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Never Let Anyone Tell You This Isn't Serious

bonnie blue

By bonnie blue
in Coping with Celiac Disease

Recommended Posts

T.H. Community Regular
T.H.
Posted

Oh so glad to hear you caught it early.

Kick that cancer's butt, hon. Stomp it flat.

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lucky28 Explorer
lucky28
Posted

Glad to hear it's only in early stages! Glad to hear your dr wants u to get a port (it makes the chemo easier~saves your veins!) Kick that adenoma to the curb! Keep us updated~

yorkieluv Newbie
yorkieluv
Posted

I am so sorry about your diagnosis but so glad it's in the early stages. Hang in there with your treatment and keep us updated.

Di2011 Enthusiast
Di2011
Posted

My Nan's name was Bonnie :) I wish you well and lots of "good" Bonnie.

"The name Bonnie has two meanings:

1. It is derived from the Scottish word "bonnie" meaning "pretty, attractive". The Scottish word is derived from French "bon, bonne" meaning "good".

India Contributor
India
Posted

I've been thinking about you a lot since I read your post and I'm so glad that you've had such positive news. Good luck to you xx

Reba32 Rookie
Reba32
Posted

wow Bonnie, it sounds like a rough road ahead! I had no idea they could build a stomach out of intestines :unsure:

Best healing thoughts and prayers to you, and wishes for a speedy recovery. {{{hugs}}}

and if I were you, I'd think about suing the doctors that told you it's all in your head. Had they taken you seriously, it's possible there would have been less damage and you may not have had to have your entire stomach removed. :blink: At the very least, send them a copy of your dx, and tell them to be more diligent in future so the same doesn't happen to someone else :(

cougie23 Explorer
cougie23
Posted

Wonderful news that it's in the early stages and there is treatment for you. You advocated for yourself and got answers quickly.

You can beat this. Cancer is treatable these days.

Do everything you can to support yourself nutritionally too. I started juicing lots of green veggies and then adding apples, carrots and oranges to flavor it up. It is helping me a lot.

Hang in there and keep posting when you need us.

Just a reminder- Juice your greens yourself...the greendrinks in the stores(even the healthy ones) have gluten in them...their one of the few health drinks that do!

Hang in there! :D(naked juice, green machine,,ect.,ect.)

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  • Posts

    • Scott Adams
      Confused about HLA-DQ Celiac gene test result

      By Scott Adams · Posted

      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      Dried Chickpeas

      By Aretaeus Cappadocia · Posted

      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
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      Dried Chickpeas

      By Scott Adams · Posted

      If a package of dried chickpeas or lentils says “may contain” or “may have been cross contaminated,” that usually means they were processed in facilities that also handle wheat, barley, or rye. The concern is not gluten dissolved on the surface like dust that can simply be rinsed away, but small fragments of gluten-containing grains that may be mixed in during harvesting, storage, or packaging. Rinsing and sorting can reduce surface flour and remove visible stray grains, and many people do this successfully, but it does not guarantee that all gluten contamination is eliminated. Some limited testing has shown that naturally gluten-free grains and legumes can contain measurable gluten when cross-contact occurs in shared facilities, which is why manufacturers use precautionary labeling. The seriousness depends on the individual: for someone with celiac disease, even small amounts of gluten can trigger intestinal damage, so choosing certified gluten-free legumes is the safest option. Manufacturers are not necessarily being overly cautious; they are often acknowledging real cross-contact risk in complex agricultural supply chains.
    • knitty kitty
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