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What Are Your Thoughts On Anti-Diarrhea Meds?


carecare

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carecare Enthusiast

Are they safe to use? I have been miserable lately...and have to wait until Dec. 12 for my endoscopy before I can go gluten free again. This past week has been particularly bad. I was telling my husband I feel like my intestines are dry heaving...well, not dry but you know when you have that involuntary stomach movement when dry heaving or vomiting...but it's my intestines. It's so uncomfortable. I am guessing my intestines are spasming pretty severely when this is happening. I used to take anti diarrhea meds when traveling if I had any stomach issues and they helped a ton. I'm wondering if it's safe to take them on a regular basis to relieve the cramping. My visits to the bathroom this week have been horrible...and I don't feel like moving or having anyone near me or touch me for hours after. Gosh, I can't wait until I can eat healthy again...and never have gluten again.


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ravenwoodglass Mentor

Have you called the doctor and told them how severe your reaction is? If not do so. Ask to speak to a nurse if your doctor doesn't do call backs. This is especially the case if your D is waking you up at night as that is a typical Celiac symptoms and not a symptom of IBS. Some will call off the challenge or they may put you on a cancelation list to get you in sooner. They may also be able to prescribe an antispasmodic or anticholeragenic to help you get through it. Your body is telling you what you needed to know and I am sorry you are having to go through this.

As to taking Immodium, well I lived off multiple doses a day for about 15 years. If you have to leave your home then go ahead and take it. If you can be at home then I would let the offending substance leave your body as much as possible.

Do keep in mind that you can still have negative biopsy results even after going through the challenge so do go back to the diet if it helped as soon as the biopsy is done.

kendon0015 Rookie

If you have any chance of having a bacterial overgrowth causing the diarrhea, DO NOT take anti-D meds. It keeps the bacteria in your intestines, which is counter productive.

mushroom Proficient

Sometimes necessary, but a long-term no-no. I have a neice who travels often around the Pacific islands and one of her suitcase staples is "starters" and "stoppers" :D Plus I think she is probably also one of the great undiagnosed (her mother is an unbeliever).

Skylark Collaborator

I agree that you need to talk to your Dr. There are prescription anti-spasmodics that can relieve cramping and your Dr. can probably find you something safe to use daily until your scope.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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