Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Laws In Uk = Stupid ?


tennisman

Recommended Posts

tennisman Contributor

So it's 2012 in the UK the new labeling for gluten-free foods starts today . I really don't understand it but I think it's gonna be a mess . 0 - 20 ppm = gluten-free . 20 - 100 ppm = low gluten and safe :S How can a product containing low levels of gluten be gluten free ? It's stupid , also apparently many foods are being taken off prescription because they are luxury . How anyone can call gluten-free from the chemist luxury I will never know . I want to destroy the government :@


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beebs Enthusiast

Ours are going to change to 0-20ppm, currently its <3ppm is considered gluten free. How is Low gluten helpful to anyone with coeliac disease anyways? Has the world gone mad!

mushroom Proficient

Ho boy, good luck tennisman :unsure: Is there are provision for labelling something as containing less than 20 ppm, or saying "contains no gluten" or some other way to distinguish that you are getting less than 20? They have probably made that illegal, right? :blink:

tennisman Contributor

Ours are going to change to 0-20ppm, currently its <3ppm is considered gluten free. How is Low gluten helpful to anyone with coeliac disease anyways? Has the world gone mad!

I think it's ridiculous , I might as well just eat chinese as soy sauce is most probably low gluten . I think Fad diet has changed celiac disease and it's a big shame . Surely gluten-free has to be 100 % gluten free all this low and 20 ppm or 3 ppm just confuses me :S

giggleburger Rookie

Wow, this is one of those times where you can tell whoever devised that setup doesn't know enough about the issues relating to it.

Is there anyway to start some sort of awareness that this may not be the best way to handle the labeling?

psawyer Proficient

So it's 2012 in the UK the new labeling for gluten-free foods starts today . I really don't understand it but I think it's gonna be a mess . 0 - 20 ppm = gluten-free . 20 - 100 ppm = low gluten and safe :S How can a product containing low levels of gluten be gluten free ? It's stupid , also apparently many foods are being taken off prescription because they are luxury . How anyone can call gluten-free from the chemist luxury I will never know . I want to destroy the government :@

Under the "old" rules, up to 200 ppm could be labeled "gluten-free" in some cases. While not yet perfect, the EU is moving in the right direction.

tennisman Contributor

Ho boy, good luck tennisman :unsure: Is there are provision for labelling something as containing less than 20 ppm, or saying "contains no gluten" or some other way to distinguish that you are getting less than 20? They have probably made that illegal, right? :blink:

Thanks mushroom :) Here is some info Open Original Shared Link it's very confusing . How can restaurants test 20 ppm :S


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Yeah, stupid. At least your country HAS laws, though. We have a useless congress who can't even manage to sort out a budget, let alone pass food labeling legislation. :angry:

tennisman Contributor

Wow, this is one of those times where you can tell whoever devised that setup doesn't know enough about the issues relating to it.

Is there anyway to start some sort of awareness that this may not be the best way to handle the labeling?

Lots of people on Coeliac UK Facebook said this isn't a good idea . The UK government is stupid though they think this is a good idea ..

tennisman Contributor

Under the "old" rules, up to 200 ppm could be labeled "gluten-free" in some cases. While not yet perfect, the EU is moving in the right direction.

I hope so :) But having 3 different labels , less than 20 ppm , 20 - 100 ppm and no containing gluten ingredients is strange . What's wrong with a symbol for gluten-free or a symbol to say it's not gluten-free .

tennisman Contributor

Yeah, stupid. At least your country HAS laws, though. We have a useless congress who can't even manage to sort out a budget, let alone pass food labeling legislation. :angry:

:( I find it ridiculous , vegetarian labeling is on everything yet the world can't sort gluten-free labeling properly . England is stupid they sell fake cheap dangerous alcohol , won't be long before these same people sell gluten free foods full of gluten :(

Takala Enthusiast

I believe we had some joker, er, "scientist," propose something like this (low gluten labels) for the United States, and they were serious. Wheeee! American Exceptionalism!

Yeah, stupid. At least your country HAS laws, though. We have a useless congress who can't even manage to sort out a budget, let alone pass food labeling legislation.

You so do not want this particular contemporary version of the U.S. House passing any food labeling legislation. Their version of a new and improved school lunch program under the USDA Ag commodities program was to attempt to replace carbohydrates such as beans and potatoes with grains, I swear to God. One of the Senators in the potato growing states stopped it. You could almost hear the GMO lobby crying in their barley beers over it.

CR5442 Contributor

Yeah, stupid. At least your country HAS laws, though. We have a useless congress who can't even manage to sort out a budget, let alone pass food labeling legislation. :angry:

Hi Skylark, so true. We are getting better on the legislation thing, in many areas. And if I have been eating gluten-free food with 200ppm gluten in then no wonder I still feel like I'm getting glutened occasionally. Though it's usually ok if you eat clean unprocessed foods.

I thought the US had the 20ppm already in force?

psawyer Proficient

I thought the US had the 20ppm already in force?

No, there is no legal definition yet in the United States for "gluten-free."

nora-n Rookie

It is not the uk government, it is the new EU law from January 2009, and January 2012 was the last date for implementation.

The requirements for gluten free went down from 200ppm to below 20ppm (but now in the finished product)

Which makes it possible for people who have a celiac home test for food, to test for 5ppm or 20ppm right where they are out eating. Like the glutentox home test kit, or other test kits.

Otherwise they would have to go home and dry the foodstuff and then test it....

auzzi Newbie

Australia's definition of "gluten free" is no detectable gluten ie 3ppm, which the lowest that they can test for.. Above that, it is just "gluten".

It's stupid, also apparently many foods are being taken off prescription because they are luxury.

As for gluten-free on prescription: as far as I can work out, the UK and Italy are the only ones that subsidize gluten-free products .. so don't complain too loudly. We pay full price for bread, bread mix, flours, pasta, and xanthan gum, let alone everything else ..

nora-n Rookie

Sweden also has gluten-free products on prescription, for children and young adults, and probably other countries have too, possibly spain.

Other countries give money towards the increased cost.

irish daveyboy Community Regular

I think it's ridiculous, Surely gluten-free has to be 100 % gluten free all this low and 20 ppm or 3 ppm just confuses me :S

What specially produced Gluten Free Products do you consume ??

Have you ever asked any manufacturer of Gluten Free products what level do the test to ??

Where the New Gluten Free level is <20PPM means an upper limit, in actual fact most of the Gluten Free products test to between 3PPM and 10PPM, the <20PPM was set to accomodate a small level of error in checking!

If it were possible to get 100% Gluten Free (it's not possible to check to such small amounts, 3PPM is the smallest at the moment that render reliable results)

The costs involved would mean that NO COMPANIES would produce Gluten Free products, for fear of litagation.

Even if it were possible then the average loaf of Gluten Free bread would cost in excess of $30 each.

We have to strike a happy midpoint where Gluten Free products are available and as safe as is possible comercially.

If you want to be 100% gluten Free then restrict yourself to a diet of meat, fish and well washed vegetables.

Cross Contamination is possible on everything else whether processed or raw (think about crop spraying, feed, nutrients etc)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    2. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

    4. - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,990
    • Most Online (within 30 mins)
      7,748

    pothosqueen
    Newest Member
    pothosqueen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.