Posted 18 November 2011 - 11:20 PM
Overall, our GI said the biopsy looked good. He saw no tumors, ulcers, weirdness, etc. He said the small intestine did look a bit off, but that was the only area. He said the results from the biopsies and other tests would come back probably after Thanksgiving.
He sat down and talked with me for a bit (which I really like, he's a talker and takes the time to really listen). He asked me what my 'gut' was telling me. I told him that something was wrong with her and that regardless of the biopsies I planned to move her back to what worked (gluten free, most dairy - free and no fruit juice). He said that if the biopsies came back clear, that he wanted to look at a few other things, but he supported me in whatever diet I chose. He said even if the Celiac test came back negative, that he was a firm believer that some people are simply gluten sensitive and should avoid it. He said he would write whatever notes I needed for the schools to let them know she had medical issues and needed a special diet. (I really like that about him as well).
I'm really glad to have these two weeks over and her biopsy finished. (I hate the effect anesthesia has on the girls). It feels great to remove gluten/dairy things away from her now and start feeding her food that makes her feel better. I'm done with all the other tests for my other daughter as well (teeth removal and bone density tests). I'm so glad to be finished with doctors for a while so I can concentrate on the upcoming holidays.
Posted 19 November 2011 - 01:14 AM
Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.
Posted 19 November 2011 - 01:31 AM
Your girls are lucky to have you! It is tough to see your own children live through that and a double whamy knowing it was you that made the decision to make it happen. You have a good positive outlook and your kids will love you for it.
Can you let us know who the great GI is? There might be others in your area that can benefit from his good wisdom.
Posted 19 November 2011 - 01:49 AM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 19 November 2011 - 01:59 AM
It is torture waiting on the results as well. I hope by some chance you will get answers before Thanksgiving. Jennifer
Posted 19 November 2011 - 07:05 AM
Our middle daughter with celiac disease was so textbook perfect that it makes getting a diagnosis of some sort for my youngest, difficult. Our middle daughter had classic symptoms, positive blood, positive biopsy, positive response to diet and a follow up biopsy was perfect. After taking out gluten, she thrived in every way. When she has gluten, she collapses for about a week or two, depending on the severity.
Our youngest has just had difficulty figuring out what's wrong. I don't know if she has celiac disease, but she has something going on. I've had some doctors (and relatives) suggest that she was faking stomach aches, and one even suggest that she was making herself throw up for attention. (Nobody has figured out how she could be faking the diarrhea). She is 6 yrs old and all of this started last December. Regardless, we're going to do what makes her feel better although they typically gasp when I tell them the restrictions. But, it's not THAT difficult. And if it will keep her feeling better then I really don't care what they think. (Okay, rant over. lol).
I'm just really happy to have the biopsy finished.
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