4 Months Gluten-Free - No Improvement - Need Help!
Posted 08 March 2012 - 10:12 AM
I had negetive blood tests for celiac, but it runs in my family and I have malabsorption problems (undigested food), hormone imbalances, anxiety, migraines, severe hypoglycemia and digestive issues that all screamed celiac or gluten intolerance to my doctor. I have been STRICT gluten-free and DF for 4 months, and also nightshade free (with exceptions of occasional seasoning). I am also soy free. Things got better after about two months, my digestion was better and I went through an awful detox or withdrawal for about two weeks (could hardly stand, dizzy, fatigued, etc). This was promising that I was on the right track, but things started to go back downhill and never came back up. I had my thyroid checked and had small amounts of antibodies, but no thyroid hormone imbalances. I had saliva tests for adrenals and have low cortisol in the morning and high adrenaline. My doctor suggested Isocort for adrenal fatigue but it made me nauseus and my doc told me to go off it but will not prescribe hydrocortisone or anything else. She says its too intense for me and that my adrenal tests do not look THAT bad. With food, I can't tell if gluten or dairy or anything immediately affects me, I have done tons of elimination diets that didn't tell me anything, but never totally grain free (i'm thinking this might be my next move).
I don't know what to do, I still have all of my symptoms: severe reactive hypoglycemia, anxiety, inflammed mucus membranes (everywhere: stomach, sinuses, bladder, etc), chronic swollen glands, undigested food in stools, tense painful muscles, bone pain, migraines, fatigue, muscle weakness, I could go on and on.
Here are my questions: have I not waited long enough for the gluten-free diet to work it's wonders? I thought I would at least be seeing some sort of improvement in symptoms by now.
I eat a LOT of rice and "gluten-free" products, should I avoid these? Should I go completely grain free?
I started to eat some dairy again after 4 months of elimination, with no change in symptoms, should I continue eating dairy?
I thought at one point that oxalates might be bthering me, but with my other food allergies this is way to hard to deal with, plus I guess I'm in denial about some of this...can such healthy foods be so terrible for you?
I can't seem to find a doctor that can help me figure anything out and I'm so sick of trying a ton of crazy new things.
Thanks for any insight...t
Went gluten and dairy free November 7, 2011. Trying to figure this out myself...will update when/if I see results from gluten-free/DF diet!
Posted 08 March 2012 - 10:33 AM
Have you been eating oats? Those cause problems for some people.
There are definitly some gluten free things that bother me I have found, like Honey Nut Chex for some reason.
My suggestion would be to just eat the same foods for awhile, tahts what I have been doing and it has worked, try eating the same thing for breakfast everyday for 1-2 weeks...see how you feel.
I have no idea about the thyroid stuff (I just had mine tested because I am so tired still), but you may want to go see an endrocronologist.
Posted 08 March 2012 - 11:20 AM
I did not suggest corn, as that could be an additional thing you might have to eliminate - I know I did. My reaction to corn is almost identical to the gluten reaction (and unfortunately it is in almost as many processed things as gluten and soy are ). Another reason to abandon processed for now so you can control what you are eating; that way you have more chance of seeing what you are reacting to.
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 08 March 2012 - 12:27 PM
Posted 08 March 2012 - 12:50 PM
Gluten free 2/2012 after off the charts positive blood test
Soy and MSG sensitive
Have opted not to biopsy right now.
Posted 09 March 2012 - 05:03 AM
Posted 09 March 2012 - 05:48 AM
I have also made sure that I'm getting adequate protein at every meal cause if I'm low on that then the empty calories just aren't enough to give me energy for the day.
Stick with it. The others have offered great advice.
gluten-free since November 2011
Posted 15 March 2012 - 08:59 AM
I've been gluten free for about 4 months (since October 20th 2011) and I have had some improvement but I still don't feel myself.
Before going gluten-free, I had moderate to serious adrenal fatigue, undigested foods, eczema, chest pain, gas, crippling anxiety, pathogentic bacterial overgrowth in my gut, yeast infection, swollen lymph nodes, swollen glands (nose, throat, ears).
After going gluten-free, test showed my adrenal fatigue had completely healed, paothgenic gut bacteria and yeast were gone, eczema is much better, anxiety is about 50% better, swollen throat and nose glands are gone. The test also showed some hormonal imbalances.
The point of this is to give it time. You also need to eliminate that gluten free processed food stuff. That just makes my eczema explode as well as some other symptoms. Skylark is also right in saying to stay away from starchy foods like potatoes and rice.
I'll be checking in on this thread.
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