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Possible Gluten Allergy

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I too am one of the many people on here wondering if my symptoms are possible gluten allergies. I had my blood drawn at a GI doctor and am still waiting for results (almost 4 weeks by the time of my appt). My symptoms include; severe bloating and cramping (to the point where I had a hysterectomy last year at the age of 29), gas, lightheadedness, eczema, irritability, PCOS (I had one child with the help of fertility medication and 8 other tries got me nowhere), depression, acid reflux and insomnia. I unlike what I have read about Celiac's am not underweight nor have I lost weight. In fact it is quite the opposite and I seem to keep gaining (probably because of poor diet). My symptoms have increasingly become worse in the last year, but have been going on for a lot longer than that. I travel 90% of the time with my job and am forced to eat out most of the time. I am an auditor and have odd work hours. I live on junk food and have to eat pizza with the staff during my inventories. When my blood tests come back if it is Celiac's are there any suggestions on how to eat better when traveling so much? If it is not does anyone have any ideas on what it could be? I do not know what blood test they ran on me.


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It could still be Celiacs with the blood test negative. As for eating out: get Baked Potatoes from Wendys or salads from subway or blimpie, Chilis hasn't made me sick and some Mexican restraunts are very helpful as well. Infertility is a very big symptom of Celiacs, I'm 17 so I haven't had this problem yet ;) Glad you could have one child at least. Eczema could actually be Dermatitis Herpformis which is associated with Celiacs. Irritabily can be a symptom or an outcome of feeling trashy, its hard to be nice when you feel like poop. Pizza is a no no. Though there are some pizza places that make gluten free crust you just have to be careful about Cross Contamination. Grab some Rice cakes or fruit. Lately i've been eating Apples and Bananas like a maniac. lol Don't just rule out celiacs if the blood test is negative. Give gluten free a try. Its not so bad. B)


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You very well could have an allergy/celiac. The blood tests aren't always accurate, and you could get a false negative. The best thing for you to do is to try the gluten free diet for a month or so, and see if your conditions have improved.

As for food and travel, I would suggest bringing your own food. Fresh fruits and vegetables are always safe, nuts (as long as they aren't proccessed on shared equipment), popcorn is usually gluten-free. Udi's makes gluten-free sandwich bread that is not half bad. You could also try a breadless wrap, I usually take salami and wrap it up with pepper jack cheese, with mayo and sometimes lettuce. You might be surprised at what your local grocer may have... I usually shop at Food Lion and was completely unaware that they had an entire gluten free aisle. Not sure if all locations do, but definitely worth a try.

Celiac doesn't mean you have to stop eating out. Chili's, Wendy's, Chick-Fil-A, and even Taco Bell provide gluten-free options... I've eaten at all three several times and haven't had any issues. You can also always Google the restaurant, as they usually have allergen info online.


