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Do I Need To Be Dairy Free?


thegirlsmom

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thegirlsmom Apprentice

Last January I gave up gluten to see if it would help my Alopecia Areata. Looking back I had a LOT of Cross contamination during the first 6 months but I still felt so much better. The only digestive issues I have ever had (which I have had my whole life) was constipation. I was basically constipated all the time with the exception of right before I ovulated and right before my period - when I would get so sick I would vomit. When I went gluten free, I became miraculously regular and had no cycle related stomach issues.

In July, I went to a naturalistic doctor to see about my Alopecia - I was still losing hair. She ran some tests and said I was likely celiac and needed to go dairy free as well. I have been dairy free ever since. I am still regular but twice a month again I get diareah!! I feel like I drank a glass of magnesium sulfate water for a whole day and then the next day I am all messed up. It seems like the same cycle as before I was gluten free but to the other extreme!!

Is there something I am missing here? Maybe a vitamin or mineral?? The last few days I have tested myself with a little dairy and at first I felt a little gassy, but other than that I feel great! And my stool is well formed again!

I almost feel like my body needs the dairy to balance something out.

Any ideas??

Oh and 60% of my hair has grown back since August.

Thanks


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maitrimama Apprentice

My 15 yr old daughter was Dx with Celiacs and IBD last September her GI doctor (a well known and respected Pediatric GI) and he and the nutritionist made it clear that all gluten had to be removed from her died but dairy was fine, even encouraged, unless the dairy began to cause problems. That infact she needed the nutrion, calcium and calories, from dairy products.

Metoo Enthusiast

Removing something from your diet, shouldn't cause problems, and it shouldn't cause problems just 2 times a month. To me it sounds like maybe your are being glutened and don't realize it. Your shampoo or vitamin? Or a drink or something!

Skylark Collaborator

If you feel better on dairy than off it, there is no reason to leave it out of your diet. Most of us folks who can't tolerate dairy get pretty obvious symptoms when we eat it. You may not be getting enough calcium without the dairy and that can cause diarrhea.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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