Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Never Let Anyone Tell You This Isn't Serious

bonnie blue

By bonnie blue
in Coping with Celiac Disease

Recommended Posts

T.H. Community Regular
T.H.
Posted

Oh so glad to hear you caught it early.

Kick that cancer's butt, hon. Stomp it flat.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lucky28 Explorer
lucky28
Posted

Glad to hear it's only in early stages! Glad to hear your dr wants u to get a port (it makes the chemo easier~saves your veins!) Kick that adenoma to the curb! Keep us updated~

yorkieluv Newbie
yorkieluv
Posted

I am so sorry about your diagnosis but so glad it's in the early stages. Hang in there with your treatment and keep us updated.

Di2011 Enthusiast
Di2011
Posted

My Nan's name was Bonnie :) I wish you well and lots of "good" Bonnie.

"The name Bonnie has two meanings:

1. It is derived from the Scottish word "bonnie" meaning "pretty, attractive". The Scottish word is derived from French "bon, bonne" meaning "good".

India Contributor
India
Posted

I've been thinking about you a lot since I read your post and I'm so glad that you've had such positive news. Good luck to you xx

Reba32 Rookie
Reba32
Posted

wow Bonnie, it sounds like a rough road ahead! I had no idea they could build a stomach out of intestines :unsure:

Best healing thoughts and prayers to you, and wishes for a speedy recovery. {{{hugs}}}

and if I were you, I'd think about suing the doctors that told you it's all in your head. Had they taken you seriously, it's possible there would have been less damage and you may not have had to have your entire stomach removed. :blink: At the very least, send them a copy of your dx, and tell them to be more diligent in future so the same doesn't happen to someone else :(

cougie23 Explorer
cougie23
Posted

Wonderful news that it's in the early stages and there is treatment for you. You advocated for yourself and got answers quickly.

You can beat this. Cancer is treatable these days.

Do everything you can to support yourself nutritionally too. I started juicing lots of green veggies and then adding apples, carrots and oranges to flavor it up. It is helping me a lot.

Hang in there and keep posting when you need us.

Just a reminder- Juice your greens yourself...the greendrinks in the stores(even the healthy ones) have gluten in them...their one of the few health drinks that do!

Hang in there! :D(naked juice, green machine,,ect.,ect.)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Pain in the right side of abdomen

      @Heatherisle, I'm so happy that your daughter had her B12 checked! B12 needs all the B vitamins to work properly. A B Complex should be taken to ensure there are plenty of B vitamins to allow B12 to function properly. It's very rare to have only one or two low vitamins in Celiac Disease. B vitamins are water soluble, so any excess is easily excreted...
    2. knitty kitty
      - knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      39

      Blood results

      I'm so glad your daughter got her B12 level checked at last!
    3. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Pain in the right side of abdomen

      Hi Daughter finally had her B12 checked and her level was 30, normal range 180-200 so GP has prescribed medication for 4 weeks then further blood test so that probably accounts for how awful she’s been feeling recently. Folate was 2.2 just below the range of 3.0 - 20 so will need folic acid. Think iron levels were borderline but don’t know the numbers. No...
    4. Scott Adams
      0

      Gluten-Free, Casein-Free Diets and Autism: Separating Signals From Hype (+Video)

    5. knitty kitty
      - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/ Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,566
    • Most Online (within 30 mins)
      7,748
    lowegjkm
    Newest Member
    lowegjkm
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      @Heatherisle, I'm so happy that your daughter had her B12 checked! B12 needs all the B vitamins to work properly.  A B Complex should be taken to ensure there are plenty of B vitamins to allow B12 to function properly.  It's very rare to have only one or two low vitamins in Celiac Disease.  B vitamins are water soluble, so any excess is easily excreted in urine.  Tingling in feet and hands is symptomatic of deficiencies in B vitamins like thiamine, Pyridoxine, and niacin. September 19 2025, "Your daughter needs to be checked for Vitamin B12 deficiency as soon as possible!   The nitrogen compounds in anesthesia can precipitate a B12 deficiency resulting in severe depression.  Please have her checked immediately! The nitrogen compounds in anesthesia (both gas and injected anesthesia) bind irrevocably with the Cobalt in Cobalamine Vitamin B12.  This precipitates a B12 deficiency in people with a low B12 level.  This can happen immediately, within days or weeks or months depending on B12 stores.    I've had medical procedures that required anesthesia and been struck down by deep dark depression and uncontrollable crying immediately, and also within weeks of the exposure.  My doctor put me on antidepressants which only made things worse.  Antidepressants don't correct a vitamin deficiency.   Please have her checked for B12 deficiency as soon as possible!"  
    • knitty kitty
      Blood results

      By knitty kitty · Posted

      I'm so glad your daughter got her B12 level checked at last!  
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi  Daughter finally had her B12 checked and her level was 30, normal range 180-200 so GP has prescribed medication for 4 weeks then further blood test so that probably accounts for how awful she’s been feeling recently. Folate was 2.2 just below the range of 3.0 - 20 so will need folic acid. Think iron levels were borderline but don’t know the numbers. Not sure if it was Ferritin levels they did. History of haemochromatosis in family , my husband has it and other daughter is a carrier. She still has a few more blood tests to be taken including Vit D levels. Has had deficiency in that last year and had 6 month course as had back pain and tingling in feet and hands. Anyway thank you everyone for all your previous replies and help!!!!
    • knitty kitty
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By knitty kitty · Posted

      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/   Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication/397908713_Gliadin_and_Casein_Metabolism_Synthesis_of_Gliadomorphin_and_Casomorphin_and_Their_Biological_Consequences   Effects of milk containing only A2 beta casein versus milk containing both A1 and A2 beta casein proteins on gastrointestinal physiology, symptoms of discomfort, and cognitive behavior of people with self-reported intolerance to traditional cows’ milk https://pmc.ncbi.nlm.nih.gov/articles/PMC4818854/#:~:text=Results,lactose tolerant and intolerant subjects.   Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://pmc.ncbi.nlm.nih.gov/articles/PMC8345738/   Brain Opioid Activity and Oxidative Injury: Different Molecular Scenarios Connecting Celiac Disease and Autistic Spectrum Disorder https://pmc.ncbi.nlm.nih.gov/articles/PMC7407635/  
    • Mari
      Second chance

      By Mari · Posted

      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.