corn then I like canned corn better than frozen. On the other hand I'd never eat canned peas. :ph34r: But frozen are good. So it's pretty easy for me, the I Hate To Cook gal, to cook some chicken in a pan with some spices or maybe a can of stewed tomatoes, cook rice, steam a veggie and there you go.

The problems for me were finding a decent bread, and finding a cracker. I have found them, finally. Udi's or Rudi's, and Glutino's crackers. That cracker is the closest I've found to a regular type like Ritz or that kind, like we'd put sliced cheese on.

It is difficult to always have to read labels, and to find substitutes for things like say creamed soup if you liked to cook with that before. I discovered a gluten free boxed cream soup in the regular soup section, and then I thickened it with corn starch and it worked great. So now I know and it doesn't take me any time to shop since I know where to look. (I'm still paranoid enough though to glance at that label anyway. lol)

Well, sorry, kind of long-winded. I guess the short answer is that it gets easier, and if you cook "from scratch" then almost everything is gluten free.

sb2178 Enthusiast

Mail order! Once you've tasted something, note your thoughts and then you can mail order the things you like in bulk.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HelenH's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Malt vinegar

    2. - Scott Adams replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      55

      Supplements for those Diagnosed with Celiac Disease

    3. - Scott Adams replied to MoniqueCham's topic in Related Issues & Disorders
      2

      Celiac Disease, Lymphocytic colitis and Bowel rupture

    4. - KelleyJo replied to HelenH's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Malt vinegar

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,548
    • Most Online (within 30 mins)
      7,748

    Paulette Ryan
    Newest Member
    Paulette Ryan
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • HelenH
    • Scott Adams
      Yes, unfortunately malt vinegar can definitely trigger a strong reaction in people with celiac disease. Malt vinegar is typically made from barley, which contains gluten, and unlike distilled white vinegar, it is not considered gluten-free. Even a small amount — especially if you’ve been strictly gluten-free for years — can cause a more intense reaction because your body is no longer accustomed to exposure. Many people report significant symptoms after accidental ingestion, including abdominal pain, diarrhea, fatigue, or flu-like feelings. You’re not alone in that experience. It may help to be especially cautious with salad dressings, chips, sauces, and restaurant foods, where malt vinegar is sometimes used.
    • Scott Adams
      A diagnosis of Refractory Celiac Disease Type 2 is a lot to absorb, especially if you feel like the severity wasn’t clearly communicated earlier. It’s understandable to feel shocked and frustrated. RCD Type 2 does require close specialist care, often with a gastroenterologist who has experience managing complex celiac cases, and sometimes coordination with hematology because of the immune cell changes involved. Focusing on nutrition is absolutely important — many people benefit from working with a registered dietitian who specializes in celiac disease to help address malabsorption, weight loss, and vitamin or mineral deficiencies. You’re doing the right thing by seeking information and support. Make sure you feel comfortable asking your care team direct questions about your biopsy results, treatment plan, and monitoring strategy — you deserve clarity and a coordinated approach.
    • Scott Adams
      I’m so sorry you’ve been through all of that — that’s an incredibly complex history. While methotrexate is widely used at low weekly doses for autoimmune conditions, it can, in rare cases, cause serious gastrointestinal side effects, including ulceration, mucosal injury, or even perforation. That said, a spontaneous sigmoid rupture from methotrexate at 15 mg weekly is extremely uncommon. In people with celiac disease — especially refractory celiac — there can already be underlying intestinal inflammation or altered mucosal integrity, which might theoretically increase vulnerability, but there isn’t strong published evidence clearly linking stable celiac disease to a markedly higher risk of methotrexate-related bowel perforation. Other factors such as concurrent inflammation, vascular compromise, infection, steroid use, or microscopic colitis may also contribute. It would be reasonable to review the case with a gastroenterologist familiar with refractory celiac and possibly a rheumatologist, and to report the event as a potential adverse drug reaction. I’d also be very interested to hear if others in the community have had similar experiences.
    • KelleyJo
      Yes,  I've reacted to malt anything . . . it does come from barley.  I'm super careful to avoid anything containing malt or even maltodextrin unless it's labeled from corn.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.