Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Laws In Uk = Stupid ?

tennisman

By tennisman
in Coping with Celiac Disease

Recommended Posts

tennisman Contributor
tennisman
Posted

So it's 2012 in the UK the new labeling for gluten-free foods starts today . I really don't understand it but I think it's gonna be a mess . 0 - 20 ppm = gluten-free . 20 - 100 ppm = low gluten and safe :S How can a product containing low levels of gluten be gluten free ? It's stupid , also apparently many foods are being taken off prescription because they are luxury . How anyone can call gluten-free from the chemist luxury I will never know . I want to destroy the government :@

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

Ours are going to change to 0-20ppm, currently its <3ppm is considered gluten free. How is Low gluten helpful to anyone with coeliac disease anyways? Has the world gone mad!

mushroom Proficient
mushroom
Posted

Ho boy, good luck tennisman :unsure: Is there are provision for labelling something as containing less than 20 ppm, or saying "contains no gluten" or some other way to distinguish that you are getting less than 20? They have probably made that illegal, right? :blink:

tennisman Contributor
tennisman
Posted
  • Author

Ours are going to change to 0-20ppm, currently its <3ppm is considered gluten free. How is Low gluten helpful to anyone with coeliac disease anyways? Has the world gone mad!

I think it's ridiculous , I might as well just eat chinese as soy sauce is most probably low gluten . I think Fad diet has changed celiac disease and it's a big shame . Surely gluten-free has to be 100 % gluten free all this low and 20 ppm or 3 ppm just confuses me :S

giggleburger Rookie
giggleburger
Posted

Wow, this is one of those times where you can tell whoever devised that setup doesn't know enough about the issues relating to it.

Is there anyway to start some sort of awareness that this may not be the best way to handle the labeling?

psawyer Proficient
psawyer
Posted

So it's 2012 in the UK the new labeling for gluten-free foods starts today . I really don't understand it but I think it's gonna be a mess . 0 - 20 ppm = gluten-free . 20 - 100 ppm = low gluten and safe :S How can a product containing low levels of gluten be gluten free ? It's stupid , also apparently many foods are being taken off prescription because they are luxury . How anyone can call gluten-free from the chemist luxury I will never know . I want to destroy the government :@

Under the "old" rules, up to 200 ppm could be labeled "gluten-free" in some cases. While not yet perfect, the EU is moving in the right direction.

tennisman Contributor
tennisman
Posted
  • Author

Ho boy, good luck tennisman :unsure: Is there are provision for labelling something as containing less than 20 ppm, or saying "contains no gluten" or some other way to distinguish that you are getting less than 20? They have probably made that illegal, right? :blink:

Thanks mushroom :) Here is some info Open Original Shared Link it's very confusing . How can restaurants test 20 ppm :S

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Yeah, stupid. At least your country HAS laws, though. We have a useless congress who can't even manage to sort out a budget, let alone pass food labeling legislation. :angry:

tennisman Contributor
tennisman
Posted
  • Author

Wow, this is one of those times where you can tell whoever devised that setup doesn't know enough about the issues relating to it.

Is there anyway to start some sort of awareness that this may not be the best way to handle the labeling?

Lots of people on Coeliac UK Facebook said this isn't a good idea . The UK government is stupid though they think this is a good idea ..

tennisman Contributor
tennisman
Posted
  • Author

Under the "old" rules, up to 200 ppm could be labeled "gluten-free" in some cases. While not yet perfect, the EU is moving in the right direction.

I hope so :) But having 3 different labels , less than 20 ppm , 20 - 100 ppm and no containing gluten ingredients is strange . What's wrong with a symbol for gluten-free or a symbol to say it's not gluten-free .

tennisman Contributor
tennisman
Posted
  • Author

Yeah, stupid. At least your country HAS laws, though. We have a useless congress who can't even manage to sort out a budget, let alone pass food labeling legislation. :angry:

:( I find it ridiculous , vegetarian labeling is on everything yet the world can't sort gluten-free labeling properly . England is stupid they sell fake cheap dangerous alcohol , won't be long before these same people sell gluten free foods full of gluten :(

Takala Enthusiast
Takala
Posted

I believe we had some joker, er, "scientist," propose something like this (low gluten labels) for the United States, and they were serious. Wheeee! American Exceptionalism!

