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Do I Need To Be Dairy Free?

thegirlsmom

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thegirlsmom Apprentice
thegirlsmom
Posted

Last January I gave up gluten to see if it would help my Alopecia Areata. Looking back I had a LOT of Cross contamination during the first 6 months but I still felt so much better. The only digestive issues I have ever had (which I have had my whole life) was constipation. I was basically constipated all the time with the exception of right before I ovulated and right before my period - when I would get so sick I would vomit. When I went gluten free, I became miraculously regular and had no cycle related stomach issues.

In July, I went to a naturalistic doctor to see about my Alopecia - I was still losing hair. She ran some tests and said I was likely celiac and needed to go dairy free as well. I have been dairy free ever since. I am still regular but twice a month again I get diareah!! I feel like I drank a glass of magnesium sulfate water for a whole day and then the next day I am all messed up. It seems like the same cycle as before I was gluten free but to the other extreme!!

Is there something I am missing here? Maybe a vitamin or mineral?? The last few days I have tested myself with a little dairy and at first I felt a little gassy, but other than that I feel great! And my stool is well formed again!

I almost feel like my body needs the dairy to balance something out.

Any ideas??

Oh and 60% of my hair has grown back since August.

Thanks

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maitrimama Apprentice
maitrimama
Posted

My 15 yr old daughter was Dx with Celiacs and IBD last September her GI doctor (a well known and respected Pediatric GI) and he and the nutritionist made it clear that all gluten had to be removed from her died but dairy was fine, even encouraged, unless the dairy began to cause problems. That infact she needed the nutrion, calcium and calories, from dairy products.

Metoo Enthusiast
Metoo
Posted

Removing something from your diet, shouldn't cause problems, and it shouldn't cause problems just 2 times a month. To me it sounds like maybe your are being glutened and don't realize it. Your shampoo or vitamin? Or a drink or something!

Skylark Collaborator
Skylark
Posted

If you feel better on dairy than off it, there is no reason to leave it out of your diet. Most of us folks who can't tolerate dairy get pretty obvious symptoms when we eat it. You may not be getting enough calcium without the dairy and that can cause diarrhea.

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    • Scott Adams
      Test interpretations

      By Scott Adams · Posted

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Test interpretations

      By trents · Posted

      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
    • suek54
      Need advice for some relief!

      By suek54 · Posted

      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      Test interpretations

      By MicG · Posted

      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
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