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Never Let Anyone Tell You This Isn't Serious

bonnie blue

By bonnie blue
in Coping with Celiac Disease

Recommended Posts

T.H. Community Regular
T.H.
Posted

Oh so glad to hear you caught it early.

Kick that cancer's butt, hon. Stomp it flat.

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lucky28 Explorer
lucky28
Posted

Glad to hear it's only in early stages! Glad to hear your dr wants u to get a port (it makes the chemo easier~saves your veins!) Kick that adenoma to the curb! Keep us updated~

yorkieluv Newbie
yorkieluv
Posted

I am so sorry about your diagnosis but so glad it's in the early stages. Hang in there with your treatment and keep us updated.

Di2011 Enthusiast
Di2011
Posted

My Nan's name was Bonnie :) I wish you well and lots of "good" Bonnie.

"The name Bonnie has two meanings:

1. It is derived from the Scottish word "bonnie" meaning "pretty, attractive". The Scottish word is derived from French "bon, bonne" meaning "good".

India Contributor
India
Posted

I've been thinking about you a lot since I read your post and I'm so glad that you've had such positive news. Good luck to you xx

Reba32 Rookie
Reba32
Posted

wow Bonnie, it sounds like a rough road ahead! I had no idea they could build a stomach out of intestines :unsure:

Best healing thoughts and prayers to you, and wishes for a speedy recovery. {{{hugs}}}

and if I were you, I'd think about suing the doctors that told you it's all in your head. Had they taken you seriously, it's possible there would have been less damage and you may not have had to have your entire stomach removed. :blink: At the very least, send them a copy of your dx, and tell them to be more diligent in future so the same doesn't happen to someone else :(

cougie23 Explorer
cougie23
Posted

Wonderful news that it's in the early stages and there is treatment for you. You advocated for yourself and got answers quickly.

You can beat this. Cancer is treatable these days.

Do everything you can to support yourself nutritionally too. I started juicing lots of green veggies and then adding apples, carrots and oranges to flavor it up. It is helping me a lot.

Hang in there and keep posting when you need us.

Just a reminder- Juice your greens yourself...the greendrinks in the stores(even the healthy ones) have gluten in them...their one of the few health drinks that do!

Hang in there! :D(naked juice, green machine,,ect.,ect.)

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  • Posts

    • Hmart
      Is this celiac?

      By Hmart · Posted

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      Fiber Supplement

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    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

      By knitty kitty · Posted

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    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
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