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    • Thanks for pointing that out. I just learned about things that are cross reactive with gluten--that have a similar protein structure and the body reacts as if it is a gluten protein: the list of cross reactors includes: Eggs, coffee most other grains corn, potato, rice, yeast, chocolate coffee, corn, butter soy, eggplant, bell pepper and chili pepper and tomatoes. Son of a !!!! This explains a lot. I would be faithfully gluten-free and still have DH flare ups when I certain things. So I just ate sprouted rice with beans, fruit and oolong tea--and I was fine. Then last week I tried this weight loss coffee called SlimRoast which worked UNBELIVABLE (LOST 3 POUNDS IN 2 DAYS) I was eating potato soup with lots of chili paste and soon I noticed I was depressed, I couldn't focus and began to feel that crawling flesh thing I get when I know I have been glutened.  I did more research on how I could love my body and read about glutamine: "Glutamine is also a critical part of our digestive system. It is the primary nutrient for the cells of the intestinal lining where it helps regulate cellular reproduction. Through this mechanism, glutamine helps prevent and rebuild a leaky gut which is common in people with inflammatory and auto-immune conditions. For this reason glutamine supplementation has been shown to be very effective in individuals with ulcerative colitis, CELIAC DISEASE, Crohn's disease, & irritable bowel syndrome." So now have removed everything but the sprouted rice, back on fruit and beans and have added those things that are high in glutamine. Since I eat plant based I can't get glutamine from meat so lots of raw spinach beets parsley cabbage celery kale brussel sprouts and especially red cabbage --in salads and smoothies. So hopefully I am on the mend--miss my weight loss coffee but its not worth getting sick over.     
    • I got the link fine but if I recall correctly I am a member of Medscape - I believe I just plain signed up for it - I know there isn't any fee for anything I sign up for otherwise I think very long and very hard whether it's going to be worth my money or not.
    • For those of you who get this, how long did it last? I am going on 3 months now, glutening 2 months ago.  Popping zofran in the morning and I feel pretty dizzy and queasy the first half of the day. No, I am not pregnant. I also get flu like aches and accelerated heart rate after eating. 
    • That's how he makes his money... of course you will not get them to agree that the tests are bogus! Same with all these " miracle" supplements that claim to " digest" gluten.  If you call them, , of course they are going to say they work! "We only embrace tests that have endured rigorous scientific evaluations. So far, these tests have received no evidence-based support. Enterolab has never successfully published anything on the accuracy of stool tests (nor have any other stool test manufacturers, to our knowledge) making it difficult to confirm the research results. Because of this, we must make our decisions based on what hasbeen published; Harvard, UCSD, and the American College of Gastroenterology all agree that stool tests are simply not sensitive or specific enough methods in screening for celiac disease. We can say therefore with confidence that the test currently being used by these labs is not good enough. In fact, while it is true that about 40% of people with proven gluten sensitivity have elevated AGA-IgG, it is also true that about 15-25% of the healthy individuals who have absolutely nothing wrong also have elevated AGA-IgG. Hence, about 60% of gluten sensitive people do not have elevated AGA-IgG (making the test not sensitive enough); and about 20% of normal, non-gluten sensitive people have elevated AGA-IgG for no apparent reason (making the test not specific enough)."    
    • Hi Gemini, My birthday is in June, so I'm a Gemini too---and I do agree with some of your good points.  I had written that one could EITHER try Dr. Fine's stool sample testing, where his EnteroLab looks for elevated numbers of IgA antibodies to various food proteins (gluten, milk proteins, soy proteins, yeast proteins, etc.), OR one could just avoid eating or drinking or touching suspect food proteins, for at least a month (3 months is better), and see whether AVOIDING eating and touching such proteins causes improvement or not, in one's symptoms and lab test results. I urge you (and anyone else who wonders about this) to speak by phone, with people working at Dr. Fine's EnteroLab,  and state your objections to them, and see what their replies might be. Here's their phone number: 972-686-6869. I called Dr. Fine's Enterolab, and the folks I spoke with there, were nice enough to reply to any questions that I had, including one lady (I believe she was a nurse) there telling me about the "IgA deficiency" blood test called "total secretory IgA", which one can do first, to see whether it pays to try EnteroLab's stool sample testing! From what I understand, Dr. Fine doesn't try to distinguish between Celiac and non-Celiac forms of gluten "sensitivity". This is because although Celiac Disease is VERY serious, it is the "tip of the gluten-sensitive iceberg", meaning, that higher percentages of gluten-sensitive folks are NON-Celiac gluten-sensitive folks, who can also have major health problems, but the non-Celiac folks have "villi" that are sub-microscopically damaged, and thus, this sub-microscopic villi damage cannot be seen under the microscope--but it's there! And, Dr. Fine's point, is that in both Celiac and non-Celiac types of gluten sensitivity, the cure is the same: AVOID GLUTEN! Dr. Fine doesn't use the term "gluten intolerance", because newer uses of the word "intolerance" refers to NON-PROTEIN intolerances, such as "lactose/milk sugar intolerance" (lactose/milk sugar is a carbohydrate, not a protein), and intolerances are not related to one's immune system, while gluten "sensitivity" and other "sensitivities" ARE related to one's immune system, with ingestion (eating or drinking the offending proteins) causing one's immune system to cause the production of antibodies to those proteins that one is "sensitive" to. Many years ago, a friend of my husband, went to a local doc who told my husband's friend to try avoiding gluten. My husband's friend, without being biopsied, went off gluten, and has become well, ever since that day long ago. Some years ago, both my husband and I did Dr. Fine's "EnteroLab" stool sample testing, for gluten sensitivity. My husband came out positive, and I came out negative. My husband has avoided gluten, ever since then, and I try to do so also, to avoid tempting him to cheat, and he has avoided getting colds, etc., the way he used to, before he stopped eating glutenous foods. And, there is much disagreement (I know, because I'm a retired nurse, and I've been a patient now and then) between doctors, about gluten sensitivity, and about anything medical. So, I've learned to be wary of the terms "valid medical institutions" and "valid medical professionals". What may seem valid today, might be disproved tomorrow, and what might not seem valid today, may be shown to be valid tomorrow. Medicine is always in flux, thankfully. If not, medicine would be "dogma". If you call and speak with Dr. Kenneth Fine (M.D., gastroenterologist, "sensitive" to many food proteins himself, including gluten, but not "Celiac") &/or to the folks working at his Enterolab, please let us know what their replies are, to your objections to his lab's work. In the meantime, let's both try to keep an open mind. Sincerely, Carol Sidofsky (wife of gluten-sensitive non-Celiac hubby, and I'm a retired RN/nurse)
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