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Old Hag Syndrome / Sleep Paralysis

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Razzle Dazzle Brazell

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Posted 21 October 2012 - 01:55 PM

Omg! The same thing happened to me since I was around twelve. My doctor thought it may be linked to my bladder condition, interstitial cystitis (which was caused by my food sensitivities i was unaware of). According to my doctor, it is more common with those who have insomnia, wake excessively or fail to go through normal stages of sleep. I woke sometimes sixteen times a night to go to the bathroom. It's kinda a chicken and egg kinda thing for me, idk which came first but they are definitely related.
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Posted 22 October 2012 - 12:42 PM

I'm pretty sure this has happened to me, but I wake so slowly that it's never frightened me, as I don't wake and immediately try to move. I have never had it happen on a day where an alarm is waking me, so not sure really.

I'm pretty sure it's related to the hormones that regulate sleep. The body releases mild paralytic hormones that are designed to keep you from sleepwalking, it's theorized that a deficiency in these contributes to somnambulism. Too much and you get temporary waking paralysis.
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Krystal K.

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Posted 24 October 2012 - 09:51 PM

wow I forgot about this ..This happened to me at my peek of symptoms of gluten ataxia.. It never happened in my life before that though, but once the ataxia got to the point of wobbly knees and difficulty. reading and writing, I kept having these and I remember trying to explain it, was frightening!! ...it does sound like a sepearate sleep disorder ..but I believe ceiliacs causes all sorts of seperate conditions ..so personally I havn't had one since going Gluten-Free...to me feels like it was related.
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Posted 17 November 2012 - 08:54 PM

I have suffered from sleep paralysis. I don't know if it's connected to celiac. I've only been gluten-free for two months now, but I have not experience sleep paralysis in those two months. However it only happened to me once or twice a year.
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Posted 09 February 2013 - 09:53 PM

This happened to me sometimes but has not happened since going gluten free.
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Posted 01 March 2013 - 09:50 AM

I have had sleep paralysis since I was 5. and it happend at least once a month. I would get so scared that I would stay up at night which would make it more likley to happen but when I went Gluten-Free it didn't really happen. I think there might be a connection.

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Posted 02 March 2013 - 10:35 AM

  :blink: I had an incident last night.


First time in years. Ugh, shivers as i think about it. I was like "is this what i think it is?". :unsure:

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Posted 02 March 2013 - 10:38 AM

Sorry Shadow :(


Hope you have a restful night tonight - scary stuff.

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Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS


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Posted 29 November 2013 - 03:24 AM

I've never had this happen to me until my recent hospital visits related to celiac disease. It is now a recurring thing despite being gluten-free for nearly two weeks. It's very scary and I'm finding that I'm totally sleep disturbed since this has all been going on. I've been awake the majority of nights for days on end after gluten attacks. I feel like I'm in a nightmare sequence. I'm awake with panic and shortness of breath truly afraid that if I fall asleep that I will die. When I finally start to dose, the paralysis sets in while I'm still awake. it's very scary.

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Posted 23 May 2014 - 08:45 PM

Yes, I have had this happen a number of times in my life. It is terrifying!


I didn't read the link you posted, but one thing I have read in the past (and that has helped me avoid this) is that it occurs more frequently when you sleep on your back. I have no idea why this is the case, but changing your sleep position might help. I'm not a back sleeper usually, but every time it has happened to me that I can recall, I was sleeping on my back at the time.

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Posted 11 July 2015 - 09:16 AM

I've had this a few times, Chiropractor and I thought it might be related to my scoliosis. Vertebrae and or muscle cramp disrupting the neck or something.


Later I learned, it does happen on my back every time, it's part of the melatonin in the base of the brain over producing. Not sure why or how, could be food allergies. Since I've gone gluten-free I no longer have these sleep paralysis episodes.


It is very frightening. Couldn't breath or move, only thing I could move is the scm muscles in my neck, slowly turn my head right and left and got out of it. That's why I thought it was a muscle spasm in the base of my neck or a vertebrae out, once I started moving it I could get out of it.

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GF Lover

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Posted 11 July 2015 - 03:19 PM

This is what Sleep Paralysis (Old Hag Syndrome) is:





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Posted 16 July 2015 - 11:12 PM

I've experienced this more times than I can count. It's always really scary! The worst part is that sometimes I will have dreams that I'm in water and I'll actually hold my breath in my sleep, and wake up gasping for air. That seems to happen a lot less often since I switched to a much healthier diet and started healing. (I was tested for sleep apnea, they said I don't have it)


The most recent episode happened this past Monday. I don't work Mondays, so I was home alone at my boyfriend's house while he was at work. I was watching a movie on his bed and I passed out - I was just feeling really tired. This was around 1-2PM. I was half awake (eyes half open, couldn't really move) and was lying on my side facing the doorway to his room. To my knowledge, everything looked as it should - it was daylight, his room looked the same, was just partially awake. Suddenly, my bf barged in to the room like he usually does and walked right over to me. I thought it was weird, because he told me he wasn't coming home for lunch. First he walked past me to check the air conditioner, then he came over to me to wake me up. He put his fingers on my neck to check my pulse, because he could tell I was in that half awake state. He asked me if I was okay and tried to wake me up. I didn't believe it was really him, so I was struggling to wake up. I tried to kick/slap him with my arms to see if I hit solid leg to prove that it was really him and I wasn't dreaming. I *hit* solid leg, or so I thought. When I eventually fully woke up, I realized that I was alone and that he never came home to check on me. I texted him to double check (it was so real) and he confirmed he had not come home. I do count this as sleep paralysis, because I was partially awake, not fully asleep, and I was really trying to wake myself up. Even though it could have been much more terrifying, it was really disturbing...it was so realistic but yet I still knew it wasn't him and tried to prove it, and somehow my brain tricked me into thinking I hit solid leg and that he -was- really there. So freaky. 

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Diagnosed via blood test: July 2013

Digestive Issues: Lactose Intolerance, Candidiasis, recurring hiatal hernia, possible SIBO

Skin Issues: Rosacea, Seborrheic Dermatitis, Tinea Versicolor

Sleeping Issues: Idiopathic Central Nervous System Hypersomnia, Sleep Paralysis

Allergies: Severe Seasonal allergies,histamine intolerance (under control) sulpha drugs, Oral Allergy Syndrome

Other: TMJ, Gallstones, Orthostatic Hypotension, Dysmennorhea, possible Adrenal Fatigue

Gluten Free - 07/13, Soy Free 05/14, Legume Free 05/14, Dairy Free 09/14, Grain Free 10/14

"I am in control of my own health" - working on crossing everything off this list.


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