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Feeling Fantastic


collgwg

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collgwg Contributor

so sorry it has been a while since i have been here

i have been feeling fantastic these past few weeks

i have never looked so good either

i have droped 67 lbs and im now at my body weight for my hight 135

now i went through hell to get here

but it all changed

when i cut out all grains and cereal family foods along

basically i eat grain free lactose free nightshade free soy free

for morning i drink one glass of green smoothie and take one with me

2 big leaves kale 2 leaves romaine lettuce chia seeds about 2 pinches

pear and apple sauce and blend

yesterday i put mango in place of the pear

then i take something for lunch today it was qunioa flour almond flour herbmare chives onion flakes mixed that with chunked up boneless chicken breasts and baked and then made sweet potato fryes oh yummm hubby loved them

the other day i did a grain free pancake recpie useing almond flour eggs soda coconut sugar in a muffin tin just pour enough to coat the bottom then drop in supposed to be sauage did not have any so i put cooked chicken and baccon on top then poured rest of the pancake mixture on top works great if you do your batter in a blender then baked at 350 for 20 min it was great to take to work

then i got this great recpie im in love with grain free carob muffins omg to die for they taste like a cross between chcolate cake and brownie

i use coconut oil all the time for everything

my sweetners are coconut sugar and honey and sometimes a bit of agave if i run out but only use it if recpie calls for a couple of tbs if it goes into cups i use honey

now mind you if i try and say oh well a bit of this or that wont hurt it does so i am super strict with what i eat

i process my own coconut flour and milk open them up with a cork screw works wonders the pull down kind and then take it to a piece of cement like the basement stair and it cracks open nicely

im so happy i finally figured out what i can and can not eat

i also have been doing oil pulling i think that helps alot too

i highly recomend oil pulling

now that the brain fog is gone i can now go and get my licence and i am now learning a new job as an aprentance to a upholstery shop working monday - friday 9-5 its wonderful i love it so much and learning alot


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tom Contributor

Wow congratulations figuring all that out! :confettithrowingface:

Awesome to hear how fantastic you feel. :)

Bubba's Mom Enthusiast

I'm so happy for you! It's so nice to hear success stories. :D

Sooo...what's oil pulling?

  • 3 weeks later...
Littllemel Apprentice

What supplements did you use? What was your dosage each day?

ciamarie Rookie

That's awesome! And I love your idea about the pancake batter in a muffin tin with sausage (or whatever). I'm so going to try it! Another one I saw, but haven't tried yet; from a show called 'Sara's weeknight meals' is to line a muffin tin with a slice of ham, drop in an egg and put on some grated cheese and bake until the egg is set. I don't remember how long she baked it, and maybe using scrambled egg would be better so it's not really over cooked in order to cook the yolk. But it's another one I'm going to try, to cut down on carbs and have something made ahead that I can just warm up for lunch or breakfast.

  • 2 weeks later...
IrishHeart Veteran

O M G!!! Colleen--that's FANTASTIC !! I have been wondering how you are doing. You stopped writing posts and I didn't want to bug you!

You really struggled for a while for there and I worried about you so much!

You did it!! yaaaay!

I knew you could do it. I couldn't be more happy for you!!! :)

hugs,

IH

Di2011 Enthusiast

I love these stories.

So here is mine..

I'm a single mum to a loving a tender 9y/o. Been overweight most of my 39 years. Today I am 65 kg (143pounds for our US readers). My dermatitis herpetiformis (DH) is still head to toe but milder and mostly healing.

I started getting the 'look' from men about 2-3 months ago. Now I am seeing a very gentlemanly man who describes my DH as being so strange given 'how beautiful the inside is'. In hindsight I think gluten has given me so much grief in so many ways that I can't now fathom that life can be good and happy. It makes my head spin. Can people be this content?


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IrishHeart Veteran

In hindsight I think gluten has given me so much grief in so many ways that I can't now fathom that life can be good and happy. It makes my head spin. Can people be this content?

Yes, we can! :)

and good for you, Diana--enjoy your steady progress towards good health!

I'm am like you, happy to be healing, although my progress is very slow. I have stopped mourning what was lost to this disease and focus on what lies before me.

FWIW, from all I have learned from people with severe DH, it does die down in time. I know how maddening it is. Hang in there, hon!

Best to you, IH

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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