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Doctor Just Called


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#1 trayne91

 
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Posted 14 May 2012 - 10:32 AM

My GI clinic just called and said my biopsies confirmed the Celiac Sprue. I am sure I will have a million questions once the initial shock wears off. I guess I just thought it would end up that I didn't have it after all. I had them fax me a copy of my reports. Looks like I got some problems in there:

I have increased intraepithelial lymphocytes of the duodenum. Endoscopicly, the folds did seem flat in the post-bulbar area.
In my stomach I have non-neoplastic gastric mucosa with minimal chronic inflammation of the lamina propria. GI did tell husband he noted stomach inflammation endoscopicly.
There was some tortuosity of the sigmoid.
Moderate sized hemorrhoids internally and within the anal canal.

I was told to continue my gluten-free diet, which I'm not even on. LOL
So, I guess I have to start that when I get money for new groceries. :(
I'm new to all this so guess I need to start looking into what I can have and can't have now and make a list of things I can't have anymore. Does anyone have a good resource for this?
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Tracy

Gluten-free 5/14/12. Elevated TTG IGA 4/12
Positive biopsy (flat folds and elevated Intraepithelial lymphocytes) 5/9/12
Results delivered 5/14/12
Migraines, swelling, bloating, asthma, tingling in legs, anxiety, fatigue, etc...
Low Vitamin D 17. Three years of 1000 IUs of D3 a day, now up to 36 (30 normal)
Hysterectomy 1/2010
WPW Syndrome - Diagnosed at 17. Ablation 9/2006


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#2 ravenwoodglass

 
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Posted 14 May 2012 - 10:46 AM

The good thing is now you know. Go to the coping section and read Celiac 101. That should give you some good info. Ask any questions you need to and we will do the best we can to help you transistion into the gluten free lifestyle.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 psawyer

 
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Posted 14 May 2012 - 10:46 AM

Try these links for useful information:

Unsafe ingredients.

Safe ingredients.


Here's a list of companies that have a clear gluten policy. If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc."


I am not a supporter of lists--they are out of date the minute that you print them. Formulas are constantly changing. That is why I like to buy from companies who will label clearly (see the third link above). Always read the label.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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