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Do I Need To Be Dairy Free?

thegirlsmom

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thegirlsmom Apprentice
thegirlsmom
Posted

Last January I gave up gluten to see if it would help my Alopecia Areata. Looking back I had a LOT of Cross contamination during the first 6 months but I still felt so much better. The only digestive issues I have ever had (which I have had my whole life) was constipation. I was basically constipated all the time with the exception of right before I ovulated and right before my period - when I would get so sick I would vomit. When I went gluten free, I became miraculously regular and had no cycle related stomach issues.

In July, I went to a naturalistic doctor to see about my Alopecia - I was still losing hair. She ran some tests and said I was likely celiac and needed to go dairy free as well. I have been dairy free ever since. I am still regular but twice a month again I get diareah!! I feel like I drank a glass of magnesium sulfate water for a whole day and then the next day I am all messed up. It seems like the same cycle as before I was gluten free but to the other extreme!!

Is there something I am missing here? Maybe a vitamin or mineral?? The last few days I have tested myself with a little dairy and at first I felt a little gassy, but other than that I feel great! And my stool is well formed again!

I almost feel like my body needs the dairy to balance something out.

Any ideas??

Oh and 60% of my hair has grown back since August.

Thanks

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maitrimama Apprentice
maitrimama
Posted

My 15 yr old daughter was Dx with Celiacs and IBD last September her GI doctor (a well known and respected Pediatric GI) and he and the nutritionist made it clear that all gluten had to be removed from her died but dairy was fine, even encouraged, unless the dairy began to cause problems. That infact she needed the nutrion, calcium and calories, from dairy products.

Metoo Enthusiast
Metoo
Posted

Removing something from your diet, shouldn't cause problems, and it shouldn't cause problems just 2 times a month. To me it sounds like maybe your are being glutened and don't realize it. Your shampoo or vitamin? Or a drink or something!

Skylark Collaborator
Skylark
Posted

If you feel better on dairy than off it, there is no reason to leave it out of your diet. Most of us folks who can't tolerate dairy get pretty obvious symptoms when we eat it. You may not be getting enough calcium without the dairy and that can cause diarrhea.

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    • trents
      Why now?

      By trents · Posted

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    • heart390
      Why now?

      By heart390 · Posted

      THANK YOU Trents!!!  No, I have not been tested - but have several autoimmune diseases ( MS over 50 yrs.) MAJOR GAS  & fatigue are my most severe problems.  Possibility STRESS helped kick it off?  It's a sad additional problem to add to the latter part of my life!
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      It’s absolutely worth bringing all of this to your GI appointment. The 2013 CT note about thickening in the second and third portions of the duodenum is especially important, since that area is directly involved in celiac disease and other inflammatory conditions, even if it wasn’t followed up at the time. The weak positive HLA-B27, joint pain, stiffness, numbness, and burning sensations could suggest an autoimmune or inflammatory process, which sometimes overlaps with celiac disease or other gut-related immune conditions. Your periods of neurological symptoms (balance issues, numbness, confusion), low vitamin D, and fluctuating levels despite supplementation are also relevant, as malabsorption can contribute to deficiencies and neurologic complaints. Even “normal” labs are helpful for pattern recognition over time. I’d suggest organizing your records into categories—GI imaging, autoimmune labs, vitamin/mineral levels, neurological evaluations, and symptom timelines—so your GI doctor can see the bigger picture. This kind of long-term pattern can be very useful in connecting dots.
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      Welcome to the celiac.com community @heart390! Genes connected with the development of celiac disease remain latent until triggered or activated by some biological stressor. The stressor can be many things and our knowledge in this area is incomplete. Suspects include viral infections, antibiotics, pesticides, preservatives and other harmful chemicals in the environment. The onset of celiac disease can happen at any stage in life. It is a long outdated misconception that gluten intolerance is a childhood phenomenon that you eventually outgrow. You use the term "gluten problems". What do you mean by that? Have you been formally diagnosed with celiac disease (aka, "gluten intolerance")? There is also NCGS (Non Celiac Gluten Sensitivity or "gluten sensitivity") for which there is not yet any testing available. It shares many of the same symptoms with celiac disease but is not autoimmune in nature and does not damage the lining of the small bowel. A diagnosis of NCGS depends on first ruling out celiac disease for which we do have tests. If you would seek testing for celiac disease, you must not begin the gluten free diet until all testing is done with or you will have invalidated the testing. There are two stages to the testing. The first stage involves a simple blood draw to check for certain antibodies produced by celiac disease. If the antibody testing is positive, doctors normally order an endoscopy with biopsy of the small bowel lining which checks for damaged caused by the inflammation associated with the autoimmune response. That is the second stage of diagnostic testing.
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