Yeah, stupid. At least your country HAS laws, though. We have a useless congress who can't even manage to sort out a budget, let alone pass food labeling legislation.

You so do not want this particular contemporary version of the U.S. House passing any food labeling legislation. Their version of a new and improved school lunch program under the USDA Ag commodities program was to attempt to replace carbohydrates such as beans and potatoes with grains, I swear to God. One of the Senators in the potato growing states stopped it. You could almost hear the GMO lobby crying in their barley beers over it.

CR5442 Contributor
CR5442
Posted

Yeah, stupid. At least your country HAS laws, though. We have a useless congress who can't even manage to sort out a budget, let alone pass food labeling legislation. :angry:

Hi Skylark, so true. We are getting better on the legislation thing, in many areas. And if I have been eating gluten-free food with 200ppm gluten in then no wonder I still feel like I'm getting glutened occasionally. Though it's usually ok if you eat clean unprocessed foods.

I thought the US had the 20ppm already in force?

psawyer Proficient
psawyer
Posted

I thought the US had the 20ppm already in force?

No, there is no legal definition yet in the United States for "gluten-free."

nora-n Rookie
nora-n
Posted

It is not the uk government, it is the new EU law from January 2009, and January 2012 was the last date for implementation.

The requirements for gluten free went down from 200ppm to below 20ppm (but now in the finished product)

Which makes it possible for people who have a celiac home test for food, to test for 5ppm or 20ppm right where they are out eating. Like the glutentox home test kit, or other test kits.

Otherwise they would have to go home and dry the foodstuff and then test it....

auzzi Newbie
auzzi
Posted

Australia's definition of "gluten free" is no detectable gluten ie 3ppm, which the lowest that they can test for.. Above that, it is just "gluten".

It's stupid, also apparently many foods are being taken off prescription because they are luxury.

As for gluten-free on prescription: as far as I can work out, the UK and Italy are the only ones that subsidize gluten-free products .. so don't complain too loudly. We pay full price for bread, bread mix, flours, pasta, and xanthan gum, let alone everything else ..

nora-n Rookie
nora-n
Posted

Sweden also has gluten-free products on prescription, for children and young adults, and probably other countries have too, possibly spain.

Other countries give money towards the increased cost.

irish daveyboy Community Regular
irish daveyboy
Posted

I think it's ridiculous, Surely gluten-free has to be 100 % gluten free all this low and 20 ppm or 3 ppm just confuses me :S

What specially produced Gluten Free Products do you consume ??

Have you ever asked any manufacturer of Gluten Free products what level do the test to ??

Where the New Gluten Free level is <20PPM means an upper limit, in actual fact most of the Gluten Free products test to between 3PPM and 10PPM, the <20PPM was set to accomodate a small level of error in checking!

If it were possible to get 100% Gluten Free (it's not possible to check to such small amounts, 3PPM is the smallest at the moment that render reliable results)

The costs involved would mean that NO COMPANIES would produce Gluten Free products, for fear of litagation.

Even if it were possible then the average loaf of Gluten Free bread would cost in excess of $30 each.

We have to strike a happy midpoint where Gluten Free products are available and as safe as is possible comercially.

If you want to be 100% gluten Free then restrict yourself to a diet of meat, fish and well washed vegetables.

Cross Contamination is possible on everything else whether processed or raw (think about crop spraying, feed, nutrients etc)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

      Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
    2. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    3. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    4. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    5. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,421
    • Most Online (within 30 mins)
      7,748
    john rands
    Newest Member
    john rands
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.