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Im Newbie And A Oldy

Stubborn red head

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Stubborn red head Apprentice
Stubborn red head
Posted

My mother diagnosed me and herself ten years ago. I didn't believe it. I had been sick for so long, and didn't know what to believe anymore. I was 16 years old but I was exhausted of doctors and tests and being poked and prodded.

As far as I know I am not celiac, I am Intolerant to the Gluten grain. I can have it but at times I am unable to process, over the years I have found that my system does better with small amounts of complex carbs (bread, pasta etc..) Here lately I have been having really bad stomach issues. So I have now been on the diet for two weeks and I am feeling better physically, mentally my whole system is better, My temper is calmed down, my head is more clear. It has made such a difference to my body in the last week.

I know that I am gonna have to stay on this diet for a while but I am having issues following the diet, helping my husband understand why I am doing this, figuring out what is safe and not safe.

Do I got 100% gluten free or do I just avoid the complex carbs like breads, pastas, cakes, cookies, anything that has wheat flour in it.

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psawyer Proficient
psawyer
Posted

Welcome!

The effects you are describing are consistent with celiac disease. It has many symptoms, which vary from individual case to case. Have you actually been tested for celiac disease? Your mother "diagnosed" you--how?

If indeed you do have celiac disease, you must completely avoid wheat, rye and barley. You will not heal and recover on "gluten light."

You will find help and support here. At first, it seems overwhelming, but it is not. There are so many things that you CAN eat safely. Focus on them.

Fresh from the butcher meats; plain fruits and vegetables; eggs; many foods by Kraft, ConAgra, General Mills and Unilever (they will clearly disclose gluten grains in their ingredient lists).

Come here with your questions. Someone here will know the answer.

IrishHeart Veteran
IrishHeart
Posted

Peter has given you the best advice and I agree totally.

You can check out my thread "Newbie Info 101" in the coping section for some tips on avoiding gluten, etc.including safe foods, cross contamination issues, etc.

See if anything there helps? :)

Best wishes and welcome!

Stubborn red head Apprentice
Stubborn red head
Posted
  • Author

I found out today that I really need to be fully Gluten free I had a wonder teriyaki tilapia dish that was wonderful. But within 10 minutes I felt like I had to go to the bath room and now, with no end in site for two hours. My Stomach was in real bad shape.

My mother Decided that I had Celiac was 16 by taking my health history, and all of my symptoms, talked to the team of doctors that was over seeing my care in the hospital about the possibility it could be celiac (she found it online). They said that there was a real possibility that I am. They did a few tests all coming back negative. They informed us that this was the first real lead to what was causing me to be as sick as I was.

** Back history Kidney failure, Gallbladder removed at 15 and on 3 different antacids to help with Acid Reflux and a brain deformity, week tendons, and joints, just to skim the surface.

Even with the test being negative the doctors said that it was a good idea to put her and I on the diet to see if it improved our health. I got better but I didn't quite get it and rebelled against it for years. She has been gluten-free for 10 years and at the peak of health.

mushroom Proficient
mushroom
Posted

Sounds like if you want to feel better you are going to have to be a stubbornly gluten-free redhead :) Drink plenty of water and I hope you feel better soon.

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    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      Test interpretations

      By trents · Posted

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Test interpretations

      By Scott Adams · Posted

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
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