Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Much Gluten Does It Take To Make You Sick?
0

5 posts in this topic

I have accidental glutening before and my reactions are almost always exactly the same down to the hour. I usually know exactly what to expect, I also always figure it out and discontinue the culprit within a few days. Well this time I didn't realize I was getting glutened. I was eating some candy every day for two weeks that was making me sick but because the symptoms were milder I didn't catch it for a long time. The candy itself doesn't have gluten but was processed on shares equipment. Apparently that was enough to make me sick. But my symptoms are now much worse than they usually get! It's a much smaller amount of cc I think but over a more extended period of time. Do you find your reaction to be worse depending on the type of glutening you get? I would think I would have gotten sicker from the swig of beer I accidentally took once but I think this is much worse.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes, you have described it well, same type of reaction for me. I used to love this one cajun salt which I used for my crab boil. One day after eating the crab I woke up with these tiny bumps under my skin on my fingers. Checked the bottle and it said it could conatin wheat. Not sure if it was the wheat or the spice that created this. Had no stomach issues. I have tried candy that said it was manufactured on machinery that contains gluten which did give me a sick stomach for a day but nothing more. Had a recent bewildering experience with choco covered raisins, nothing listed in the ingredients I could not have and did not say anything about how it was processed but I have a feeling there was some cc there, made me pretty darn sick, like you, I had been slowly munching on them. But if I get a crumb of bread, I know it!

0

Share this post


Link to post
Share on other sites

I think if you are getting small amounts of gluten over an extended period of time that it is giving the antibodies more time and strength building up. I guess I am lucky that I get enough of an effect quick enough so that I don't get the chance to have things build up as my reaction becomes evident within a few hours at most. I have neuro issues that clue me in and let me know I am in for a rough few days. I do react to very, very small amounts of gluten. I do have to even be careful moving wrapped bread at my volunteer job and I have to wash my hands very often to stay safe as even a residue I can't see will get me. Learned that the hard way.

The delayed reaction many of us get can be troublesome as it makes it hard for us to know sometimes what is getting us. We also have to factor in other intolerances when we are new to the diet. Many times early on we can have other intolerances that show up and for some the symptoms will be similiar to our gluten reactions and can make us think we are reacting to gluten when the reaction may be to dairy or soy, as examples. It took me a long time to figure out I was reacting to soy and for a couple of years I thought items that were gluten-free and made in dedicated facilities we somehow CCing me. It turned out it was the soy in them and had nothing to do with gluten.

0

Share this post


Link to post
Share on other sites

The last time I got gluten cross-contamination was after eating 2 corn tortilla chips which were fried in the same oil that flour tortillas had been fried in. I was sick for 3 weeks with excruciating cramping gut pain, bloating, nausea, etc. That was October 2005. I haven't had a gluten reaction since. However, I've accidentally consumed tiny bits of each of my other 6 allergens and reacted almost as strongly, but had only 1-2 weeks of symptoms from my other allergens.

0

Share this post


Link to post
Share on other sites

You did describe it well. I get hit badly from that tiny contamination built up over a long time. I think it is because it gets pretty bad before I pay attention to it enough to figure it out. Then it takes me a few more days or weeks of eliminating things before I get the right thing. By then I'm in rough shape. The system is damaged and needs to do a lot of healing. I'm finally getting over one of those myself.

If you are looking for a scientific explanation for your question, the FDA did a paper in which they evaluated research in that area:

http://www.fda.gov/downloads/Food/ScienceResearch/ResearchAreas/RiskAssessmentSafetyAssessment/UCM264152.pdf

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,501
  • Topics

  • Posts

    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined